Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh Displaced Mind

Lister

By Lister
in Coping with Celiac Disease

Recommended Posts

queenofhearts Explorer
queenofhearts
Posted

Lister, I know you are anxious about the meds, but give them a chance... eat something mild, drink some water, & try to relax. After a few days you'll begin to see the positive results. The meds won't cause any immediate damage, so try to give them some time to act on your inflammation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 411
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

It's gonna be ok, Lister.

I think you agonized so much about the pills, you gave yourself an anxiety attack!

Hope you can lay down, take a few deep breaths and relax. If you're at work, get caught up in something--stay busy so you won't have time to think about it. :)

queenofhearts Explorer
queenofhearts
Posted
well i was wrong i did get bit, it just took 2 days for them to show up for some reason, now i really dont wanna take the meds until these bug bites are gone, because if there west nile i need my defense up at 100% (yes it sounds silly to worry about west nile but the camp site we were at just had a breakout) i got one nice bite on my arm that itchs like hell. Im super dizzy this morning i hope the 2 are not related back to my worrying while getting ready for work bye

-------------

AHHHH wtf since when does it take 48 hours for masquito bites to show up, im coverd i have 5 so far and they all took 48 hours to develop now i itch everywhere

You are far more likely to suffer physically & mentally from an anxiety attack than from West Nile. Yes, it's out there, but still very rare in humans. And in fact, the delayed "bites"may even be hives brought on by anxiety & histimine inflammation, in which case the prednisone would be extremely helpful.

Lister Rising Star
Lister
Posted
  • Author

ok yes it was a panick attack and it went away, but i am having slight reaction to the meds

my stomic is becoming very sore, my vision is definatly slightly messed up, my body tempature is rised (making me hot) i know these are not from anxiety because i calmed myself, also my back is starting to really hurt (could just be normal pain) and i am super super super wound up hyper i cant controle my mouth like im spaztec like adhd spaztec from when i wasd 11 im bouncing all around

queenofhearts Explorer
queenofhearts
Posted
ok yes it was a panick attack and it went away, but i am having slight reaction to the meds

my stomic is becoming very sore.... finish in a sec gottta take drive thru

Remember, Lister, anxiety often triggers stomach distress, so it may not be the meds at all.

Did you eat something? Drink water?

Lister Rising Star
Lister
Posted
  • Author

i took the meds with lunch and water

CarlaB Enthusiast
CarlaB
Posted

You were very upset, the residual effects could still be lingering around and bothering your tummy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Personally, I think it's still psychosomatic. You've been staring at these lists of possible side effects for more than a week, and now that you've taken the drug, you think you're having all of the side effects. I know I've done it! And sorry, it sounds like you're definitely still panicking.

Also, if your body temp was rising, you'd be cold, not hot.

And anxiety makes your stomach hurt. That's how ulcers happen :)

Lister Rising Star
Lister
Posted
  • Author

took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

penguin Community Regular
penguin
Posted
took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

How many times a day does it say to take it?

jerseyangel Proficient
jerseyangel
Posted
took first dosage at 9:45 when should i take second?? it says it gives problems sleeping and should take early, but i dont wanna take it to early while the other ones are still in effect

You should take this exactly as directed--what does it say on the label?

Lister Rising Star
Lister
Posted
  • Author

it doesnt, it just says take 2 twice daily for 4 days then take 1 twice daily for 5 days then take 1 daily for 7 days

jerseyangel Proficient
jerseyangel
Posted
it doesnt, it just says take 2 twice daily for 4 days then take 1 twice daily for 5 days then take 1 daily for 7 days

Well, I would take the first dose with breakfast and the second with dinner for the first nine days, and take the one at breakfast for the remaining 7 days.

Lister Rising Star
Lister
Posted
  • Author

well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

penguin Community Regular
penguin
Posted
well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

Personally, and this is just me, but I didn't have problems sleeping with these. For most people, 9:45 is breakfast. The important thing is spacing. For most people, the time between breakfast and dinner is 8-10 hours, so I'd say take your next dose at 8pm or so. That'll do you fine. If you have problems sleeping, take some benadryl and it will help (yes, it's gluten-free). :)

Lister Rising Star
Lister
Posted
  • Author

alright thanks for the advice oh and pegin your right on the money, i called my dx to make sure because i did not want to mess up and take to much to fast, he told me to take the next two at 8pm

jerseyangel Proficient
jerseyangel
Posted
well crap i took my first dosage with lunch (9:45- because of work) so i have to do them slightly diffrent when should my last dosage be? keep in mind acording to the pills and the pharamasist these cause problems sleeping (even though i feel fricking tired right now)

We're all different, but I never had a problem sleeping with steriods. (I've even had the long-lasting kind that are injected)

Since you took the first dose at 9:45, Can you take the second around 9PM?

See how it affects your sleep--if at all.

Tomorrow, take the first dose earlier--with breakfast. Then continue with it at dinner time.

That's just so the doses are close to 12 hours apart--it dosen't have to be exact, but you want to spread it as evenly as you can. Don't worry about the times being exact.

How are you feeling now?

Lister Rising Star
Lister
Posted
  • Author

umm i dont know kinda the same kinda not, my stomic is still slightly bothering me (usualy does around this time) but not nearly as bad as it usualy does, like its not knawing at me i can bare it like this. so maybe htey are working i dont know. i do know my head is really fogged up from them though

i would take it at 9 but it has to be taken with lots of food and as late as i can go for dinner is 8 if i wanna let it digest at all before sleep

besides for the pretty heavy fog im incrediably tired like really really tired, anyone else get this from these pills?- there supposed to make you really awake i hope the pills are working correctly

jerseyangel Proficient
jerseyangel
Posted

Lister,

I'm not surprised that you feel tired. You've been through a lot very recently--not the least of which the emotional upset you've had the past few days!

The meds are beginning to ease some of the inflammation--as you feel more comfortable, I think you'll calm down and allow yourself to sleep. That's the best thing for you right now.

Taking the pills at 8 or 9--that really dosen't matter too much--just so the doses are 10-12 hours apart. Don't obsess over that--just take them when you eat, and above all, relax and let them do their job.

Lister Rising Star
Lister
Posted
  • Author

man these pills are making my stretch marks show for some reason, they had finally died down

Lister Rising Star
Lister
Posted
  • Author

anyone know if these pills can cure anything? or do they just temporarly subdu the inflamation? or could it acually make it go away and not come back? basically im asking once im off the pills will i be back to the way i was? or will it acually change things for the better?

_____

not sure if its from pills or not but im having really bad chest pains in my right chest

queenofhearts Explorer
queenofhearts
Posted

The idea behind these pills is that they will put a halt to the vicious cycle of inflammation that is going on in your digestive system. Once you have eliminated the inflammation you will be better able to tolerate food, to digest, to get stronger. I've never taken them myself, but from what I've seen in those who have, the results last quite a long time-- long after the course of meds is over. It will give your system a chance to heal.

Lister Rising Star
Lister
Posted
  • Author

but once im all healed up will the inflmation just come back? like is it chronic and only temporarly meds will work?? or is once the inflmation gone it stays away?

queenofhearts Explorer
queenofhearts
Posted

If you take care & eliminate the things that were causing the inflammation, you can break the cycle & stay well. It's sort of like those mosquito bites-- if you scratch & scratch them they won't get a chance to heal. But if you let them alone, your body's healing power takes over & you get better.

Lister Rising Star
Lister
Posted
  • Author

how do i leave my stomic alone? should i start eating very very little for a few weeks? i dont quite understand how i take care of it?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    3. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    5. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.