Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Still So Tired - What Is Going On?


aprilh

Recommended Posts

aprilh Apprentice

I have been gluten free since around first of July. I am doing much better but I am still tired all the time. Some times are worse than others. I went off dairy for a short time, but am back on it - very little bits. Today, for lunch I ate leftover gluten free pasta with gluten free sauce and ground beef. I have been soooooo tired since. I could go to sleep but I can't until my kids do.

My legs constantly feel so weak and tired. I have lost LOTS of weight in a short period. Everytime I weigh, I have lost more weight. I thought maybe its corn? Some gluten free pastas are made with corn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

I find I do best with a lighter lunch, anything heavy makes me sleepy in the afternoon. I always have an afternoon snack so I don't fade out before dinner. Maybe you should try the "grazing" approach, & eat several smaller meals.

marciab Enthusiast

I found out that I have to limit my processed grains. I do better on whole quinoa, buckwheat or millet.

key Contributor

It could be you are still healing and recovering. You were sick for along time. Are you sure you aren't getting gluten anywhere still? Do you still eat out?

I know I have those symptoms when gluttened.

Monica

RiceGuy Collaborator

I've also been extremely tired, but I'm now finding out there have been some things in my food choices which have been causing much of the reactions I've had. My leg weakness eventually worsened to the point where I could not walk at all, and there was a whole LOT of pain, twitching, spasms, etc. A great deal of digestive/intestinal issues as well.

But now, I think I may have narrowed down what it is (still trying to recover). It seems that nightshade foods like potatoes and tomatoes have become intolerable to my system! Triggered by what I'm not sure. Perhaps nothing triggered it, but at any rate it doesn't take too much of it to effect me. On the other hand it apparently takes several weeks to recover from the effects.

This may or may not help you at all, but I figure it might be worth considering.

Hope you feel better than I do!

jenvan Collaborator
I have been gluten free since around first of July. I am doing much better but I am still tired all the time. Some times are worse than others. I went off dairy for a short time, but am back on it - very little bits. Today, for lunch I ate leftover gluten free pasta with gluten free sauce and ground beef. I have been soooooo tired since. I could go to sleep but I can't until my kids do.

My legs constantly feel so weak and tired. I have lost LOTS of weight in a short period. Everytime I weigh, I have lost more weight. I thought maybe its corn? Some gluten free pastas are made with corn.

Being gluten-free since July is not long at all...for many folks it isn't long enough on the diet to notice any improvement. ie. myself :) You may want to keep a food/symptom journal to see if other foods are causing you issues, like the dairy. For some folks, pasta would bring on post-meal tiredness. If this is the case for you, you could always err on the side of protein. Vitamin deficiencies, ie. b12, iron etc., fairly common in Celiacs, can also cause an extra dose of fatigue. You may want to look into these if you haven't already. Either way, chances are also that you just need more time. Every person is different, like their history... I didn't notice real improvement in my energy till after a year gluten-free. And honestly, I still struggle. Good news is many folks noticed it within a few months. ...But not knowing what your system is like, I suggest stick with it and try and cope as best you can while you continue in this beginning stage of healing. It will get better!

kbtoyssni Contributor

It sounds like you're just going through the normal healing process. I did really well the first month on the gluten-free diet, then I got a slight cold and was out of commission for the next month. Give it time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Have you had your thyroid checked out? That's a possibility. Another though is some autoimmune disease, they all seem to include a lovely dose of fatigue.

Also, carbs are processed by the body rather quickly raising the blood sugar, insulin gets release which brings it back down. That drop in blood sugar makes some of us really sleepy. You can either eat another carby meal and start the cycle over again, or you can try to eat something that doesn't spike the blood sugar so much. I personally limit the amount of starchy or sugary stuff I eat and it really helps with my alertness. I focus more on proteins and natural sources of carbs that are digested more slowly, like fruits and veggies. If you're going to have starchy stuff, I wouldn't eat it until dinner time. Then you might find the sleepiness coinsides with when you want to go to sleep.

Final thought, all the stuff I'm intolerant of, dairy, soy and wheat make me feel tired and make my brain malfunction. So perhaps you're still eating something you shouldn't be.

Guhlia Rising Star

Soy is in most store-bought spaghetti sauces... Just a thought. It could be that you've developed an intolerance to soy. Many of us develop other intolerances after Celiac surfaces.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.