Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Was Poisoned By My Body: The Odyssey Of A Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome, And Multiple Chemical Sensitivity - Naturally!

ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miamia Rookie
miamia
Posted
THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

jerseyangel Proficient
jerseyangel
Posted

This looks like it would be very interesting. Thanks for posting about it, C. I think I will look for it :)

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

.

miamia Rookie
miamia
Posted
Open Original Shared Link

I found this and it touches upon celiac disease too.

Open Original Shared Link

I find it interesing the books people buy. Were as with Amazon you can see the other books that person also bought. And it appears there are a few new books addressing celiac disease hitting the book stores.

Also Gilbere has her own site and ou can read all the articles shes written and so on. It is really informative. I think what I like best about her books as opposed to other sis shes speaking from her own experience not just that of s medical professional its much easier to process.

Miamia

Green12 Enthusiast
Green12
Posted
I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

MiaMia,

Thanks for posting your thoughts on this book, it does sound interesting :lol:

  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted
I picked up the book last night I can't put it down. It is easy to read and fast with all the "LIGHT BULB MOMENTS" I've been having as I read, why I'm sick and how to fix it.

It's a really good book so far and well worth the time.

Explains the "rotation diet" I've been doing, and how to get the most of it, to turn this around.

I'll be back when I get finished. I only question the use of WHEY...?

Please put this one on your MUST READ LIST!

This is a terrific book. I haven't finished it yet. It is about a doctor who became ill. It explains the symptoms and what she did to get through the illness. She covers it all from the toxic effects of the drugs to the battle to recover from the immune system war to the challenge of socialization and "her foods". You can't help but relate to her!! Linda Lee

rinne Apprentice
rinne
Posted

Here is her web site,

Open Original Shared Link

Thanks for the information about her.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

lindalee Enthusiast
lindalee
Posted
After reading I'm not sure this book is for all of us here.

Open Original Shared Link & SOY being helpful. Open Original Shared Link I have found it to be the op·po·site. Google the words "Whey Allergy" and see.

In the book she writes about many illnesses but she [never] tells the reader what she was sick from.

One element that was true for me was the MCSS (multiple chemical sensitivity syndrome) as I look back it started for me in 94 with enviromental allergies following surgery in my 30s. And at that time was when I was doing all the colon cleanse and had taken a entirely holistic approach to my life. As I listed in my profile; I did everything other than hycolonics. And the author stands by that it, how it worked for her and goes into detail of the process of detoxing, colon irrigation, colon hydrotherapy, ememas and how helpful these treatments are.

I must confess back in 94 everyone was doing it -- I'm speaking of -- hydrotherapy colonics. My cousin's bestfriend (someone I knew) went and she passed out on the sidewalk in Manhattan following a hycolonic session. She was hospitalized for a week for dehydration. And since my hypersensitivity to everything (in life) I can't or couldn't get past that. ....And then life changed in a big way, the colon cleans and holistic approach I was doing had stopped and no longer had those luxuries with major stress over time by 2000-01 celiac disease grabbed a hold of me.

I do believe; there is many benefits to colon cleaning and some of what she writes about. At this stage for myself I'm reluctant without a professionals help to attempt hycolonics. And the author points that out to the reader.

She writes about glutamine, ginger, aloe, alfalfa, milk thistle, night shade veggies, enzymes digestive and systermic oral enzymes and PARASITES.

She believes in the rotation diet to help.

The best line in the book for me was... when encountering individuals who think [you are neurotic] and present more challanges to you - say to them, " I'M HAPPY YOU HAVE NEVER EXPERIENCED SEVERE ALLERGIES, AND I HOPE YOU NEVER DO." I like it cause it makes all those people we meet, that raise their eyebrow at us, it shifts the thought to them, and gives them something to think of, themselves. I'm going to use it next time.

Has anyone else read the book? What do you think?

Or are doing any of these treatments?

I am trying to learn more about glutamine, the site says it helps celiac....not sure about whey....milk thistle( I bought some to help the liver-going to start back on that and the probiotics...I am dodging the night shades now...I was scanning Dr. Weil's book last night and he said he takes a sm. can of grapefuit juice with metamucile in the morning first thing and then again before retiring (I find fiber helps me too) I am going to keep the fiber up (even though I eat alot of salads, fruits and veggies)..a client gave me some fresh fish yesterday after church and as I was rinsing it I could smell something...he had marinated it in Italian dressing <_< so the best thing I know to say is "I only eat plain foods"... glutamine- that is what I want to know about....LL

lindalee Enthusiast
lindalee
Posted

sillyak, Did you read what she said about the chop sticks?????? I was wondering what those were really good for!! :lol: LL

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author
:o
penguin Community Regular
penguin
Posted

Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.

lindalee Enthusiast
lindalee
Posted
I looked up the ingredients in metamucile Open Original Shared Link they have artificial flavors thats Open Original Shared Link a big no no for us. They can hide many things that will make us sick. It has aspartame in it and also Open Original Shared Link and is processed with grains. = CC It might be making you 'go' for another reason?

lindalee -- Yes, the author says :o chop sticks are used to pick your stool apart when inspecting it for parasite and etc... :o

I use Psyllium 100% no sugar (Konsyl) brand and Glucomannan Fiber (Bionutrients) if I am not juicing. I do not reccommend Metamucile ---I just think it is interesting he takes it twice a day.(a fiber). LL

  • 4 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    2. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    5. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.