Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

KayJay Enthusiast

What great news! That is amazing I thought they said she would have to stay 6 weeks! Just amazing!!!

My dh ask about her all the time too :D We are just one big family in this small world :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
Luvs to Scrap Apprentice

So glad you are home! Will continue to pray for smooth and quick recovery. :) Kendra

TCA Contributor

Thanks everyone for the welcome home!!!! Meg is doing well, just fussy. Her incision site is itching and she's trying to scratch it. Just called the surgeon and he said benedryl cream would be ok to try and that seems to be helping. Things are busy around here, but I hope I can start joining in around here more now.

Each of you have been such a blessing over the past few months. I never imagined when I started this thread looking for answers what it would turn into. Thanks seems such a meager way to express my gratitude for each prayer and encouraging word. Just know that even if you are my "virtual friends", as my husband jokes, you are some of the best friends a person could ever have. May God bless each of you as he has our family.

Love,

Tanya

Nic Collaborator

Tanya,

I am glad everything went so well. I know I seem stuck on this but how is the gagging? If she is still doing it, it must be hard on her with here incision.

Nicole

Lisa Mentor

Much love to you and your family.

Lisa

VydorScope Proficient

YAY!!!!!!!!!! :D:D:D:D:D:D

This calls for a new smilie likethis one!

Click here to see it!

EDIT: Fixed link :)

Fiddle-Faddle Community Regular

I couldn't access the smilie :( It said, "FORBIDDEN."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

:( I couldn't access the smile either but Vincent you 'ROCK'

THAT SMILE SAYS IT ALL.... :lol:

WELCOME BACK LISA.

THANKS FOR KEEPING US ALL INFORMED.

WE LOVE YOU ALL AND ESP OUR 'LITTLE MEGAN'

JUDY IN PHILLY

VydorScope Proficient

Sorry try this link instead..

CLICK ME!

MEGAN UPDATE

WEDNESDAY, AUGUST 02, 2006 01:18 PM, CDT

Sorry I haven't updated earlier, but it's been a whirlwind! We got home safely last night. Megan's been really fussy from being sore, but is doing great. I gave her a warm bath this morning that seemed to relax her, being careful of her incision, of course. She is doing so good, though. We are truly blessed beyond measure. She is gaining weight so rapidly now. She's well over 18 lbs. now! She's outgrown her clothes since being admitted to the hospital, but she still has plenty that she hadn't been able to wear yet! She's so pink.

Her gagging is back with a vengence. I spoke with her GI before leaving the hospital yesterday and he thinks it's just from recovering from surgery. He wants to try her on formula alone, so we're slowly transitioning her to that to see if that will help. After a week, she should be on straight formula, then we can start trying to feed by mouth again, but only 1 new food every 7 days since she has shown so many intolerances. According to how feeding goes, we can start backing off the feeding tube. Please pray for the GI issues to resolve as she heals. This is the next major hurtle she has to face.

Thank you so much for carrying us through this time with your prayers and constant support. It is amazing how many friends and dear family members we realize we have now. So many of you have written in the guestbook, sent e-mails, packages, cards, and gifts. It's the love behind each of those things that we treasure. Know that each of you have a special place in our hearts.

Love to all - Jarod, Tanya, Cole, and Megan Hope

DingoGirl Enthusiast

Very good update - except for the gagging part. Oh I do pray this resolves itself soon....but good to be home, isn't it?

Vincent - excellent smiley :)

TCA Contributor

Vincent - LOVE the smiley. I think it's actually a picture of me as we left the hospital yesterday!!!! ;)

As you read, the gagging is still bad. I still have hopes it will improve. Made a followup with the GI today for 8/23. I'm going to think positive and say that by then the gagging will be gone and we won't have to worry about it! I'm so excited to be able to try to start foods with her next week. She's starting to act like she wants to eat, so I'm very hopeful. If the gagging stops on Neocate alone, then that will indicate there is a food issue, even though the scope was negative. If it continues, I will do the sulfite free thing and put her on breast milk alone for a while. Tried to at the hospital, but it was hopeless in that environment. I was just glad to be able to stay gluten, egg, and milk free.

Canadian Karen Community Regular
My husband asks everday ''How's baby Megan today!''

:)

Mine too! :lol:

Karen

Cheri A Contributor

Continuing to pray for Megan's healing and the gagging issue.

VydorScope Proficient

UPDATE!

THURSDAY, AUGUST 03, 2006 07:09 PM, CDT

Just wanted to let you all know that Megan had another great day. She's only needed pain medication once today. Her gagging has been a little better too. She has had a lot of problem with bile building up in her stomach and that seems a lot better today. Hopefully the gagging being worse was just a side effect of surgery causing digestion to slow. I see slight improvement and am overjoyed at that! I'm sure she will continue to improve.

mouse Enthusiast

Thanks Tanya for the great update. Still praying for the continued improvement.

jerseyangel Proficient

I think about Megan every day--so happy to see that she's continuing to improve! :) Tanya, thanks for continuing to keep us updated--I know you're busy ;)

schuyler Apprentice

Glad Meg's doing better! I hope her gagging improves soon.

key Contributor

So glad you are home again! Praying Megan's gagging continues to get better. Hope you are getting some rest.

Monica

Fiddle-Faddle Community Regular

Just checking in on you, and adding my thoughts and prayers to everyone else's...

Judyin Philly Enthusiast

I'm just ck'n in too to see if any news on Megan.

HOpe all is progressing well esp with the gagging..

love

judy

Canadian Karen Community Regular

Also just checking in on "Our Little Meg"........ The updates sound wonderful!

Hugs.

Karen

Guest Robbin
:) Great news! So glad you are home and I hope you are able to rest, Tanya. How is little Cole now that sister is home? He sure is a little trouper too. Megan is always in my prayers, as all of you are. Thank you for the updates.
VydorScope Proficient

MEGAN UPDATE

FRIDAY, AUGUST 04, 2006 09:16 PM, CDT

Megan in improving each day. Her gagging seems to be getting back to normal. Not that that's great, but at least it's improving!!! It cooled off a little here today and we got her outside some this afternoon, which she loved. Jarod had his chainsaw out cutting some trees and she happily watched Daddy labor away. From a distance, of course. She only took a 5 min. nap all day long. She's just so afraid she will miss something. She was out by 7 pm. That's a big change from sleeping 6-8 hrs. during the day before surgery. She pulled the steristrips off her chest tube scars today, so hopefully they've healed enough for that! Her chest scar is so clean. It healed even better this time than last time. An unexpected improvement is that her eczema is better with the improved blood flow. Who'd thought that would make a difference? I'm still praying hard that her GI issues will resolve on their own. We'd appreciate your prayers for the same thing! We know you people get results! ; )

Hope you all have a great weekend!

Judyin Philly Enthusiast
MEGAN UPDATE

Thanks Vincent-so happy Tanya

This was the sweetest and most encouraging post so far...

Prayers will continue for you all

love and hugs

judy

mouse Enthusiast

The news from you Tanya, is getting better everyday. Of course we will all continue to pray. Can't desert our little Megan. Prayers and many Hugs for continued good news.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.