Crazy Celiac Here!

[sweetp]

so, is it just me, or does anyone else feel like they are the ONLY person in the entire universe that has celiac disease!?? I mean...yah... you all have it (lol) but i mean like in "the real world" the people you meet in everyday life... (sigh)..... no one gets it... yesterday, this girl at my church ( trying so hard to be sweet!!)) said "i made some bread that you can have... it's called oat maple bread and it doesnt have WHOLE wheat flour..." i said.. wow, yah, thanks! um... i can't really have oats and i can't have any flour... she used bleached flour and thought it was okay.... anyways... so sometimes when i'm home alone, or even when i'm at a church potluck, but mostly when i'm home alone... i just want to tear into a loaf of great harvest honey whole wheat bread, ( i don't know why i buy it for my hubby-i torture myself!!!) anyways... i want to chuck the stupid "rice LOAF" that's so dense-and-hard-it-could-seriously-injure-someone-if-you-used-it-as-a-weapon, out the window and dump the soggy quinoa spiral noodles in the toilet where they belong and eat some good old top ramen! ai yai yai... i feel crazy sometimes, like this disease is not real and that if i believe that hard enough that i can go back to eating like a "normal person" i mean, i've been SOOOO stinkin good for SOOO long, it's been a while since i've had a bad reaction, and a few years since i've been constantly sick...i feel so healthy now!! i think i almost need to be glutened once in a while so i don't feel so deprived....anyhoo...so here i am home alone....barry left some cookies on the counter....RarrrRrr..

[VegasCeliacBuckeye]

Sweetp,

try Kinnikinnick bread (www.kinnikinnick.com) for online ordering and Tinkyada noodles (taste like regular noodles)

[hez]

I think all of us feel at times as if no one else has this disease. That is why we come here, there is comfort in numbers

sweetp-You need do dump the quinoa noodles. IMHO they are just nasty. Try tinkyada (I know I mispelled that) it tastes like real pasta and does not fall apart. I can not stand the rice loaf bread. I enjoy the Whole Foods bread toasted, I like Anna's bread from gluten evolution, and I tried Pamela's in my bread maker and that was good.

Sorry Barry left the cookies on the counter Make sure you have goodies for yourself for times like these.

Hez

[Rachel--24]

I'm with everyone else on the Tinkyada.....get rid of the quinoa stuff...Tinkyada tatses like real pasta. Your hubby would probably like it too.

[sparkles]

Sorry to hear that you are going crazy...but glad to hear that I am not alone. It does get to be overwhelming sometimes...and depressing....and I must admit, I am tired of explaining for the zillionith time this darn diet and why I can't just cheat "a little". Right now the whole celiac thing is really getting to me... I am supposed to go to a banquet on Sunday night and am dreading it because it will be typical banquet food.... and then there will be all the questions from those around me as to why I can't eat this or that and why would just a little hurt....etc..... I need a constructive outlet for these frustrations.... I wish I could run away!

[Soo B]

The first celiac conference I went to, the thing I was most excited about wasn't the educational value -- I was excited to physically see other people (outside immediate family) with celiac disease. There was something SO comforting about being in a room full of human beings who go through the same things as me every day. I just wanted to hug everybody.

[Guest nini]

is there a local support group in your area? I find that is one of the most helpful things for me is to get together with local Celiacs and enjoy each others company and good food!

[kabowman]

I know - I am the only one, oh wait, my dental hygentist and her daughter have food issues but I see her once every 6 months and my mouth is full of her hands so I can't really chat back, but other than that, people just don't get it and there is only me.

I love this MB and would have issues without it.

[loraleena]

I hear you. You should buy and make Manna from Anna bread. It is on the web. It is crusty chewy and yummy like a real loaf!!

[Green12]

I don't know about anybody else, but I feel now that I am aware of celiac and after a year and a half or so of eating a gluten-free diet it seems like more and more people I know are having digestive difficulties and exhibit signs and symptoms of celiac. Maybe it's just me though.