Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Cure?

KayJay

Recommended Posts

KayJay Enthusiast
KayJay
Posted

To make a long story short my dh was taking to friends that know someone in Australia with Celiac. They said she went to a doctor and he is all knowing of Celiac and has a cure or something like that. She went thorough the treatment or took a pill (they don't know) but for the last 9 months she eats gluten and feels great.

So is there a cure? The lady who is cured is on vacation for 2 more weeks and then they are going to give me her contact information.

Anyone know about this Dr. in Australia or this cure? Sounds good to me :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

I would have a hard time believing that this is a cure. Cure to me would mean that the immune reaction would cease to happen, and there would be no risk of any intestinal damage. That would be a very difficult thing to verify. Because you can have celiac, with intestinal damage and positive biopsy and not have any symptoms whatsoever.

The only thing I would believe at this point in history would be that maybe someone will come up with something that might help or prevent symptoms, but not a cure. If this man was saying that he had found something that would help supress symptoms of being glutened, I would be open to that.

I'm very open to alternative things, but I'm also not willing to think that there is a cure to something that has a genetic component. I would suspect that he either doesn't know enough about celiac to know the details of the disease, or he's boasting and overstating his product or method.

I'd love to hear more about this if you get more info. Eventually I'm sure there will be a cure for celiac, and who knows if it will be figured out by a big pharmaceutical company like Pfizer or by a guy in Australia.

Nancy

gfp Enthusiast
gfp
Posted
I would have a hard time believing that this is a cure. Cure to me would mean that the immune reaction would cease to happen, and there would be no risk of any intestinal damage. That would be a very difficult thing to verify. Because you can have celiac, with intestinal damage and positive biopsy and not have any symptoms whatsoever.

The only thing I would believe at this point in history would be that maybe someone will come up with something that might help or prevent symptoms, but not a cure. If this man was saying that he had found something that would help supress symptoms of being glutened, I would be open to that.

I'm very open to alternative things, but I'm also not willing to think that there is a cure to something that has a genetic component. I would suspect that he either doesn't know enough about celiac to know the details of the disease, or he's boasting and overstating his product or method.

I'd love to hear more about this if you get more info. Eventually I'm sure there will be a cure for celiac, and who knows if it will be figured out by a big pharmaceutical company like Pfizer or by a guy in Australia.

Nancy

Last time someone in Australia said they had a cure for ulcers it turned out to be true!

and that was against all medical knowledge.

aggieceliac Newbie
aggieceliac
Posted
Last time someone in Australia said they had a cure for ulcers it turned out to be true!

and that was against all medical knowledge.

When I went to my doctor last she mentioned something similar. She knows a doctor down there with a pill of some sorts. A long name and I can't remember the abbreviation for it though. She mentioned it's something that most doctor's don't really "believe". He had done something else in the medical field before that no one believed and ended up winning an award or something like that. So who knows. Maybe this is why I've always wanted to visit Australia.

mamaw Community Regular
mamaw
Posted

I wonder if the doctor is DR.Williams???? Please keep us posted, I'm a believer in alternative meds.........You non-believers can call me crazy!!!!!!!1

mamaw

amber-rose Contributor
amber-rose
Posted

Wow! Thats so awesome!! I hope that it truly works! But it WOULD take awhile for it to come to America because the FDA (or something like that) would have to test it and approve it. But that is so exciting!

KaitiUSA Enthusiast
KaitiUSA
Posted

There is no cure at this point and I don't think there is a "cure". I know they were testing some sort of pill so you will be able to ingest gluten but thats not a cure because you will have to take pills like every day of your life. I would rather stay gluten free and have them on hand in case of accidental glutenings.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
There is no cure at this point and I don't think there is a "cure". I know they were testing some sort of pill so you will be able to ingest gluten but thats not a cure because you will have to take pills like every day of your life. I would rather stay gluten free and have them on hand in case of accidental glutenings.

That is exactly what most MD's and especially GI's said about taking cyclohexane (a very cheap antibiotic) against being on rantitidine (the wonder drug) for life. Indeed they continued to say that for 5 years after the discovery and tests and had the antibiotics not already been FDA approved the US still wouldn't have a cure for ulcers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have...
    2. Scott Adams
      0

      Gluten-Free Foods in Mexico: A Study Raises Safety and Labeling Concerns

    3. Russ H
      - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease...
    4. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread.
    5. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores).
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,586
    • Most Online (within 30 mins)
      7,748
    canmich111
    Newest Member
    canmich111
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Russ H · Posted

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.