Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Bummed About My Ever-narrowing Diet.


frenchiemama

Recommended Posts

frenchiemama Collaborator

First I lost gluten, then dairy, and now I'm 99.9% sure that I have to give up soy as well. (Ok, no one is holding a gun to my head about the dairy and soy, but I sure don't like eczema).

I got glutened from an Amy's frozen meal, so I've crossed those products off my list (most of them seem to have soy, anyway).

I know that I can eat a wide variety of healthful veggies, fruits, grains, etc. But I just feel so limited now. There really isn't anything I can eat out anymore, and I have to make everything from scratch if I want to eat.

Just venting. Anyway, back to your regularly scheduled surfing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Carolyn,

I am also gluten, soy and dairy free. It is hard to begin with, but entirely doable. Mango04 has been free from all three for awhile, you could always pm her for ideas if need be. I have recipes for cashew cheese and also a butter recipe that primarily uses coconut oil, carrot juice and regular oil.

frenchiemama Collaborator

I would be interested in the "butter" recipe, because I haven't seen anything in the stores that is soy and dairy free. Thank you!

CarlaB Enthusiast

Carolyn, I pretty much use coconut oil to replace butter, but I bet the butter recipe is better.

I do make all my food from scratch. I have a well-seasoned gluten-free cast iron skillet that only needs rinsing no matter what I cook in it, so at least it's an easy clean up. To keep it simple, I pretty much sautee everything for my breakfast, lunch and snacks. For dinner I get more creative because I have a family to feed. There's not much that can't be cooked in a cast iron skillet!! It really takes me no longer now to fix, eat and clean up now than it did when I ate more convenience foods.

I mostly just get tired of eating at home all the time. :angry:

AndreaB Contributor

Recipe for butter from Ten Talents by Rosalie Hurd

Into the blender put:

1/2 cup water

1/2 cup carrot juice

OR 1 cup water & carotene

Add.

2 Tbs Powdered soy milk (I omit this)

1 tsp salt

1 Tbs. Coconut meal (Optional) (I don't use this either)

Blend well then add slowly while blending:

1/2 cup soy or safflower oil (I use grapeseed)

Last blend in just to thicken:

1/2 cup coconut oil + 1-2 Tbs liquid lecithin (I don't use, I increase the coconut oil)

frenchiemama Collaborator
I mostly just get tired of eating at home all the time. :angry:

I hear that.

Nancym Enthusiast

I make ghee from butter. I'm hoping I get all the casein proteins out. It really is delicious stuff!

Changing my diet was a bummer at first, but now I look at it as a fun challenge. I do enjoy cooking and I've expanded my repetoire into new cuisines, like Thai. I use interesting ingredients instead of milk, coconut milk.

My latest invention... sweet omelets. I've gone mad!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

I never used to like cooking, and it still feels like a chore at times, but I'm growing to like it.

CarlaB Enthusiast
I make ghee from butter. I'm hoping I get all the casein proteins out. It really is delicious stuff!

I use Ghee, that I buy. I don't use it that often. Since it's mechanically separated, I don't trust it entirely, but I've never had a problem with it. I generally save it for popcorn, which is just a once in a while treat.

I never used to like cooking, and it still feels like a chore at times, but I'm growing to like it.

I don't think I mind it as much either. I think before it was more of a time away from other things I felt like I should be doing. But since I've been ill and unable to balance everything, I'm realizing that feeding us in healthy ways is the important thing I should be doing. So, since it's not taking me away from other things, I realize it's not so bad after all.

burdee Enthusiast

Can I vent too? After receiving Enterolab gluten and dairy sensitivity test results 2 years ago, I tried soy substitutes for dairy. I believed I had bad reactions to soy. So I also eliminated soy, but never tested for soy until this year. I did the ELISA test (for allergies to 100 different foods) which showed definite IgG allergies to eggs and cane sugar. Gluten, dairy and soy didn't show up because I had abstained for over 2 years. However I really wanted a test result to verify my soy sensitivity. So I ate some soy and did the Enterolab egg, yeast and soy test. Those results verified that I do have soy IgA antibodies high enough to indicate an immunologic response, which means I need to abstain from soy. So I have FIVE food allergy/intolerance restrictions now (gluten, dairy, soy, egg and cane sugar).

I can't find ANY mayonnaise, margarine, cheese, or yogurt substitutes free of all those food categories. However I still have all the meats, poultry, fish, nuts, vegies, fruits, gluten free grains and oils (except soybean oil) I could want. I needed to change my perspective on shopping, cooking and eating, but I still have LOTS of different foods to eat.

BURDEE

AndreaB Contributor

More recipes.

Cashew Mayonnaise

1 1/4 c boiling water

3/4 c raw cashews

1 Tbsp honey

1 tsp salt

3 to 4 Tbsp Lemon Juice

WHIZ in blender until creamy-smooth all ingredients except lemon juice. Briefly whiz lemon juice in last NOTE: Adding boiling water cooks cashews somewhat, giving them more thickening properties, so fewer cashews can be used and the mayonnaise does not separate. Calories: 16 per Tbsp. YIELD: 2 cups mayonnaise.

Cashew Mayonnaise

1/2 c cashew nuts

1 3/4 c water

2 Tbsp cornstarch (or arrowroot)

2 tsp salt

1 Tbsp onion powder

2 Tbsp lemon juice

3 Tbsp honey

1 Tbsp orange juice conc.

1. Blend all ingredients together for about 2 minutes.

2. Place blended mix in a saucepan and bring to a boil, stirring constantly with a wire whip.

3. Remove from heat and cool before serving.

Hint: Pour boiling hot Mayonnaise into a hot, sterilized jar and screw on a sealing lid. Let is cool and check seal--a handy way to preserve for traveling. A little jam jar is just right!

Makes 2 cups. Calories per Tbsp/ 11

Almond Mayonnaise

2 c water

1/2 c blanched almonds*

3 1/2 Tbsp Instant Clear Jel

1/2 Tbsp fresh lemon juice

1/2 tsp onion powder

1/2 tsp salt

1/8 tsp garlic powder

Process water and almonds in a blender until very smooth. Strain and save liquid (use pulp in patties or waffles, etc.). Process liquid and remaining ingredients until thickened. Add dill or tumeric, to taste, if desired. Yields 2 cups or 32 servings

*boil raw almonds in water for 1 minute. Drain and cool, then pinch off skins.

burdee Enthusiast

Andrea:

THANK YOU! THANK YOU! THANK YOU, FOR THOSE 3 MAYONNAISE RECIPES. Have you ever used cashew or almond butter instead of whole nuts and water? I have a great local source of pure, freshly ground almond butter and love cashew butter. I'm anxious to try those recipes.

BURDEE

AndreaB Contributor

I've never used the butters for making mayonnaise. I just use the nuts. With almond butter the skin is left on.....don't want that for mayonnaise. The cashew butter might work.....I haven't tried it. I've been buying the canola oil mayonnaise lately since it lasts longer. If I know I'll need a lot I like to make it though.

I love cashews for making "cheese". They are such a versatile nut! I've been using almond milk (1/2 c nuts to 4 cups water) for when I make bread and use the leftover milk in mashed potatoes or something like that.

I'm a former vegan so I have lots of alternative recipes. Unfortunately, a lot of them have soy or wheat products in them but some can still be used or subbed with other things. :)

emcmaster Collaborator

You can still eat grains, potatoes and legumes. There are a LOT of possibilities for food out there - you'll even find many soup and stew recipes on normal recipe sites that don't need modifying.

There are many people on this board that have far worse restrictions. Get creative and do lots of recipe searches. Go to a farmer's market and buy lots of fresh fruits and vegetables and look up recipes to use them in.

And if you look at your situation in a different light, you'll see that by not being able to eat out, you'll save loads of money. You'll also probably eat more fruits and vegetables, which are essential to a healthy diet, but are actually consumed in a fraction of what they should be by the average adult.

I'd be happy to provide you with tried-and-true recipes, as I'm sure would Ursula and Jerseyangel, to name a few.

Good luck :)

marciab Enthusiast

I know how hard it is to give up your old foods, but this process is much easier if you start looking at what you can eat. :P I've discovered new foods that I love now. The bumble bar, Back to Nature rice thins, papaya, mangos, buckwheat, quinoa, spagetti squash, raw nuts, mung sprouts, dried figs and apricots, etc.

Hang in there... It does get easier. I don't even drool anymore when I get near my old foods :P

frenchiemama Collaborator
There are many people on this board that have far worse restrictions.

Yeah. But I still have a right to be annoyed at my own situation. If you want to put it like that, no one should ever feel down about their own situation because there is ALWAYS someone worse off.

skbird Contributor

I feel your pain, Carolyn. I have been changing jobs a lot lately and recently started drinking caffeinated coffee again which is exciting because #1 it's something normal people drink all the time and for a moment, I can be normal, too, and #2 it makes me not hungry which is convenient when every meal is a chore. A chore I often love (we have been on this chicken nugget kick lately!) but still find challenging when I'm running around with my new schedule.

Of course it's not healthy to skip meals by drinking coffee, but I'm feeling rebellous lately.

Hang in there. I think I'd pull out the rest of my hair if I had to cut dairy, too.

Steph - who can't have gluten, shellfish, citric acid/aspergillus mold, alcohol, corn, or nightshades (not that I'm bragging!)

PS I'd post the nugget recipe but it involves buttermilk, so not apropriate on this thread.

jnclelland Contributor
First I lost gluten, then dairy, and now I'm 99.9% sure that I have to give up soy as well. (Ok, no one is holding a gun to my head about the dairy and soy, but I sure don't like eczema).

I know that I can eat a wide variety of healthful veggies, fruits, grains, etc. But I just feel so limited now. There really isn't anything I can eat out anymore, and I have to make everything from scratch if I want to eat.

Just venting. Anyway, back to your regularly scheduled surfing.

No solutions here, just a heartfelt "Me too!" :) Dairy and soy both give me eczema, and sometimes it's awfully tempting to think, "So what if my fingers itch and crack for a few days?" I've been happily gluten and dairy-free for over a year now, but having to cut out soy recently has been HARD. No more soy lattes, no more Chinese food, and eating out is pretty much impossible. (Or at least, it always seems to give me a rash.) Not sure what I'm going to do when I'm on a business trip for 5 days in about a month; probably I'll just itch for a week! :(

Jeanne

Matilda Enthusiast

..

emcmaster Collaborator
Yeah. But I still have a right to be annoyed at my own situation. If you want to put it like that, no one should ever feel down about their own situation because there is ALWAYS someone worse off.

I guess that's just the way I look at it. Regardless of how restrictive my diet is, how time consuming preparing all my food is, and how I sometimes get sick even when it doesn't appear I've consumed anything I'm intolerant to - I'm not dying, I have all my limbs, I have great friends, a great job and a great family.

What I was trying to do was to get you to see the bright side of all this. Things could be far, far worse.

burdee Enthusiast

Each time I received test results for more intolerances (gluten from celiac disease) or allergies (milk, then eggs and cane sugar, and finally soy), I initially felt elated to FINALLY know what caused my ongoing painful symptoms. I immediately thought "I can do this. I can find substitutes for foods that bother me or just go without." Then a few days later after pouring over recipes, reading labels, visiting grocery and health food stores, it hit me, "THIS IS REALLY DIFFICULT." I'd celebrate with my own pity party for a few days and tell anyone who would listen (mainly my husband). LOL But my 'solutions' oriented side would soon reemerge from shock, sadness and self-pity as I discovered more and more great recipes, products and tasty foods. Maybe that's all part of the natural grieving process of giving up anything (shock/denial, anger, bargaining, depression and acceptance). I've watched myself go through all those stages during the past month when I learned through blood and stool tests that I have egg, cane sugar and soy allergies as well as gluten and dairy intolerance. Feeling 'bummed' is just as much part of the process as looking for substitute foods and feeling confident that we can handle new challenges.

BURDEE

frenchiemama Collaborator
I'm lucky that I seem to be ok with homemade goat milk yoghurt and keffir According to SCD theory goat milk has different casein proteins in it, then processing it as yoghurt or keffir for at least 24 hours changes them further. It doesn't work for everyone, but I'm convinced my yoghurt and keffir are good for me and add a lot to my diet.

The other thing is, some people are able to distinguish between the different components of soy - some may be ok with soy oil but not soy lecithins for example. When you've been off soy for awhile you may be able to experiment a little.

Hmmm, I find those two things very interesting. I would love to be able to eat goat cheese again!

frenchiemama Collaborator
Feeling 'bummed' is just as much part of the process as looking for substitute foods and feeling confident that we can handle new challenges.

I completely agree. It's not as though I'm wracked with despair over it, I'm just annoyed more than anything. It's just all part of the process. At least now I don't have that fear that I had when I learned I was a celiac. That was scary. This is just irritating. :rolleyes:

KrisT Explorer

I'm feeling very frustrated too, and I'm just beginning. I have been complaining about all the money I'm spending to stick to this diet, but someone on this post pointed out that we are saving money from eatting out... so true! What a good way to think of it! Although one thing I know I can eat out is fresh Mexican food and I do love that, so if I am truly not in the mood to cook I go and order a burrito bowl. : ) Mexican foods seem to be a really great source as long as you aren't alergic to the corn. As far as I know you can make most any dish without gluten, soy, or dairy, just by leaving out regular tortillas, sour cream, and cheese.

Hang in there!

  • 3 weeks later...
DawnS Rookie
I love cashews for making "cheese". They are such a versatile nut!

That sounds great! After reading here that you can do that, I did an internet search for a cashew cheese recipe. All contained yeast flakes of some sort...I'm sensitive to yeast too. :o Is your recipe different, or does anyone know of a substitute for the yeast?

Thanks

Dawn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      0

      Celiac support is hard to find

    2. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

    3. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    4. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

    5. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,943
    • Most Online (within 30 mins)
      7,748

    KELLYDAMON
    Newest Member
    KELLYDAMON
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
    • cristiana
      Forgot to add...  Quite a lot of 'tapas' are gluten free. Ones to look for:  Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish.  Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which you should be able to buy for supermarkets.  Until very recently we could not buy it here in the UK but we've managed to find a local source, and Lidl have started to sell it in tubs, too. Here's more info on it: Sobrasada is a soft, spreadable, cured pork sausage from Spain's Balearic Islands (like Mallorca), distinguished by its reddish color from paprika, sweet-spicy flavor, and pâté-like texture, perfect for spreading on toast, cooking into dishes like eggs or pasta, or drizzling with honey. Its unique texture comes from the island's humid climate preventing full drying, resulting in a semi-soft sausage that's gently aged, unlike drier mainland chorizo.
    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.