Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Numb/tingles

Lister

Recommended Posts

Lister Rising Star
Lister
Posted

My head keeps getting these wierd cold feelings followed by tingles its on the top of my head, im trying to figure out if maybe its a gluten reaction even though i dont know what i may have gotten glutened from since, all i just ate was a burger patty, and some ketsup (heinz in packets) i know regular heinz is fine but are packets ok i remember reading something about sealign glue containing gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GravStars Contributor
GravStars
Posted
My head keeps getting these wierd cold feelings followed by tingles its on the top of my head, im trying to figure out if maybe its a gluten reaction even though i dont know what i may have gotten glutened from since, all i just ate was a burger patty, and some ketsup (heinz in packets) i know regular heinz is fine but are packets ok i remember reading something about sealign glue containing gluten.

i get similar sensations in my head and other parts of my body. i don't think it's a gluten reaction, not for me anyway. feeling cold or heat sensations, numbness or tingling in hands, feet, face, head, or any other places on the body can be symptomatic of anxiety. so can lots of things: Open Original Shared Link

i have also experienced similar things during meditation and bodywork (like yoga and qigong) so for myself i relate it to some psychophysical effect. wasn't your blood work negative? i know you can get a false negative, but can you really conclude that its gluten yet when it could be other things? (not saying you should eat gluten again)

indyceliac Newbie
indyceliac
Posted

I used to get tingly feeling in my arms and legs...and then i started taking sublingual b-12 pills and it went away the next day.

But also, anxiety can definitely cause what you are describing. Try not to worry over every symptom and being overly aware of what your body is feeling....it just makes it worse.

penguin Community Regular
penguin
Posted

I get that too, it kind of feels like my hair is falling out or something (it's not, although I could stand to lose some). I also get a feeling like my shoes are too tight when they're not, like my toes are falling asleep. I don't know what the heck causes it, though for me it seems to happen more when I'm eating gluten.

You're still VERY early into the diet, and you'll have random things happen for quite some time.

mart Contributor
mart
Posted

My son often complains of this even though he's been gluten-free for almost a year. In his case, I can honestly tell you that its not a glutening. Maybe this kind of thing just happens even though you're totally gluten-free?

ravenwoodglass Mentor
ravenwoodglass
Posted
My son often complains of this even though he's been gluten-free for almost a year. In his case, I can honestly tell you that its not a glutening. Maybe this kind of thing just happens even though you're totally gluten-free?

Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got.

Lister Rising Star
Lister
Posted
  • Author

"Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got."

that would explain my "out of body" experinces i have had in the past where i will just lay my head down and the next thing i know i think im up and doing things then i snap out of it, scares the crap out of me but i have not had those for over 2 years

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Becky6 Enthusiast
Becky6
Posted

I def get that after gluten. It is a very odd feeling.

AnnieMarie Apprentice
AnnieMarie
Posted

Lister,

If you see my post about the ALK PHOP. One of my complaints to my Dr. at my six month appt. was the "buzzing" type feeling I am getting in my feet I can occasionally get it in my hands and parts of my face. I also have raynauds though and that complicates a diagnosis. It feels to me like some kind of electric static.

The low ALk... reading might be a B12 thing, I am waiting to see the GI as my rhuematoligist has reeferd me back to him.

Mine seems to worsen when I try to warm the area up.

AnnieMarie

gfp Enthusiast
gfp
Posted
"Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got."

that would explain my "out of body" experinces i have had in the past where i will just lay my head down and the next thing i know i think im up and doing things then i snap out of it, scares the crap out of me but i have not had those for over 2 years

Many of us get this ... we call it "brain-fog" or similar but no Dr. seems to beleive it....

For me its almost like I'm on remote control except every so often my body does something I didn't tell it to do... like the RC batteries are on the way out.

For me its not so much out-of-body as in-body/out-of-body... I don't look down from the ceiling or anything, just feel like I am observing my own body but from inside? If that sounds weird, yeah its freaky.

Lister Rising Star
Lister
Posted
  • Author

i get brainfog all the time but these out of bodys only come when i put my head down

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.