Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


L.A.

Recommended Posts

L.A. Contributor

Has anyone tried probiotics? What were your experiences? B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I never did use them but I know that Cynthia Rudert (sp??), considered one of the top celiac doctors in the country, recommends all new patients take probiotics for a while. She's even had cases where other doctors diagnosed refractory sprue and the probiotics solved the problem.

richard

Guest cassidy

I take them and have noticed a huge difference. I had a stool test done and it showed that I didn't have any good bacteria. I was feeling much better after going gluten-free, but I was still going to the bathroom several times a day and it wasn't always fully formed - sorry to be gross.

Now, I really don't have any bathroom issues unless I get glutened. I took a strong, expensive one for a month and then backed down. I still take one a day. I also drink kefir which is like liquid yogurt with lots more probiotics.

I really feel that they have helped me.

kbtoyssni Contributor

I take them and it's the one thing that really helped me. (NOTE, at the time I was diagnosed with fibromyalgia and was taking so many different things to see if anything would help). I went to england for two weeks and didn't take my probiotics with and my guts hated me. Now I think my intestines are healed so I'm not sure if I need them any more, but when I was first healing they helped a lot.

dionnek Enthusiast

What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

lorka150 Collaborator

I use Bio-K Dairy free, and love it.

taz sharratt Enthusiast
I use Bio-K Dairy free, and love it.

what about asidofolis, if you cant find yogurt DF then this is a goodreplacement, it gives good bacteria back into your tummy. sometimes when ive felt the thrush coming on ive downed a few for a couple of days and sometimes i manage to fend it off.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Yep, I take acidophilus every day (a cheaper brand but you have to make sure you're getting six billion active cells), and if I ever feel the start of a yeast infection starting, I triple the dose and it always goes away. :)

L.A. Contributor

Thanks for the input, as always, everyone is most helpful :) I contacted my health food store and they have two probiotics that are gluten free--here i come. Thanks again.

Guest cassidy
What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

I don't think activia is gluten-free. If you search for it on here you will see that someone called the company and they said that no activia yogurts are gluten-free. Maybe that is whey you aren't doing so well eating it.

kbtoyssni Contributor

I think the brand of acidopholis I take is Pro Flora. I'll have to check when I get home, though. The label does say gluten-free. I get mine at the health food store, but my old pharmacy also carried it. I got a different brand of acidopholis from my new pharmacy, and I don't think it's gluten-free. I kept getting sick and that was the only thing I changed in my diet. The company couldn't tell me if it contained gluten - they only had information on the active ingredients so I stopped taking it. I'll post the brand later.

ebrbetty Rising Star

Am I the only one who has problems with them? my stomach hurt more when I was on them

gfp Enthusiast
Am I the only one who has problems with them? my stomach hurt more when I was on them

That might not be a bad thing, think of it like adding antiseptic to a cut.

If you add antiseptic and it stings its because its killing the germs....

If your stomach is full of bad bacteria then it makes sense it would be a bit upset and hurt while they wage thier little war?

kbtoyssni Contributor

The brand that I take is Florajen. The brand that I think is NOT gluten-free is BC Lactinex.

acousticmom Explorer

I don't have any experience with probiotics, but I just read this in a book about food intolerance (Food Allergies and Food Intolerance, by Jonathan Brostoff, MD and Linda Gamlin, 2000):

"Some of these [commercial preparations of bacteria intended to restore normal gut flora] have been tested and a crucial difference was found between those bought in health food stores or drug stores and those purchased through mail order. The former had often been stored for long periods at room temperature, and, not surprisingly, researchers found very few live bacteria in them. The bacterial replacers bought by mail order had only spend two to three days in nonrefrigerated conditions and were as rich in bacteria as the manufacturers claimed."

Also:

"If you choose yogurt, you can make sure the brand you are buying really is live by adding a spoonful to some warm milk that has been heated to boiling and then allowed to cool. Keep the mixture in a thermos for six to eight hours. If it has not turned to yogurt, then the original yogurt was not live. The best way of ensuring that your yogurt is live is to make your own--starter cultures are available from some health food stores, or by mail."

I can't vouch for the accuracy of these statements, but the rest of the book has helped me a lot. The authors address the medical controversies surrounding food intolerance and candida issues in a pretty evenhanded way. And they give much more detailed info on doing an elimination diet than my dr. provided. (When I asked her about their advice, she agreed on every point. I was too polite to ask why she didn't tell me all that in the first place!)

Hope some of this is helpful.

Carol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.