Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Celiac Moments?

MangaMonster

Recommended Posts

MangaMonster Newbie
MangaMonster
Posted

Hello, I'm Philip and I'm knew on this site. :) I read some of the threads and some are really funny! :lol: I just went to a party yesterday and we did an obsticle course. It was AWESOME! Of course, I could not do it because the course involved rolling through glutenated pudding and Flour! <_< Even though I couldn't do it I had lots of fun watching! :P It was awesome untill every one was off the track. The instructors threw flour at everyone; and as if that wasn't enough my freind Daniel gave me a mouth full of Flour! :ph34r: I got glutened.

What are some of your celiac moments? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Agent Z Newbie
Agent Z
Posted

I'm new to this site too. I just found out in fact that I am a Celiac last week.

I keep hearing about how a Celiac can't even TOUCH wheat? Is that really really true or is it for some or what?

But as for a moment like that? I don't think I have one.

But I'll tell you something else.

There's a Mexican place called Qdoba that I worked at (I even touched the wheat tortillas and served up the food to customers and never really got sick), but when I ATE there sometimes, oh it was wicked. I thought it was because I made my food so spicy.

Once I was with my girlfriend and I had to stay in the bathroom for half an hour with her sitting alone because of something I ate there.

And the day I found out I had it, and went to Qdoba to get something glutten free (since I called earlier and the manager CLAIMED ALL TORTILLAS there were CORN), and I get there and read the menu which specifically says they are WHEAT! Even the CHIPS AND TACO SALAD SHELLS! I was so pissed off that the guy wouldn't take the time to either carefully find out or wanted to lie to me to get my money. :angry: I ended up ordering something and my mom asked after it was done if it was made of flour. It was. So I couldn't eat my nachos (but I did eat them with some corn chips I got later. Just avoided the flour chips). And their corn tacos (or so they claim) are fine.

Ashley Enthusiast
Ashley
Posted

Fluffy!!! XD, sorry

Agent Z- A lot of people won't touch things with gluten in them because it gives them skin reactions, breakouts, ect. Others don't have skin reactions or aren't bothered enough to stop touching gluten.; Yep, you learn ya have to dig deeper than what folks tell you. Double checking labels, lots 'o hours of trying to get information from clueless resturants.

My celiac moment was around after going three weeks of being gluten-free. I woke up one morning, when into the kitchen and saw a doughnut. Blissfully I picked it up and popped into my mouth, completely forgetting I wasn't suppose to have gluten :lol: mom got so mad at me for that. I also had an very close encountered with the flour bags at leadership camp that my JROTC goes to. :ph34r: everyone knew not to throw them at me or I'd punch them.

Anyway, welcome both of you to the boards and if you guys need anything give me a PM or an email! :)

-Ash

Guest nini
Guest nini
Posted

Oh Philip! yikes!

my daughter's school had a field day and they do all kinds of obstacle courses and relays and of course one of them involved rolling a rubber fish in flour and relay racing with it. Fortunately they told me about it ahead of time and I was able to provide enough rice flour for the entire school... (they even paid me back for it...) that way I didn't have to worry about the flour being EVERYWHERE and my daughter was able to have fun with the rest of the kids... (I know I'm not a teenager but your story reminded me of that...) maybe if your friends plan to do something like that again you can get rice flour and that way you could participate.

chrissy Collaborator
chrissy
Posted

i was making tuna fish sandwiches today for the kids----when i called them to get their lunch, molly had to inform me that her sandwich had wheat in it-------i had totally spaced it and made her a sandwich on wheat bread.

aball2006 Newbie
aball2006
Posted

you know how everyone gets different reactions if they ingest gluten? yeah well mine is that exactly two hours after accidentally eating it I begin violently vomiting. well one morning i accidentally grabbed the wrong pack of bluberry waffles and ate them without realizing it. well that morning my choir was going to be singing on the local news channel. as we were driving down there, i puked once, everyone thought it was just nerves. then i puked in the lobby and right before we went on. and the last time it got all over my dress so i couldnt go on. my mom had to come pick me up, and the whole school knew about it by the end of the day. At least everyone at the news channel was really nice about it, and felt bad. that was my most emabrrassing moment due to celiac.

justjane Rookie
justjane
Posted

i used to work at TacoTime and felt horrible every night after I got off of work! Little did I know that even the corn chips had flour on them! I feel ya bud, that is too bad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,153
    • Most Online (within 30 mins)
      7,748
    Mmoc
    Newest Member
    Mmoc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.