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What Are Symptoms Of Celiac?


Jennhaz

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Jennhaz Apprentice

Could anyone tell me the symptoms of celiac disease. How do you know you have it? Before I got sick I was having hives and it always seemed to happen with wheat but then I was getting it with other things. Before all of this I was really sick to my stomach and had diaherea..sorry but then went away after a couple of days. I have always had hives off and on in my life. I know I should get tested but I have been on a gluten free diet for like 4-5 months, I still get hives sometimes but my eyes dont get puffy as much...Jenn


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jerseyangel Proficient

Hi--Celiac has almost 200 symptoms associated with it! Here is a link to some of the more common ones--

https://www.celiac.com/st_prod.html?p_prodi...-49106517537.73

Jennhaz Apprentice

Wow I have alot of those symptoms and white specs on fingernails. All my bloodwork for vit, iron is good. Hmmmm so what is the test to have??..Thank you..Jenn

jerseyangel Proficient

Jenn--If you've been gluten-free for 4 months, blood testing/biopsy would likely come back negative. At this point, you could have testing done yourself through Enterolab, or go back to eating gluten (at the rate of 3 slices of bread a day for 3 months) and then have the blood testing/biopsy. Actually, the positive response to the gluten-free diet is enough for many people and even some doctors. In the end, it's up to you--whether or not you feel you need a firm diagnosis. If you feel better off gluten, then don't eat it! It can be that simple :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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