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I Was Poisoned By My Body: The Odyssey Of A Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome, And Multiple Chemical Sensitivity - Naturally!


ms-sillyak-screwed

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ms-sillyak-screwed Enthusiast

THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...


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miamia Rookie
THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

jerseyangel Proficient

This looks like it would be very interesting. Thanks for posting about it, C. I think I will look for it :)

ms-sillyak-screwed Enthusiast

.

miamia Rookie
Open Original Shared Link

I found this and it touches upon celiac disease too.

Open Original Shared Link

I find it interesing the books people buy. Were as with Amazon you can see the other books that person also bought. And it appears there are a few new books addressing celiac disease hitting the book stores.

Also Gilbere has her own site and ou can read all the articles shes written and so on. It is really informative. I think what I like best about her books as opposed to other sis shes speaking from her own experience not just that of s medical professional its much easier to process.

Miamia

Green12 Enthusiast
I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

MiaMia,

Thanks for posting your thoughts on this book, it does sound interesting :lol:

  • 1 month later...
ms-sillyak-screwed Enthusiast

!


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lindalee Enthusiast
I picked up the book last night I can't put it down. It is easy to read and fast with all the "LIGHT BULB MOMENTS" I've been having as I read, why I'm sick and how to fix it.

It's a really good book so far and well worth the time.

Explains the "rotation diet" I've been doing, and how to get the most of it, to turn this around.

I'll be back when I get finished. I only question the use of WHEY...?

Please put this one on your MUST READ LIST!

This is a terrific book. I haven't finished it yet. It is about a doctor who became ill. It explains the symptoms and what she did to get through the illness. She covers it all from the toxic effects of the drugs to the battle to recover from the immune system war to the challenge of socialization and "her foods". You can't help but relate to her!! Linda Lee

rinne Apprentice

Here is her web site,

Open Original Shared Link

Thanks for the information about her.

ms-sillyak-screwed Enthusiast

-

lindalee Enthusiast
After reading I'm not sure this book is for all of us here.

Open Original Shared Link & SOY being helpful. Open Original Shared Link I have found it to be the op·po·site. Google the words "Whey Allergy" and see.

In the book she writes about many illnesses but she [never] tells the reader what she was sick from.

One element that was true for me was the MCSS (multiple chemical sensitivity syndrome) as I look back it started for me in 94 with enviromental allergies following surgery in my 30s. And at that time was when I was doing all the colon cleanse and had taken a entirely holistic approach to my life. As I listed in my profile; I did everything other than hycolonics. And the author stands by that it, how it worked for her and goes into detail of the process of detoxing, colon irrigation, colon hydrotherapy, ememas and how helpful these treatments are.

I must confess back in 94 everyone was doing it -- I'm speaking of -- hydrotherapy colonics. My cousin's bestfriend (someone I knew) went and she passed out on the sidewalk in Manhattan following a hycolonic session. She was hospitalized for a week for dehydration. And since my hypersensitivity to everything (in life) I can't or couldn't get past that. ....And then life changed in a big way, the colon cleans and holistic approach I was doing had stopped and no longer had those luxuries with major stress over time by 2000-01 celiac disease grabbed a hold of me.

I do believe; there is many benefits to colon cleaning and some of what she writes about. At this stage for myself I'm reluctant without a professionals help to attempt hycolonics. And the author points that out to the reader.

She writes about glutamine, ginger, aloe, alfalfa, milk thistle, night shade veggies, enzymes digestive and systermic oral enzymes and PARASITES.

She believes in the rotation diet to help.

The best line in the book for me was... when encountering individuals who think [you are neurotic] and present more challanges to you - say to them, " I'M HAPPY YOU HAVE NEVER EXPERIENCED SEVERE ALLERGIES, AND I HOPE YOU NEVER DO." I like it cause it makes all those people we meet, that raise their eyebrow at us, it shifts the thought to them, and gives them something to think of, themselves. I'm going to use it next time.

Has anyone else read the book? What do you think?

Or are doing any of these treatments?

I am trying to learn more about glutamine, the site says it helps celiac....not sure about whey....milk thistle( I bought some to help the liver-going to start back on that and the probiotics...I am dodging the night shades now...I was scanning Dr. Weil's book last night and he said he takes a sm. can of grapefuit juice with metamucile in the morning first thing and then again before retiring (I find fiber helps me too) I am going to keep the fiber up (even though I eat alot of salads, fruits and veggies)..a client gave me some fresh fish yesterday after church and as I was rinsing it I could smell something...he had marinated it in Italian dressing <_< so the best thing I know to say is "I only eat plain foods"... glutamine- that is what I want to know about....LL

lindalee Enthusiast

sillyak, Did you read what she said about the chop sticks?????? I was wondering what those were really good for!! :lol: LL

ms-sillyak-screwed Enthusiast
:o
penguin Community Regular

Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.

lindalee Enthusiast
I looked up the ingredients in metamucile Open Original Shared Link they have artificial flavors thats Open Original Shared Link a big no no for us. They can hide many things that will make us sick. It has aspartame in it and also Open Original Shared Link and is processed with grains. = CC It might be making you 'go' for another reason?

lindalee -- Yes, the author says :o chop sticks are used to pick your stool apart when inspecting it for parasite and etc... :o

I use Psyllium 100% no sugar (Konsyl) brand and Glucomannan Fiber (Bionutrients) if I am not juicing. I do not reccommend Metamucile ---I just think it is interesting he takes it twice a day.(a fiber). LL

  • 4 weeks later...
ms-sillyak-screwed Enthusiast

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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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