Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On Our Son

VydorScope

Recommended Posts

debbiewil Rookie
debbiewil
Posted

So glad to hear he's doing so well. I did know he had ear/hearing problems, so very glad that has been resolved. And keep those wonderful avatar pictures up to date. He's so precious!

Debbie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TCA Contributor
TCA
Posted

WOW vincent!!! I've even talked to you on the phone and I didn't realize about Timmy's hearing!!!!! What a wondeful praise!!!!!! I'm so glad he's doing so well. You never know what trials we my face, but isn't it wonderful to look back and see how God's carried you through it all? thanks for sharing all of this!

Hugs!

Tanya

VydorScope Proficient
VydorScope
Posted
  • Author

Thanks all, I did mention his hearing way back when he was getting ready to go under for the surgery but not since then, hence why I was asked for the update I am sure! :)

Judyin Philly Enthusiast
Judyin Philly
Posted

:o I had NO idea what all you've been through!!

Guess since i've been on for a year, just thought he had sever food allergies. Where have i been to have missed all the back ground. He is so blessed to have such 'terrific' parents who won't give up...bless your little family and prayers for more answers..

hugs

Judy in PHilly

VydorScope Proficient
VydorScope
Posted
  • Author

Well Because we found this site after getting him gluten-free he has been on the upswing the entire time this community has known him.

xander42204 Newbie
xander42204
Posted

Wow- what a truly inspiring story! Best of luck to you and your family!

mommida Enthusiast
mommida
Posted

Wow! I think I remember your first post. Isn't it amazing how much this group has bonded? I remember the day Tymber was having his ears done and having my kids pray for him. Thank s for the update I will tell my kids the good news.

L.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author
Wow! I think I remember your first post. Isn't it amazing how much this group has bonded? I remember the day Tymber was having his ears done and having my kids pray for him. Thank s for the update I will tell my kids the good news.

L.

:blink: Gosh I hope it was a good post if you still remember it!! :blink:

mommida Enthusiast
mommida
Posted

If I remember it was a newbie post looking for help. :D

L.

VydorScope Proficient
VydorScope
Posted
  • Author

Wow I just looked it was on May 13 2005, 07:24 AM! Tim was 21 mos old, not 18!!! Dang it my memory stinks!!! :angry:

Anyways you did drop in to that thread, and nini, and others... 3 pages long.

Cheri A Contributor
Cheri A
Posted

I'm so glad that Timothy is doing so much better! I used baby signs with all of my kids. My son was a very late talker and he used them the most!

VydorScope Proficient
VydorScope
Posted
  • Author
I'm so glad that Timothy is doing so much better! I used baby signs with all of my kids. My son was a very late talker and he used them the most!

Yea its a great tool, we actaully useing real ASL, or well as close to it as he can manage. His dexterity is not up there yet. Learning a second language, not matter which one, is sposed to be great for develpoment, so we plan to keep it up. Though latly we been a bit lazy :lol:

VydorScope Proficient
VydorScope
Posted
  • Author

Well we had the "IEP" meeting today where they went over the results. If you remember back in Jan/December he was doing poorly and seeming to not improve at all. They retested him in march, and based on those tests he was still significantly delayed, but much improved. Well the newest test results are in, and he is no longer classified as disabled! He scores were border line, which is a huge improvement, and he continues to gain ground at a very fast rate. They said that we should watch him and call them again for retesting if he seems to level out, but as long as he continues to gain at the rate he is going we should have no further issues with speech and language with him. In the other areas, for example fine motor control, he was at or above age level.

The only note of interest they did talk about was his activity level was very high for his age level, they did make sure to point out several times that as his age there is no reason to worry about it, but it is something that will have to be watch as he ages.

So when he turns three he will "graduate" out of the special ed program and not return. Kristi and I plan to ask his speech therapist if we can make some out side arrangement to keep her on a bit longer to help get him that last little bit, but if we can not do that we are not concerned. He is speaking is full sentences now, for example "Can I have that?", its still touch and go with that, but slowly becoming normal.

So thats all we know for now!

AndreaB Contributor
AndreaB
Posted

That's great news Vincent. You and Kristi have obviously worked hard with him, it's great that it's paying off now. He must be so excited to be able to communicate more also. And with his energy level up I assume that means his diet has had a definite impact on that. :P

jerseyangel Proficient
jerseyangel
Posted

Fabulous news! Just wonderful--you both must be so pleased and relieved. :)

floridanative Community Regular
floridanative
Posted

Vincent - I did not know about Timothy's hearing problems. That is such awesome news about how well he's doing now! Prayer is a powerful thing....and having great parents doesn't hurt either! Good for you and your wife and the little guy of course!

VydorScope Proficient
VydorScope
Posted
  • Author

Thanks all!

And with his energy level up I assume that means his diet has had a definite impact on that. :P

No one can argue the impact of the diet. It literly saved his life, even the GI doc said all his numbers show it. While he does not have perfect tradtional dx for celiac disease, theres no question his health has had a remarkable turn around.

The last year with him (he was DX'd celiac disease when he was 21 months old not 18, ops :unsure: ) has been nothing but improvement apon improvement.

penguin Community Regular
penguin
Posted

That's awesome, Vincent! Make sure you don't let him forget his signs! Spanish was my first language (well, along with English, but my spanish was better) and I forgot it by the time I was 5 because nobody was around to talk to me in Spanish anymore :blink:

Although, since he's already had exposure to a second language at such a young age, it will probably be easier for him to learn other languages, signed or spoken :)

Guest BERNESES
Guest BERNESES
Posted

Vincent- That is SOOOOOOO great!!!!!!!!!!!!!!!!!!! Yippee!

chasesparents Rookie
chasesparents
Posted

Congratulations to you and your family!!! I am sure you are relieved that all is going well now !!!! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.