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Is There A Cure?

KayJay

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KayJay Enthusiast
KayJay
Posted

To make a long story short my dh was taking to friends that know someone in Australia with Celiac. They said she went to a doctor and he is all knowing of Celiac and has a cure or something like that. She went thorough the treatment or took a pill (they don't know) but for the last 9 months she eats gluten and feels great.

So is there a cure? The lady who is cured is on vacation for 2 more weeks and then they are going to give me her contact information.

Anyone know about this Dr. in Australia or this cure? Sounds good to me :D

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Nantzie Collaborator
Nantzie
Posted

I would have a hard time believing that this is a cure. Cure to me would mean that the immune reaction would cease to happen, and there would be no risk of any intestinal damage. That would be a very difficult thing to verify. Because you can have celiac, with intestinal damage and positive biopsy and not have any symptoms whatsoever.

The only thing I would believe at this point in history would be that maybe someone will come up with something that might help or prevent symptoms, but not a cure. If this man was saying that he had found something that would help supress symptoms of being glutened, I would be open to that.

I'm very open to alternative things, but I'm also not willing to think that there is a cure to something that has a genetic component. I would suspect that he either doesn't know enough about celiac to know the details of the disease, or he's boasting and overstating his product or method.

I'd love to hear more about this if you get more info. Eventually I'm sure there will be a cure for celiac, and who knows if it will be figured out by a big pharmaceutical company like Pfizer or by a guy in Australia.

Nancy

gfp Enthusiast
gfp
Posted
I would have a hard time believing that this is a cure. Cure to me would mean that the immune reaction would cease to happen, and there would be no risk of any intestinal damage. That would be a very difficult thing to verify. Because you can have celiac, with intestinal damage and positive biopsy and not have any symptoms whatsoever.

The only thing I would believe at this point in history would be that maybe someone will come up with something that might help or prevent symptoms, but not a cure. If this man was saying that he had found something that would help supress symptoms of being glutened, I would be open to that.

I'm very open to alternative things, but I'm also not willing to think that there is a cure to something that has a genetic component. I would suspect that he either doesn't know enough about celiac to know the details of the disease, or he's boasting and overstating his product or method.

I'd love to hear more about this if you get more info. Eventually I'm sure there will be a cure for celiac, and who knows if it will be figured out by a big pharmaceutical company like Pfizer or by a guy in Australia.

Nancy

Last time someone in Australia said they had a cure for ulcers it turned out to be true!

and that was against all medical knowledge.

aggieceliac Newbie
aggieceliac
Posted
Last time someone in Australia said they had a cure for ulcers it turned out to be true!

and that was against all medical knowledge.

When I went to my doctor last she mentioned something similar. She knows a doctor down there with a pill of some sorts. A long name and I can't remember the abbreviation for it though. She mentioned it's something that most doctor's don't really "believe". He had done something else in the medical field before that no one believed and ended up winning an award or something like that. So who knows. Maybe this is why I've always wanted to visit Australia.

mamaw Community Regular
mamaw
Posted

I wonder if the doctor is DR.Williams???? Please keep us posted, I'm a believer in alternative meds.........You non-believers can call me crazy!!!!!!!1

mamaw

amber-rose Contributor
amber-rose
Posted

Wow! Thats so awesome!! I hope that it truly works! But it WOULD take awhile for it to come to America because the FDA (or something like that) would have to test it and approve it. But that is so exciting!

KaitiUSA Enthusiast
KaitiUSA
Posted

There is no cure at this point and I don't think there is a "cure". I know they were testing some sort of pill so you will be able to ingest gluten but thats not a cure because you will have to take pills like every day of your life. I would rather stay gluten free and have them on hand in case of accidental glutenings.

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gfp Enthusiast
gfp
Posted
There is no cure at this point and I don't think there is a "cure". I know they were testing some sort of pill so you will be able to ingest gluten but thats not a cure because you will have to take pills like every day of your life. I would rather stay gluten free and have them on hand in case of accidental glutenings.

That is exactly what most MD's and especially GI's said about taking cyclohexane (a very cheap antibiotic) against being on rantitidine (the wonder drug) for life. Indeed they continued to say that for 5 years after the discovery and tests and had the antibiotics not already been FDA approved the US still wouldn't have a cure for ulcers.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

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