Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

May Contain Traces Of Sickness


ErraticBinxie

Recommended Posts

ErraticBinxie Explorer

I work at a seafood restuarant as a waitress and I often have people come in that have celiac disease and ask me what they can eat. I pretty much know all of the ingredients in salad dressings, sauces etc.

A few weeks ago, I told this mom (who's very young child has celiac disease) that the only dressings we have that are gluten-free are thousand island, italian, etc. She argues with me telling me that our ranch dressing is gluten-free. I was angry that she would fight with me. I told her that we use Hidden Valley that contains Modified food starch. She insisted it was made from corn and so I brought it to her anyways.

Later that night after I had clocked out, I decided to trust her and reunite with the best salad dressing of all time. I regretted it later.

I called the company to find out if Hidden Valley ranch is gluten-free. They said it is but it is produced in the same facility as things that do contain gluten so it may contain traces of gluten. That is enough to drive me away. I don't see a point in ever risking it when things "may contain traces."

But it made me wonder about this mom. Is she being responsible in the food that she is feeding her very small son? He can't advocate for himself and if she doesn't watch what he eats closely then who will?

I want to know what you all think. Do you risk it when it "may contain traces of" or "is produced in the same facility as"?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~

Nope if its made on the same equipment thats making gluteny things I don't eat it....I don't see the difference, if 1 little molecule of gluten is the same as 10,000, then what is the difference if its made on the same equipment?

hez Enthusiast

For me this is not a easy black and white issue. It really depends on the food and the company that produced it. I am sure for some this is a no brainer but for me it just depends.

For example, my nut thins have a legal statement about being produced in the same facility. However, other people have posted that they contacted the company and that the lines are sepearate. I have never had a problem with them. Others have. Each of us has to decide these things for themselves. And in the case of children it is up to the parent to make that judgement call. For this parent a shared facility was not an issue. For other parents it is an issue.

Hez

Corkdarrr Enthusiast

I agree with Hez. I think it is company specific and it can even be specific to that particular production of the product. I've eaten things that clearly are labelled they are produced in facilities containing gluten and been fine. And I've had things with the same warning and I've gotten ill.

It probably depends on how thoroughly they clean the line before and after running production.

As for the whole parental thing, I suppose that's the parent's decision to make until the child is old enough to know what's going on. I hope she's not messin' her kid up...

Although I do find it hard to believe that someone eating out at a restaurant would actually question a server so knowledgable about gluten and celiacs...I think most of us are just impressed if our plate doesn't come out with the standard issue roll on it!

-Courtney

ravenwoodglass Mentor
I don't see a point in ever risking it when things "may contain traces."

But it made me wonder about this mom. Is she being responsible in the food that she is feeding her very small son? He can't advocate for himself and if she doesn't watch what he eats closely then who will?

I want to know what you all think. Do you risk it when it "may contain traces of" or "is produced in the same facility as"?

No she is not being responsible. Although I would prefer to think that she is just uneducated. Did you tell her that you are also celiac and know this isn't safe? As far as ignoring a CYA statement, every so often I will risk it and usually regret it.

2Boys4Me Enthusiast

My younger son is the only one in our family with celiac and he has no outward symptoms. That is, he never spends all day in the bathroom or has stomachaches. I will buy products for him that have no gluten-containing ingredients (items from Kraft, ConAgra, Hershey, etc.) including products that say "made in the same facility as wheat products." I will NOT buy anything that says "may contain traces of wheat." To me "may contain" is a red flag but the "produced in" is a CYA. I am sure they are very careful cleaning lines if they don't have dedicated lines, and I think some companies toss the first few items off the line just in case.

By the way I thought that since the U.S.'s new labelling law all modified food starch had to be corn unless otherwise specified.

psawyer Proficient

I agree with Linda. There is only so far you can go unless you are prepared to live inside a bubble.

The woman was eating in a restaurant. Surely the CC risk in doing that is at least as great as it is in a prepared food manufactured on clean lines from ingredients which do not contain gluten. She apparently knew that the modified food starch in the product in question was corn (as it almost always is). I don't find any fault at all in her actions.

If cross-contamination in a food prepared in a shared facility worries you, you should not even think about eating in a restaurant!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

To me there is a difference in the following statements:

Prepared on shared lines: NOT okay

May contain traces: NOT okay

In the same facility: Maybe, I'll try it if its a trusted company.

If it was my kind though, and not me, I'd probably be much mroe protective than I am of myself. That's just speculative, since I don't have any yet. :)

Elonwy

Saz Explorer

As I'm not super sensitive I don't worry if it says it has been prepared on the same line. I have on occasion put things back that say May contain traces of wheat but again not an enormous issue for me.

sillyyak Enthusiast

I do NOT risk it when it says "may contain traces of....." Only because I know what would happen if the traces would get into my system.. For me, it is not worth it.

Matilda Enthusiast

..

Lillyth Explorer
I work at a seafood restuarant as a waitress and I often have people come in that have celiac disease and ask me what they can eat. I pretty much know all of the ingredients in salad dressings, sauces etc.

A few weeks ago, I told this mom (who's very young child has celiac disease) that the only dressings we have that are gluten-free are thousand island, italian, etc. She argues with me telling me that our ranch dressing is gluten-free. I was angry that she would fight with me. I told her that we use Hidden Valley that contains Modified food starch. She insisted it was made from corn and so I brought it to her anyways.

Later that night after I had clocked out, I decided to trust her and reunite with the best salad dressing of all time. I regretted it later.

I called the company to find out if Hidden Valley ranch is gluten-free. They said it is but it is produced in the same facility as things that do contain gluten so it may contain traces of gluten. That is enough to drive me away. I don't see a point in ever risking it when things "may contain traces."

But it made me wonder about this mom. Is she being responsible in the food that she is feeding her very small son? He can't advocate for himself and if she doesn't watch what he eats closely then who will?

I want to know what you all think. Do you risk it when it "may contain traces of" or "is produced in the same facility as"?

My two cents: No, the mother was NOT being responsible.

I have been in a facility, personally, that says they use dedicated equipment for wheat & corn. All the equipment is wood, which, as we know, retains gluten. When I was witnessing the milling process, wheat flour was EVERYWHERE!!!!! The mills were one foot apart. I had a hard time even being in the room. They actually advised me to keep a wet papertowel over my face to keep the wheat flour out of my mucous membranes (which I appreciated).

It made me thing though, that the wood equipment, which was one foot away from the mill, MUST be getting wheat flour on it - I was in the back of the room, and had problems.

That being said, I know of at least one facility that uses only stainless steel for all production. It IS a shared facility, but they DO clean everything in between processing, and NEVER process more than one product at a time.

So - in short, some facilities may be safe, while others are not.

I think it is either trial & error, or "russian roulette" every so often.

I don't have a hard & fast rule, sometimes I go one way, sometimes the other.

But I DO keep note of which mfrs are on my "safe" list, and which are on my "no-way-in-hell-not-ever-not-even-if-i-were-starving" list... :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.