Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overweight... Could It Still Be Celiac?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

After doing lots of research about celiac when our pediatric GI mentioned testing my 1 year old for it I started to realize that I too have a lot of the symptoms... except I am definitely not underweight like they often describe. Can you be overweight and still have celiac???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jennas-auntie Apprentice

Yes, definitely, you can still have it. Dr. Murray of the Mayo clinic calls these people "nutritionally compensated" and said that celiac should not be excluded as a possibility due to being overweight, normal weight, or being tall.

lovegrov Collaborator

Absolutely.

richard

Guest Robbin

:) Yes! You most certainly can be. Many of us are or have been on this forum. If you are not getting the right nutrients and just gaining fat it can be just as health-wrecking. Most drs. are clueless about this. I am overweight, but have many health issues because of nutritional deficiencies. Check out the thread "Diet and Weight issues" and see the struggles overweight and underweight people have. It can go either way-my kids have the opposite problem-trying to gain-so our family has both issues. Hope we can all help you and your family get answers. Take care,

Robbin

StrongerToday Enthusiast

I've lost 54 pounds in a year!! Now, to be fair, some of that is a direct result that I'm eating much healthier then I ever have before. I lived for food out of boxes, take out, etc. Now I don't have that luxury, but it's a good trade off :lol:

jerseyangel Proficient

It is certainly possible to be overweight and Celiac. I went undiagnosed for many years--and was 20-25 lbs. overweight most of that time. I was also anemic.

penguin Community Regular

My completely unsubstantiated assumption is that those of us who are celiac and overweight get the calories but not the nutrients when we eat. That's why we're still anemic, flattened villi, etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
My completely unsubstantiated assumption is that those of us who are celiac and overweight get the calories but not the nutrients when we eat. That's why we're still anemic, flattened villi, etc.

Yes--I agree with this. I was certainly getting the calories <_< , but probably very little vitamins and minerals, etc. Looking back, I was quite unhealthy.

penguin Community Regular
Yes--I agree with this. I was certainly getting the calories <_< , but probably very little vitamins and minerals, etc. Looking back, I was quite unhealthy.

I'm also thinking that's why I've gained 10 lbs two weeks into my gluten challenge, and why I'm hungry ALL THE DAMN TIME!

Guest Robbin
My completely unsubstantiated assumption is that those of us who are celiac and overweight get the calories but not the nutrients when we eat. That's why we're still anemic, flattened villi, etc.

Thanks, ChelsE, You said perfectly what I meant! I went clothes shopping today in a brain fog and can only think, god I am so fat. Seems like a triple curse to have any weight issues with the whole eating/lifestyle changes and being sick.

sarahelizabeth Contributor

Thank you so much!! Wow this is a WONDERFUL message board!! You all have really helped me here!! I think I am going to request a blood test for myself. Our GI specialist just told me last week he didn't want to test my 1 year old just yet... he wants to give him a year because even though he is small he is gaining weight. I figure if I get a diagnosis then they would definitely test my son... right??? Might be the easiest route to take right now.

Here's our history (if it helps)....

I have a 3.5 year old son who is on the autistic spectrum... diagnosed PDD-NOS. and a 1 year old who has had chronic constipation problems since he was just a few months old. Both children have eczema and have both always been on the smaller side. My 3 year old was 36 inches tall and 30lbs at his 3 year well check in January and my 1 year old was 19lbs and 28.75 inches at his 1 year visit 2 weeks ago. My one year old has reflux and is still constantly regurging (although swallows it down most of the time now), is a VERY irritable baby, is still having constipation issues even on a Tbsp of Miralax daily, his poops are VERY bulky... most everything he eats comes directly out undigested and he is VERY gassy. He was anemic at his 9 month visit.

Once I started reading about celiac I started to notice that I too have a lot of the symptoms... but of course many of them are vague and could be attributed to other things. I get random bouts of diarrhea without a distingishable cause. My stools have always floated (never knew it wasn't supposed to), I am constantly tired despite adequate rest, get frequent headaches/migrains, and I am also very gassy (blushing). I also have been getting these intensely itchy blisters on my hands for the last several months. But like I said I am overweight... about 50lbs overweight to be honest!! And I am not anemic... at least the last time I was tested for my pregnancy. My thyroid levels have also been tested and were normal everytime.

jerseyangel Proficient

I think you are wise to be tested. You seem to have a lot of symptoms that could possibly point to gluten intolerance. Be sure to remain on gluten right up until the test--if you try to go gluten-free before the test, you will skew the result. Your children --eczema, anemia, constipation--those are suspicious symptoms, too. I'm sure that some of the parents of young children will weigh in soon. There are some real "experts" on the subject of kids here! :D Good luck to you!

Ursa Major Collaborator

I agree with Patti............go ahead and get tested! I am another overweight celiac here, and couldn't lose weight no matter what I tried! Well, not quite true, went on an Atkins type diet a few years ago and lost, but my family pressured me into eating 'normal' again, claiming all that meat I was eating was going to give me a heart attack. Boy, were they wrong!

If you test positive, you would be wise to put yourself and both boys on a gluten-free/casein free diet. Your autistic son might really benefit, too, as it could really improve the autism. In fact, I would do it even if you test negative, as there are soooooooo many false negatives. The response to the diet is the ultimate test, and always reliable.

indyceliac Newbie

it is absolutely possible! I am another example.

Guest nini

I was over 100 pounds over weight... I've since lost 105 pounds since going gluten free. If you want to go the testing route, don't stop eating gluten until your testing is done, BUT the absolute easiest and quickest test is to just try the diet and see if it helps. It can't hurt, you don't require a dr.s permission for the diet, you just won't get a "celiac" dx on your permanent record tho, but that could be a good thing... I was actually denied insurance coverage because of my Celiac dx.

gfp Enthusiast
My completely unsubstantiated assumption is that those of us who are celiac and overweight get the calories but not the nutrients when we eat. That's why we're still anemic, flattened villi, etc.

Exactly, the body only has two responses to lacking nutrients one is the longer term feeling of missing something and the other is a more regualr pang response.

Both of these are actually part of many physically addictive drugs effects like caffine and tobacco which is why to an extent they work as appetite supressants. They don't really we just get tricked into thinking that the missing thing is the drug which invokes the reposnse and when it needs 'feeding' satiates it. Hence we develop a long term pavlovian reflex to drug and hunger feeling.

Lacking nutrients is the same, your body can just say "eat - I need nutrients" and if you don't adsorb those nutrients it will try again in 20 minutes.

Beccc Rookie
After doing lots of research about celiac when our pediatric GI mentioned testing my 1 year old for it I started to realize that I too have a lot of the symptoms... except I am definitely not underweight like they often describe. Can you be overweight and still have celiac???

A friend of mine was diagnosed celiac by biopsy a couple of years ago and has always been overweight. She actually gained more weight after going gluten free because she was actually starting to absorb nutrients!

tiffjake Enthusiast
After doing lots of research about celiac when our pediatric GI mentioned testing my 1 year old for it I started to realize that I too have a lot of the symptoms... except I am definitely not underweight like they often describe. Can you be overweight and still have celiac???

YES YES YES YES YES YES YES (I am very overweight).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.