Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bed Wetting


skipper30

Recommended Posts

skipper30 Enthusiast

Did any of your children have problems with bedwetting...long after being potty trained?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I don't have kids, but I wet the bed until I was nine, and they could never figure out why, said it was "physchological". Fffffft.

Elonwy

manja Apprentice
Did any of your children have problems with bedwetting...long after being potty trained?? :blink:

Yes, my daughter Anna got diagnosed with gluten sensitivity on Monday.

I am sensitive to gluten too.

She is 2 and a half years old and was fully potty trained at 25 months.

Anna is wetting her bed for about 10 days now. She does not have a UTI.

We got it checked twice within the last 10 days.

They also did a negative test for diabetes.

My doctor thinks it is behavioral. I disagree.

She is off gluten since Monday, on Tuesday and Wednesday she did not pee in her bed during nap time. She also has not had an accident at the playground. She still wetts at night though.

skipper30 Enthusiast

Here is my thinking on this...He is 6...has been potty trained since he was 4. Hardly any accidents after that time. Now all of the sudden he had started wetting the bed at night-easily 5 out of the last 7. He isnot our dx'd kid but we have been thinking of things that have happened in past and wondered if it might be in fact celiac. As a toddler, he would get so constipated that he would also throw-up when he had a bm. Then about 2 years ago he started up with these tics. They come and go. They have returned with a vengance and he complains off and on of his tummy hurting, he has lots of anxiety also....We talked at length with him tonight and he agreed to go gluten-free like younger brother for a while and see if things don't get better.

Then boy #3 has broken out with what I THINK is a very similar "rash"(lost's of little bumps) all over the right side of his tummy -that look a lot like what out dx'ed son get when he has been glutened.

I guess what I am wanting to know is do I sound like a fruit loop and wigging out over nothing?? I don't want to assume that they all have celiac everytime something new or odd comes up. :unsure:

2kids4me Contributor

yes! my son was 10 when he was diagnosed with celiac, he had been a chronic bedwetter and the family doc said "oh he'll grow out of it, its common in boys".

Well lo and behold, within 2 months of the diagnosis and eating gluten-free, he was dry every night!! We were all thrilled as there is nothing worse than waking up cold and wet - esp when you are 10.

I then had the opportunity to discuss it with a camp co-ordinator (for a celiac camp) - she said - that it is because of the damaged gut, and the loose molecules (amine and sulfer) that get into the blood stream relaxes the bladder.

Bedwetting has been linked to food allergies too.

The site I will include is one about autism and the high number of autistic children with gluten/casein intolerance (or celiac) and how low enzyme levels can cause behavioral problems. It is of interest because with my son - gluten-free diet stopped the bedwetting and the gluten-free diet dramatically improved my daughter's school performance and social behavior. The information from articles on celiac and autism helped me understand why this occurred.

Open Original Shared Link

skipper30 Enthusiast

Thanks..I will check that site out!!

I REALLY think that there is a connection here!

schuyler Apprentice

That's really interesting; I never thought about there being a connection between celiac and bedwetting. I am going to pass this info along to my cousin because her 2 oldest sons (ages 4 and 3) have been potty trained during the day since they were 18 months old, but they have to wear diapers to bed because they have so many accidents. This is something else to add to the boys' long list of symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I dont' know about bed wetting, but when I eat something with gluten I have to pee almost every hour. I don't know why. It might be my body trying to rid itself of toxins. I could see kids having the same problem. I had to get up sometimes in the middle of the night to use the bathroom.

  • 1 year later...
RIMom Newbie

we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it's actually possibly the celiac raising its head finally.

Good luck

RIMom Newbie

sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.

Merika Contributor

Ds will have pee accidents within hours of ingesting soy, which he is also allergic to. it's the first symptom of many including behavior after ingesting the stuff. he's been potty trained for 4 years now and it can still happen.

merika

RIMom Newbie

interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).

gfpaperdoll Rookie

I think bed wetting is associated with dairy - take out the dairy & I think it will go away.

there has been papers published on this - or so it seems I remember from an old brain talk post, or it might have been just some moms that figured it out...

goldyjlox Contributor

My daughter is 3 1/2 and potty trained for about a year but she still wears a pull up to bed and the last couple of months she has been peeing in her pants ,all the time. She and her 12 month old brother have had bloodtests a week and a half ago so we are waitng for the resuls. She is the one that I a more concerned about.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748

    Nancy Magil
    Newest Member
    Nancy Magil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.