Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Was Poisoned By My Body: The Odyssey Of A Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome, And Multiple Chemical Sensitivity - Naturally!


ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast

THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miamia Rookie
THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

jerseyangel Proficient

This looks like it would be very interesting. Thanks for posting about it, C. I think I will look for it :)

ms-sillyak-screwed Enthusiast

.

miamia Rookie
Open Original Shared Link

I found this and it touches upon celiac disease too.

Open Original Shared Link

I find it interesing the books people buy. Were as with Amazon you can see the other books that person also bought. And it appears there are a few new books addressing celiac disease hitting the book stores.

Also Gilbere has her own site and ou can read all the articles shes written and so on. It is really informative. I think what I like best about her books as opposed to other sis shes speaking from her own experience not just that of s medical professional its much easier to process.

Miamia

Green12 Enthusiast
I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

MiaMia,

Thanks for posting your thoughts on this book, it does sound interesting :lol:

  • 1 month later...
ms-sillyak-screwed Enthusiast

!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lindalee Enthusiast
I picked up the book last night I can't put it down. It is easy to read and fast with all the "LIGHT BULB MOMENTS" I've been having as I read, why I'm sick and how to fix it.

It's a really good book so far and well worth the time.

Explains the "rotation diet" I've been doing, and how to get the most of it, to turn this around.

I'll be back when I get finished. I only question the use of WHEY...?

Please put this one on your MUST READ LIST!

This is a terrific book. I haven't finished it yet. It is about a doctor who became ill. It explains the symptoms and what she did to get through the illness. She covers it all from the toxic effects of the drugs to the battle to recover from the immune system war to the challenge of socialization and "her foods". You can't help but relate to her!! Linda Lee

rinne Apprentice

Here is her web site,

Open Original Shared Link

Thanks for the information about her.

ms-sillyak-screwed Enthusiast

-

lindalee Enthusiast
After reading I'm not sure this book is for all of us here.

Open Original Shared Link & SOY being helpful. Open Original Shared Link I have found it to be the op·po·site. Google the words "Whey Allergy" and see.

In the book she writes about many illnesses but she [never] tells the reader what she was sick from.

One element that was true for me was the MCSS (multiple chemical sensitivity syndrome) as I look back it started for me in 94 with enviromental allergies following surgery in my 30s. And at that time was when I was doing all the colon cleanse and had taken a entirely holistic approach to my life. As I listed in my profile; I did everything other than hycolonics. And the author stands by that it, how it worked for her and goes into detail of the process of detoxing, colon irrigation, colon hydrotherapy, ememas and how helpful these treatments are.

I must confess back in 94 everyone was doing it -- I'm speaking of -- hydrotherapy colonics. My cousin's bestfriend (someone I knew) went and she passed out on the sidewalk in Manhattan following a hycolonic session. She was hospitalized for a week for dehydration. And since my hypersensitivity to everything (in life) I can't or couldn't get past that. ....And then life changed in a big way, the colon cleans and holistic approach I was doing had stopped and no longer had those luxuries with major stress over time by 2000-01 celiac disease grabbed a hold of me.

I do believe; there is many benefits to colon cleaning and some of what she writes about. At this stage for myself I'm reluctant without a professionals help to attempt hycolonics. And the author points that out to the reader.

She writes about glutamine, ginger, aloe, alfalfa, milk thistle, night shade veggies, enzymes digestive and systermic oral enzymes and PARASITES.

She believes in the rotation diet to help.

The best line in the book for me was... when encountering individuals who think [you are neurotic] and present more challanges to you - say to them, " I'M HAPPY YOU HAVE NEVER EXPERIENCED SEVERE ALLERGIES, AND I HOPE YOU NEVER DO." I like it cause it makes all those people we meet, that raise their eyebrow at us, it shifts the thought to them, and gives them something to think of, themselves. I'm going to use it next time.

Has anyone else read the book? What do you think?

Or are doing any of these treatments?

I am trying to learn more about glutamine, the site says it helps celiac....not sure about whey....milk thistle( I bought some to help the liver-going to start back on that and the probiotics...I am dodging the night shades now...I was scanning Dr. Weil's book last night and he said he takes a sm. can of grapefuit juice with metamucile in the morning first thing and then again before retiring (I find fiber helps me too) I am going to keep the fiber up (even though I eat alot of salads, fruits and veggies)..a client gave me some fresh fish yesterday after church and as I was rinsing it I could smell something...he had marinated it in Italian dressing <_< so the best thing I know to say is "I only eat plain foods"... glutamine- that is what I want to know about....LL

lindalee Enthusiast

sillyak, Did you read what she said about the chop sticks?????? I was wondering what those were really good for!! :lol: LL

ms-sillyak-screwed Enthusiast
:o
penguin Community Regular

Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.

lindalee Enthusiast
I looked up the ingredients in metamucile Open Original Shared Link they have artificial flavors thats Open Original Shared Link a big no no for us. They can hide many things that will make us sick. It has aspartame in it and also Open Original Shared Link and is processed with grains. = CC It might be making you 'go' for another reason?

lindalee -- Yes, the author says :o chop sticks are used to pick your stool apart when inspecting it for parasite and etc... :o

I use Psyllium 100% no sugar (Konsyl) brand and Glucomannan Fiber (Bionutrients) if I am not juicing. I do not reccommend Metamucile ---I just think it is interesting he takes it twice a day.(a fiber). LL

  • 4 weeks later...
ms-sillyak-screwed Enthusiast

.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    2. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    3. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    4. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    5. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.