Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will My Anxiety Ease?


myserenityprayer

Recommended Posts

myserenityprayer Explorer

Hi everyone...

This is my very first official post. I am a newly diagnosed celiac and im just freaking out. I have been sick since forever. I went to the GI complaining of terrible indigestion and heart burn (which I have never had in my life) and after explaining my long history of "stomach inconsistencies" and frustration he quickly led me to believe that I probably have IBS and that I am too young to be so stressed. I mean, I do have a stressful job, but who doesn't have stress? I was very unhappy with his immediate diagnosis. He then continued to explain that although he is almost 100% sure I have IBS he is sending me to the lab for some blood work. When my results came back I received a phone that freaked me out. He said I was "terribly" anemic and I need to go see my Gyno asap. He then also told me that my protein levels were extremely low. The next day when the complete results were in he told me that to his suprise I didn't have IBS (which I was actually relieved about) and that now he thinks I have Celiac Sprue and would like to schedule an edoscopy. Talk about a complete 360. Well 2 weeks later, I have Celiac (seeing other posts, I guess I am pretty lucky considering i was diagnosed very quickly). Needless to say I was happy (if that's even the right word) that I have Celiac. I thought, ah finally I will be able to lose weight (i have been on a diet my whole life)- going gluten free will be easy.

Well that lasted maybe about 2 days. My first trip to Fairway (a "gourmet" supermarket in the NY area) was way beyond what i had anticipated, especially since I'm used to Trader Joe's, which is small and intimate. I think I may have had a panic attack in the store. I was so overwhelmed and freaked out. I realized this wouldn't be as easy as I thought. Especially since now that I have been gluten free for almost a month I have GAINED weight (what the heck???!!?).

I really enjoy going out to dinner with my boyfriend but I get so anxious and nervous about going to a restraurant that doesn't provide a gluten free menu. Sometimes I feel like avoiding food all together. I went to a family BBQ on Saturday where it was catered with Italian food (clearly I couldn't eat anything) and a grilled veggie platter. After getting into a huge fight with my mom about wanting to call the restaurant where it was ordered from to find out how they had prepared the veggies she told me to stop being so neurotic and to just eat them. i'm going out to dinner tonight with my girl friends and I'm just a nervous wreck. My doctor told me that I can NEVER cheat, as if I have the guts to even do so!!. I just want to feel healthy and be healthy for once in my life.

Maybe this was just a crazy rant. But does anyone have any advice? Am I being too nuts about all of this? Maybe my mom was right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

It's a big change in life so yes it will be overwhelming and stressful and every time you go out to eat somewhere where they serve gluten you probably will be a bit anxious. I have been gluten free since 2004 and I still get nervous going out to eat at different places. The anxiety does calm down after you adjust to the diet. You are going to have to not only change foods but products like makeup and shampoos as well. There are some lists that would help as a guideline and a list of brands that will list wheat,rye, barley, or oats if they have any. If you would like these lists feel free to message me and I can send them to you.

kbtoyssni Contributor

The first few weeks will be overwhelming. It takes a long time to figure out what brands of food you can eat. I used to spend hours in the grocery store, now it doesn't take me any longer than anyone else. You can probably find most of what you need at Trader Joe's. I've never been there so I don't know what they offer, but I do most of my shopping in a regular grocery store and only go to a specialty store for things like gluten-free bread and crackers.

It would probably be good to not eat out for a while, at least until you get the hang of the diet. I used to hate eating out because it was such a pain, but now I know what questions to ask and what foods are generally safe and it's not a big deal anymore. Maybe you could meet your girlfriends for a walk or at a coffee shop or go ice skating or something else for a while.

You are not being neurotic when you want to call a restaurant and ask about food preparation. You are simply looking out for your health and being safe. Would your mother rather you eat "questionable" foods all the time and continue to be sick? In cases like this, I would bring my own food

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.