Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cereals And Labeling, Kind Of Confused


kenyonsmommy

Recommended Posts

kenyonsmommy Rookie

I was looking at the ingredients on some mainstream cereals today and a few, such as captain crunch superman edt. did not list wheat or gluten as an allergy. If it lists malt, would not this be considered a hidden gluten? Are the manufacturers supposed to take into account those hidden sources such as malt, natural/artifical flavorings? I also looked at the rice krispie treats cereal, which does not list wheat, but has malt in it. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I believe they need to list wheat as an allergen if it has it, but malt comes from barley. I don't believe they have to list whether it is gluten free or not. I think they have to list wheat if it is "hidden" in an ingredient but am not 100% sure. Someone else will probably jump on this and clarify.

psawyer Proficient

Under FALCPA, in the USA, wheat must be disclosed on the label as such, but the same is not true of the other gluten sources. Barley can still be listed as other names, such as the ubiquitous "malt flavor," or other forms with the word malt. I've never known rye or oats to be hidden, but in theory they could be.

If you see malt listed, assume it is barley, and therefore gluten.

kenyonsmommy Rookie

That really stinks... I got so excited over a cereal. Who knew this would be my source of excitement these days. I guess the moral of the day for me would be if it looks to good to be true, it really is. Thanks for the clarification.

mart Contributor

Kenyonsmommy, have you looked at the new Trix and Cocoa Puffs? They've been talking a lot about this on a recent thread in this forum. Also, a new cereal called Dora the Explorer, which I've not yet been able to find but others say is quite good. Just be sure to read the labels to ensure you are getting the ones without gluten. My son is quite happy to eat these mainstream cereals again. He's extremely sensitive, but we've had no problems whatsoever with them.

kenyonsmommy Rookie
Kenyonsmommy, have you looked at the new Trix and Cocoa Puffs? They've been talking a lot about this on a recent thread in this forum. Also, a new cereal called Dora the Explorer, which I've not yet been able to find but others say is quite good. Just be sure to read the labels to ensure you are getting the ones without gluten. My son is quite happy to eat these mainstream cereals again. He's extremely sensitive, but we've had no problems whatsoever with them.

I have, I actually bought the trix cereal, but I can not seem to find the dora cereal. he tried the Trix, he is extremely picky, and he has eaten a few bites. getting him to try something new is very hard, myself, husband and daughter all sat down one evening and had a bowl of trix with my son. he ate it, but I just wish I could give him a better variety. he hates the gorilla crunch, and he also won't eat chocolate. We'll keep trying, Thanks for your help.

Guest imsohungry

I'm a cereal eater myself.... cocoa pebbles are my favorite for breakfast. (It's something I can eat quickly before the baby wakes up and needs to be fed). ;)

I was once again looking at the labels tonight and remain SO FRUSTERATED that the only thing keeping me from eating many "mainstream" cereals is that malt is used. It can't be that necessary an ingredient because they do make some cereals without it.

I'm glad to hear about Trix. I haven't tried that before; It will be nice to have something different. I do sometimes buy the "Enviro" cereals, but they are a little expensive for my limited budget.

Good luck finding the Dora cereal...let me know where you find it and if it's any good!

-Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2Boys4Me Enthusiast
I was once again looking at the labels tonight and remain SO FRUSTERATED that the only thing keeping me from eating many "mainstream" cereals is that malt is used. It can't be that necessary an ingredient because they do make some cereals without it. -Julie

Which makes me wonder why Wendy's can find a fake malt for their frosties, but Kellogg's and everyone else can't find fake malt for cereal.

Everyone with or related to someone with Celiac should be bombarding the R&D departments to research fake malt. We don't have any gluten cereal in the house anymore, and it's all because of one little boy. When one person has Celiac, the whole family changes and won't buy the product anymore. (IMO)

eKatherine Apprentice

I cook everything, and I never once needed to use malt for anything during my wheat-eating days.

Except maybe beer-making...

I'dratherbecycling Rookie

They do not have to list gluten on labels. A new law went into effect January 1 that requires manufacturers to identify the presence of ingredients that contain protein derived from milk, eggs, fish, crustacean shellfish, tree nuts, peanuts, wheat, or soybeans in the list of ingredients or to say "contains" followed by name of the source of the food allergen after or adjacent to the list of ingredients.

However, barley, rye, and products derived from them do not have to be noted on the labels. Thus, us celiacs still get to memorize long lists of ingredients and additives that might contain gluten but do not come from wheat - malt included. For those who are very sensitive, there's also the risk that something does not contain a gluten-containing ingredient and does not contain wheat protein, but could be contaminated with barley or rye or other non-wheat source of gluten within the facility.

Idahogirl Apprentice

Did I hear correctly? Are there gluten free Trix and Cocoa Puffs? If that is true, I think I will buy 20 boxes of each before they change their mind and start adding wheat or malt again. Someone please clarify-is it only certain varieties or old boxes or something????? I'm getting excited here..... :D

kenyonsmommy Rookie

I was told that the new boxes of Trix are gluten free, what ever that means. I saw some different looking boxes big lots one day, these boxes did not look like the one I bought, they were not as coloful I guess. We dont eat cocoa puffs, but I did find the Dora the explorer cinnamon stars today that are gluten-free as well. they were pretty good. I'd get it while you can, you never know when they will change it.

  • 2 weeks later...
Dangerkitten Newbie

For about 2 months I started eating Capt Crunch Peanut butter flavor, thinking it was gluten free. The label lists nothing at all suspicious. My health deteriorated to the point that I was ready to call my rheumatologist for an emergency appt. My RLS was at its worst, migraines lasting days, arthritis had me pretty much chair bound again, nausea was constant. Flashback to 2 years ago when I started to think wheat might be a problem.

I went through my diet and pantry, looking for any changes. I remembered that I had started eating that cereal at the same time I started going downhill. I contacted Quaker Oats and sure enough. The cereal is not gluten-free. It is contaminated through processing, from the farm onward. I complained to them that a "not a gluten free cereal" label should be included, just as the peanut warning is.

So.....the new labeling laws only go so far. You need to make sure the company is willing to commit to the product being gluten free. I dont ever want to go through that again. It's only a couple weeks since I went off the cereal and I'm slowly returning to my pre-cereal health.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.