Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rachelville 2


Rachel--24

Recommended Posts

Rikki Tikki Explorer
Tavi--have you cried yet? If so did it help?? Gosh, I can so relate and am sorry. Guess it's the price we pay as Mom's for helping to give our kids wings...hugs.

Judy

No, not yet. I know it's a good thing that she is off on her own and time for that. It's just so far away. I was thinking that when we moved in here there were 5 of us and now there is one. It's just really weird. I told my oldest daughter that now she will be like an only child, just what she always wanted. She never really forgave me for bringing the other 2 home from the hospital :lol::lol::lol:

Anyway, life moves on and I suppose this is what the empty nest thing is all about. It's just so strange, never imagined they would grow up. I had 3 in 3 years and remember thinking I would never get any sleep again, go to the bathroom by myself, not refree fights etc. and now it's just over, in a blink in the eye. I could sleep all day if I wanted, only I can't sleep. Ok Judy, here comes the tears :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 1.7k
  • Created
  • Last Reply
TinkerbellSwt Collaborator

OH morgan that sounds like such fun.

Judy- i was up until 330am. I couldnt sleep. I had to take extra meds to help me sleep. I feel like a zombie today.

I got glutened last nite too. That maybe why I couldnt sleep. I used a plastic cutting board that used to be used for gluten sandwiches. The board hadnt been used in forever, and I put it in the dishwasher and thought it would be safe. I knew as I was using it it wasnt a good idea, but I did it anyway. Kinda asked for the glutening. phooey.

Chelsea- I am sorry that you didnt get a positve on your test.

Thanks for all the compliments on my avatar. I never get tired of hearing how cute my son is!

Judyin Philly Enthusiast

Hi All

Promised myself i'd be off here and outside at 12:00 but Tavi...had to post to esp.

:( sorry your crying now but hope you'll feel better afterwards.

Just had a call from CA from son and had another 'honest' conversation.

I'm in tears now too. I miss him so much and he misses us and can't afford to move from there. Says Hollywood is just too phony for him ...

It was a hard phone call so going to go out INTO THE SUNSHINE AND DIG IN THE DIRT.

THANK GOD HE GAVE US DIRT ..DON'T KNOW WHAT I'D DO W/O IT.

PM ME IF YOU NEED.

LOVE tAVI

AND TO ALL THE REST ON BOARD..BIGS HUGS WILL TRY TO WRITE LATER.

J

Rachel--24 Collaborator

Hi everyone! :)

Molly, that sounds really fun! I hope you guys win it all! :D

What do you mean you have no class spirit?? It sounds to me like you have alot of spirit. You get involved in everything...schoolwork, camp, airbands, the Stanford Celiac conference. It seems to me like you have TONS of spirit....I can tell just by excited you sound in your posts. :D

Tavi....I know I couldnt have held back tears as long as you've managed. I'd be dragging out picture albums...all kinds of stuff to torture myself. Even though I dont have kids I know I would do this...I do it when all of my relationships ended. You'll feel alot better afterwards...I promise. :)

Morgan, How cool that you're having so much fun! Wont you be needing tennis shoes for raquetball though?? :P

Stephanie,

Yup...you're boy is such a cutie!

I'm gonna try to go to bed around 4pm today. I hope I'll be able to fall asleep that early. :unsure:

I wanna go into work at about 1am. I'm excited about my doctor appt...nervous too. I'm going to a doctor who specializes in mercury toxicity tomorrow morning. My doctors think I might have this and I've always felt I do so maybe I'll finally get answers. :)

flagbabyds Collaborator

Im not on SEC (student executive council) or i don't do clubs and im not involved in all that stuff, i do dress up for homecoming themes but i do not dress up for spring fling themes and stuff like that.

and i don't go to football games

if you want to see how bad our football team is go to www.gunntitans.com

we suck!!

Judyin Philly Enthusiast

Rachel.

didn't know you were ck'n on this.

Are you still see that first set of dr's?

good luck and post what he says

hugs

Judy

morganb Newbie
Morgan, How cool that you're having so much fun! Wont you be needing tennis shoes for raquetball though?? :P

Yeah I have some....I just don't like them and only wear them when I need to, like tonight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Rachel.

didn't know you were ck'n on this.

Are you still see that first set of dr's?

good luck and post what he says

hugs

Judy

Judy,

I've been posting about this on the OMG thread. I'm gonna post about my appt. sometime tomorrow. The drs. I had been seeing came to the conclusion that based on process of elimination, circumstances and timing of onset of symptoms and symptoms being consistent with that of mercury toxcity....that I should see a specialist who treats this. They're sending me to this new Dr....who I'll see tomorrow.

Remember me talking about this way back? I really feel its whats made me sick but no doctor would acknowlege it or help me. The Dr.'s at the clinic werent willing to consider it either but now they've come full circle and set me up with this Dr. We'll see what happens.

Judyin Philly Enthusiast

Thanks Rachel

I do remember this.

Is this from teeth fillings?

Were you the one who had all the trouble after root canals..?

Thought it was you and I too had 1 root/c and 2 teeth pulled before dx.

Hoping for some answers.

Hugs

Judy

Rachel--24 Collaborator

No....my troubles stared when they put gold crowns above amalgam fillings. It caused "galvanic reaction"....supposedly this would leech large amounts of mercury out of the fillings. I had a root canal later on due to major pain and non-stop problems since they put the crowns in. Even after the root canal I was still having major pain in the "dead" tooth. They ended up pulling the tooth and the pain stopped.

Judyin Philly Enthusiast
No....my troubles stared when they put gold crowns above amalgam fillings. It caused "galvanic reaction"....supposedly this would leech large amounts of mercury out of the fillings. I had a root canal later on due to major pain and non-stop problems since they put the crowns in. Even after the root canal I was still having major pain in the "dead" tooth. They ended up pulling the tooth and the pain stopped.

They did this to me too and I've had those pulled.

Is the mercury still in our systems??? :o:blink::huh: Holy Crap!

judy

TinkerbellSwt Collaborator

hmmm.. no one around again? I hope everyone is alright!

AndreaB Contributor

Hi Stephanie!

We are fine. Busy with homeschool. Maybe since summer is over everyone is back to the humdrum of whatever normal living is. :lol:

I'm cutting my time here on the board but always read.

2Boys4Me Enthusiast

GAAAAAAAAAAAAAAAAHHH! The leaves are changing colour and it's getting dark at 8:20! I'm not ready yet!

nikki-uk Enthusiast
GAAAAAAAAAAAAAAAAHHH! The leaves are changing colour and it's getting dark at 8:20! I'm not ready yet!

I know ,I know.

I hate it.The whole ''gotta think about buying winter coats ''

Boo hoo!! :(

I need to live in warmer climes....

Green12 Enthusiast

Hi All,

Just a drive by post.

Stephanie, I posted in your thread, sending good thoughts your way about your son's appointment tomorrow I hope it goes well.

I love this time of year, it's my favorite, so I am ready for the changes :)

Rachel--24 Collaborator

NOOOO....please dont let summer end. I never even got to wear my new summer dresses. :(

I have to admit though...I do like the season changes. Not so much the drop in temp. but I like the *feel* of fall and winter....the holidays and the "cozyness" of it all. :)

flagbabyds Collaborator

rachel is it hot where you are cause it's over 95 today and reallyreallyreally HOTTTTTTTTT

bleghhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh

AndreaB Contributor

Molly,

Don't forget, Rachel LOVES heat. She thinks 85 is too cool. :P

nikki-uk Enthusiast
NOOOO....please dont let summer end. I never even got to wear my new summer dresses. :(

I have to admit though...I do like the season changes. Not so much the drop in temp. but I like the *feel* of fall and winter....the holidays and the "cozyness" of it all. :)

But you live in California-so not such a dramatic change in temperatures!!

Us Brits have to put up with endless grey rain,sleet ,snow,ice....BRRRRR!!!

I'd rather be in California for the winter!! :lol:

:)

debmidge Rising Star

I've been on vacation for a while, so I missed some

Tavi, sorry you're feeling down about your situation.

Penguin, Happy for your weight loss news for you.

Judy, always glad to see you around. You're always such an "upward motivating" person to us. I wish I could have your cheeriness.

Chelsea: hope you are feeling better

Rachel, Carla: send some warmer weather our way!

To all I missed here, Hi! Hope all is well.

I've heard about mercury fillings being dangerous to your health. I don't know if I ever got any in my life....I'm sure I have but I have had "re-fills" over the past 10 years and I don't think the new stuff is mercury-based.

Let's demand that Summer not end!

I hate change, especially bad change. Our local ACME is closing after 30 years; this is bad for us because my husband was able to walk there (less than a block away) while I had the car at work.

The change will mean that we will have to do food shopping when I get home from work or weekends.....we are down about this new development.

Our choices now are: go into hock to buy a second car? or move to a more expensive apartment, but is close to many different stores and could be a good decision in the long run? Which is best?

Well gotta run & get ready for work.

Jean-Luc Rookie

wow, I really am buried with work, a toddler and my refereeing, not enough day light. :angry:

In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

I am starting to get nervous about these restrictive diets and breath tests. I think someone else mentioned they were going for them -MiaMia?

I wound up experiencing the same upper abdominal pain I had that first started this whole ball of wax. But it passed, I will be happy to get a diagnosis or something. :lol:

As for those lamenting about winter, I am sitting in my office at 6 pm and it is already getting dark out. The high today was around 71. This weekend will be nice, but old man winter is coming back , However, NOAA insists the NE will have a mild winter. I can only hope.

Everyone take care.

Green12 Enthusiast
In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

Hi Picard :)

Glad to hear your dad's surgery went well.

AndreaB Contributor
wow, I really am buried with work, a toddler and my refereeing, not enough day light. :angry:

In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

I know it's hard....but you need to take some time for rest and relaxation. :)

Glad to hear about your Dad. When do you have your tests. Isn't that next month?

morganb Newbie

Just a drive by hello :) . It took me a while to find Rachelville, but I don't have any time to look at the other hot new topics.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.