Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Related

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

I will apologize up front for asking questions about something I have very little info on. My sister called last night to tell me some good news about her dh but then as a sidebar she mentioned our Mother is getting a cat (or pet) scan tomorrow. Mother ate gluten by mistake recently and had a very, very bad *D* reaction, worse than ever before. It lasted I think four days but during that episode, her stomach was really hurting and at one point her stomach was actually moving where she could see it. She was scared to death since it looked to her like something from a movie - like there was an alien in there moving around so her belly had a potrusion but only shortly, then everything went back to normal. So after this happnes, the pcp sees Mother and I don't know if she had a test, or if something showed up from her endoscopy, but the pcp says Mother has something that starts with a *V* and it's where the large intesting starts attacking the small intestine. Hence this scan is needed tomorrow.

This sounds like something out of a bad sci-fi movie but Mother isn't one to make things up so I'm sure it's true. BUT the pcp is not that bright and tells Mother that for sure it's not related to Celiac in any way. My guess is that is probably is actually. Has anyone ever had anything like this, or know anything about such a condition? Mother is out of town an a dead zone all day and so I can't speak to her until late tomorrow. I'm going to try my sister tonight to see if she has anymore info but she has two demanding kids so she didn't ask Mother any questions and wasn't very concerned about it. The only thing she was sure of is that there is a name for the condition and it starts with a *V*.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

As far as I know - I cant think of any large or small bowel disorders that start with *V.

Diverticulosis is a possiblity (*D instead of *V)

Whipples disease - but hat is more common in men.

The large intestine cant really "attack" the small intestine - but disorders of one can affect the other.

I have included info on Diverticulosis as that sounds like a condition they would want to diagnose/rule out in your mother's case.

Diverticulosis, a condition most common in men over 40, is present in up to 50 percent of people aged 60. Though generally silent until bleeding and inflammation occur, it can be marked by alternating constipation and diarrhea. The disease occurs when bulging pouches (diverticula) form at weak points in the wall of the colon. If they become inflamed, they can cause severe pain, fever, nausea, and vomiting; if small vessels at the base of the pouch become disrupted, there may be significant intestinal bleeding. When symptoms occur, they can be alleviated by a liquid or bland diet and stool softeners. After symptoms subside, a high-fiber diet is usually effective in preventing recurrence and progression of the disease. When infection is present, treatment includes a broad-spectrum antibiotic and bowel rest.
floridanative Community Regular
floridanative
Posted
  • Author

Thanks. It's not diverticulosis My sister was saying all kinds of things trying to get the name right and I was so shocked I didn't even write anything down that she was saying. Guess I'll find out as soon as I can reach my Mother, hopefully tomorrow.

rinne Apprentice
rinne
Posted

I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

floridanative Community Regular
floridanative
Posted
  • Author
I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

I don't know if this test requires iodine but she did have that before and it doesn't bother her.

tiffjake Enthusiast
tiffjake
Posted

I don't know anything useful here, just wanted to send you my thoughts and prayers (for your mom). Sounds weird, hope she is ok! Never heard of anything like that....

floridanative Community Regular
floridanative
Posted
  • Author

Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted
Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

I totally understand! When I got married, my husband was stationed at Ft Hood, 12 hours away from all friends and family! And as soon as I get here, he is gone! So, I take a lot of long road trips! LOL

floridanative Community Regular
floridanative
Posted
  • Author

Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

tiffjake Enthusiast
tiffjake
Posted
Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

Yeah, I will, thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.