Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

I thought the brand was Ghee :lol: I just buy it in a glass jar at the Wild Oats. I am afraid to make my own since it's mechanically separated, I figure that the machines are more more accurate than I would be. I don't use it often, usually just for popcorn.

In the same way that Ghee doesn't have casein, I have read that coconut oil does not have the protein in coconut so it usually doesn't bother those allergic to coconut. I thought of you when I read that. Don't go on my word ... it was just something I read the other day ... but it might be worth researching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

:lol: Ghee!

Interesting about the coconut oils. I'm not allergic (that I know of), just intolerant. I know that there is coconut in most natural soaps and shampoos, and those don't cause me any obvious problems.

I am also soy intolerant, and soy oil bothers me, but a small amount of soy lecithin does not :blink:

CarlaB Enthusiast
CarlaB
Posted

The article may have said intolerant, I can't remember. I guess it's up to you if you'd want to risk discomfort to see if the oil bothers you or not. Some things are worth the risk ... others are not!

Rusla Enthusiast
Rusla
Posted
I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

ianm Apprentice
ianm
Posted

New Castle Brown Ale, Guiness Stout and Two Hearted Ale. New Grist is good but it is not the same. I miss all of the other gluten foods like a big giant hole in the head.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sorry if this has already been suggested, but there are some unbelievable good recipes in Annalise Roberts' GLuten-Free Baking Classics. There is somethign she calls Submarine Sandwich Bread which tastes to ME like the artisanal bakery breads, and the sandwich bread leaves Kinnikinnick's in the dust! The Sub bread is made in a French bread pan (with little holes like a pizza pan), and the crust is crispy and the bread is chewy and it kept for over a week in my fridge (wrappeed tightly in plastic wrap and then foil) and it reheated beautifully in the toaster oven....the sandwich bread is good enough for a PBJ sandwich.

Her cakes and cookies are amazing, too--I thought the chocolate chip cookies tasted almost exactly like Tollhouse cookies, and the coconut cake was better than any gluten cake I'd ever made before, scratch or mix! (And I love to bake!)

The nicest part is, the good taste totally satisfies the cravings--but the fact that they don't contain gluten means that these recipes don't bring back the cravings after you've eaten the bread (or cakes or cookies), so you don't get trapped in that wanting more andmore andmore cycle.

  • 2 weeks later...
CMarente Newbie
CMarente
Posted

Dear All,

On the pizza genre, if you live in Colorado, Beau Jo's pizza now has a gluten free menu, and their gluten-free prairie pies (pizzas) have a crust that tastes just like Pizza Hut's!

On another note, a lot of the recipes I've seen suggest using Xantham gum to keep gluten free flours together and also to keep them from getting crumbly. It suggests putting the Xantham gum in before butter. Hope this helps someone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

Does anyone have the Smart Squeeze Ingredients?

Adelle Enthusiast
Adelle
Posted

OREOS!!! I miss oreos like crazy!!! I'm still looking for a decent replacement. Going crazy for it. Oreo's were my favorite junk food!! Didn't get them very often, but I miss them terribly!!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh, this is so easy......

The thing I miss the most is my chinese food feasts..... Nothing beat a night of ordering chinese food from our favourite Szchewan restaurant. Szchewan beef, Szchewan shrimp with peanuts, curry vegetables, beef fried rice smothered in soy sauce, spring rolls, sweet and sour chicken balls.......

Wow! If I could only have that one more time....... :(

Karen

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Same thing, always. Krispy Kreme doughnuts. When the "Hot Doughnuts" light is on, and you can get them boxed right off the conveyor belt. If I bought them now, I would probably eat the WHOLE dozen while they were hot. Mmmmmm........

I also miss Black & Tan beer. When we would go to Maryland, we'd have steamed crabs, spend the entire DAY cracking those babies, drinking Black & Tan beer.

I also miss the marshmallow doughnuts from the little corner German bakery there. They're not glazed, like some doughnuts are. They're just . . . great. The marshmallow filling is home-made. And Smircase (sp?) cake from there . . .

And King Fish fried white fish sandwiches . . . I ate a TON of them when I was pregnant with Ashley!

Guest ~jules~
Guest ~jules~
Posted

Okay, Okay I'm getting hungry. We ate out tonight at one of "their places" their meaning the rest of my family, and I was just watching my husband eat this big sloppy taco salad with nacho cheese, Ugh some days are just harder than others. Oh and has anyone had the bread dream? You know your sitting at the table in a restaraunt eating the bread out of the basket, then you realize its bread and panick?

What happened to the normal nightmares I used to have like falling, or running? LOL....Oh well :D

Nooner Newbie
Nooner
Posted

Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

shai76 Explorer
shai76
Posted

I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

Weird, the same thing happened to me last night! I startled myself awake thinking I had just eaten a bowl of Campbells Chicken Noodle Soup. The only expalnation I have is that my wife has the flu, so I was just being a good husband in my sleep?

taz sharratt Enthusiast
taz sharratt
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

i miss pasta a lot.

valerieann Newbie
valerieann
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

Pikelets, real sandwiches, ice-cream, cream buns, doughnuts, hot cross buns, fried runny eggs, sausages, POTATOES, milky drinks, fast food, cappochinos, chocolate, and so on and so on.

prinsessa Contributor
prinsessa
Posted
I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

I think my MIL makes cream of mushroom soup without using cream. I asked her how she makes it (because it is really good) and she said she just blends the mushrooms in the blender after cooking them. I thought for sure she used cream. I will try to get the recipe from her. She is one of those people that doesn't use recipes though, so I'm not sure if she knows exact ingredients.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    3. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    5. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748
    Lorna Wynter
    Newest Member
    Lorna Wynter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.