Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dont Know The Answer


taz sharratt

Recommended Posts

taz sharratt Enthusiast

my friends sister thinks she has celiacs BUT she only thinks she has a prob with wheat and not gluten itself, she asked me if this possible ( me being the expert HAHA), all i could say was i dont know, and i dont but one of you guys may so i said ide ask you lot for an answer, anyone know this one? ps she doesnt want to go to the doc and get tested but is ok to go on the diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

she could have a problem with just wheat, but then it wouldn't be celiac disease.

kbtoyssni Contributor

Wheat allergies are quite common, so maybe she's got that instead of celiac disease. Why does she think it's just a wheat problem and not gluten?

taz sharratt Enthusiast
Wheat allergies are quite common, so maybe she's got that instead of celiac disease. Why does she think it's just a wheat problem and not gluten?

i think maybe cos she was only noticeing problems after eating certain foods some and some not containing G but all after haveing wheat. she had oats yesterday and felt fint untill today, ide say she has C but im no expert.

ravenwoodglass Mentor
i think maybe cos she was only noticeing problems after eating certain foods some and some not containing G but all after haveing wheat. she had oats yesterday and felt fint untill today, ide say she has C but im no expert.

I would agree but I am no expert either. She should try to be gluten-free to know for sure.

CarlaB Enthusiast
i think maybe cos she was only noticeing problems after eating certain foods some and some not containing G but all after haveing wheat. she had oats yesterday and felt fint untill today, ide say she has C but im no expert.

I started out thinking I just had a wheat allergy. After a couple years avoiding obvious wheat, I started feeling worse and came to realize it was gluten. In the beginning I felt better off wheat because I had been eating so much of it. I ate occasional oats back then, and the reaction was so much less than the one to wheat, I didn't even notice it.

So, she could have a wheat allergy, or it could be celiac disease.

I believe the main problem with oats is the contamination with the wheat. I think that there is debate about whether the oats themselves are a problem or not. Since you're in Europe, maybe the oats she eats aren't contaminated. Just a thought. Someone else probably knows more about it than I do.

StrongerToday Enthusiast

I met a woman once who had a wheat allergy/intolerence. She could have other gluten things, but not wheat products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I quit wheat two years ago and felt so much better. I was not having any digestive symptoms at all when I asked for the Celiac test (positive - came out 35). Ironically, I don't feel as good now digestively as I did before; I'm either adjusting or whatever.

Point being, I had no symptoms from eating spelt. I just got concerned that if stopping wheat made such a difference, I should double check that i wasn't doing small harm to myself whenever I had my toast and poached eggs. (I miss my toast and poached eggs.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748

    Victor bowden
    Newest Member
    Victor bowden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.