Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance


CarlaB

Recommended Posts

CarlaB Enthusiast

I've been really good lately and have been eating at home. I am so fatigued! I have stayed away from casein and gluten, so have no reason to be feeling like this. I have been consuming some soy. For those of you with soy intolerance, how does it make you feel? I have not had digestive symptoms, just fatigue and fog. I had not been eating soy, and this seems to coincide with the introduction of it into my diet.

Thanks!

Carla


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

i feel similar to I do when I get glutened, but my body aches all over. Very fatigued too.

lonewolf Collaborator

I have to eat a significant amount of it now to get a reaction (not just the little bit in soy lecithin), but I get just yucky feeling and aching in my joints - especially my hands.

jerseyangel Proficient

I get lower abdominal cramping, gas, and a general feeling of being unwell. Soy also makes my face break out--my face gets very oily--the only time this happens is with soy.

CarlaB Enthusiast

Thank you for your responses.

Patti, my face is oily today, and I have dry skin ... I never would have connected the two. I'm also having a problem with blemishes.

Today is my first day off it and I feel worse than I've felt since going off casein. With both casein and gluten I felt like I had the flu for a couple days -- body aches, extreme fatigue, brain fog, brain fog, and brain fog!! This is how I feel today, so it must be the soy that was causing the trouble. Beverly, you mentioned body aches, I don't remember having them with gluten or casein, but I sure have them today. I feel like I've been beat up!

Liz, I can only hope to eventually reach the point your are at now!

Will this ever end? Now I'm off the gluten, casein and soy! I hope that's it! I'm really ready to feel better, I feel so useless.

Guest BERNESES
Beverly, you mentioned body aches, I don't remember having them with gluten or casein, but I sure have them today. I feel like I've been beat up!

Will this ever end? Now I'm off the gluten, casein and soy! I hope that's it! I'm really ready to feel better, I feel so useless.

hi Carla- Hang in there... it will get better! I was actually diagnosed with fibromyalgia- would wake up every a.m. feeling like I'd been run over by a steamroller. But the physiatrist was sure it was die to a secondary issue. I haven't had pain like that since I cut out the soy.

Now the question is what to we do for a smooth, creamy frozen treat when it's 104 degrees and we can't have dairy or soy??????

CarlaB Enthusiast

Thanks. No kidding! I miss my latte's, too!

Haagen Dazs chocolate sorbet, it's not creamy, but the chocolate makes up for it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I am one of those who never had obvious symptoms, or associated anything with soy (or gluten). I have noticed lately that my knees and ankle joints don't bother me much or at all any more. This has been a problem since the 3rd trimester of my first pregnancy. Maybe that had to do with soy and/or gluten. I do know that if I get glutened now I know it, so it may be the same with soy. I am both soy allergic and intolerant, as well as gluten allergic and intolerant. Very dairy light considering going off dairy again. Currently only eat butter but I am mildly allergic to dairy as well.

oceangirl Collaborator
I am one of those who never had obvious symptoms, or associated anything with soy (or gluten). I have noticed lately that my knees and ankle joints don't bother me much or at all any more. This has been a problem since the 3rd trimester of my first pregnancy. Maybe that had to do with soy and/or gluten. I do know that if I get glutened now I know it, so it may be the same with soy. I am both soy allergic and intolerant, as well as gluten allergic and intolerant. Very dairy light considering going off dairy again. Currently only eat butter but I am mildly allergic to dairy as well.

Carla,

I have always known soy bothers my intestinal tract. Just can't seem to digest it- bloating,gas, crampy pain. Don't know what "brain fog" is, although this last awful year before figuring this out I thought I couldn't remember things because of being pre-menopausal, but now I wonder.Feel better.

lisa

jerseyangel Proficient

Carla--I had the exact same symptoms while coming off gluten as you--I know that feeling of having been "beaten up"! I truly felt like a wet dish rag for the first 3 months or so. My tongue also felt like it didn't fit in my mouth anymore--sometimes I couldn't get a word out right to save my life :D

I went through trying to figure out all of my intolerances a while back, and the withdrawl/healing pains are truly underated! Your face will even out soon--it may get worse before it gets better. (Why is that always the case :blink: ) We're always *waiting* to feel better!

I hope this is "it" for you--no more intolerances :)

Aerin328 Apprentice

Soy is a pretty common allergin. I also hear that those intolerant to soy tend to be intolerant to all legumes (peanuts, etc.) Maybe try cutting those out as well while you drop the soy, just to be sure?

Carla, I hope you feel better soon! You've been so good to the people here, I'm so sorry to hear you're feeling crumby. For instance, I ordered the Enterolab testing today based on your recommendation (! :) ), and my mother, who's been chronically sick forEVER, ended up deciding to order it to. (The timing to convince her happened to be perfect, and was therefore unintentionally motivated by you!) If she turns out positive, you will have perhaps indirectly helped free someone from the gluten curse. Simple things make a big difference.

Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

Meanwhile Carla, remember, "this too shall pass."

jerseyangel Proficient
Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

You have a lovely way of expressing yourself! And I agree with you :D

CarlaB Enthusiast

Thank you all for your support, it is great to have you as cyber-friends! Especially since we've moved to a different state, so I don't have a network of friends to lean on yet.

I am feeling much, much better today. It's day 3 off soy. Thankfully, I had not actually been eating it for very long, so it's going more smoothly than the detoxing from the casein and gluten did. I feel better, not 100% for sure, but I was able to make it through my workout (I go to workout even with mild symptoms ... the weight lifting really got me through the bad part when I was losing weight, I think I would have lost a lot more without it), and even clean the house (with my kids help, of course!). I'm in a bit of a daze and still feel like I have a mild hangover, but it seems the worst of it is over. I've only been eating simple, natural foods, nothing processed. So, I'll have to take it really slowly adding things back in so I can see how I react.

Thanks again for your support, it really means a lot. I had been gone, came home and your posts were here waiting for me. I've not felt well for a while now, but I'm not one to complain, this time it just had really gotten to me -- emotionally as much as physically.

jerseyangel Proficient

That's what we're here for :) Glad you're starting to feel better!

CarlaB Enthusiast
Soy is a pretty common allergin. I also hear that those intolerant to soy tend to be intolerant to all legumes (peanuts, etc.) Maybe try cutting those out as well while you drop the soy, just to be sure?

Yes, peanuts bother me and I pretty much avoid them. If I have them only once in a while, I'm okay, but with all the other nut butters out there, who needs them?

Basically, beans tear me up, so I've also been avoiding them for a while. Funny I never thought to eliminate soy!

For instance, I ordered the Enterolab testing today based on your recommendation (! :) ), and my mother, who's been chronically sick forEVER, ended up deciding to order it to. (The timing to convince her happened to be perfect, and was therefore unintentionally motivated by you!) If she turns out positive, you will have perhaps indirectly helped free someone from the gluten curse. Simple things make a big difference.

Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

Keep us posted! I was very happy with their service.

rinne Apprentice

Thanks for this thread.

Perhaps you already know this, I think Chelsea started a thread a little while back about soy in supposedly 100% olive oil.

I indulged in some organic chocolate, dairy free but with soy and have been bloated and had stomach pains, :( I was hoping I could have some small treat but it is the only soy I have had in a while and I have had cocoa and sugar without the same effect. Come to think of it the last time I felt this way was when I went to the gluten free store and indulged in processed gluten free treats.

Bye Bye soy.

AndreaB Contributor

Rinne,

Enjoy Life makes chocolate chips without soy lecithin in them. They are pretty good and that is what I use since everything else carob and chocolate have the lecithin in them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

    2. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    3. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    4. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

    5. - trents replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
    • knitty kitty
      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.   P. S. Interesting Reading  Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Descriptive spectrum of thiamine deficiency in pregnancy: A potentially preventable condition https://pubmed.ncbi.nlm.nih.gov/37458305/ B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial https://pmc.ncbi.nlm.nih.gov/articles/PMC9860208/
    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.