Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celebration!


schuyler

Recommended Posts

schuyler Apprentice

The boys had a drs appt today, and we got good news.

Sean (2 years old) had gained 3 lbs, and now weighs 22 lbs and is 33 inches tall :D !!!! He now outweighs Matthew (who is 3). Matty still weigh's 19.5 lbs, but he has grown 1/5 of an inch. The doc said that's good news because it means he's getting more nutrients.

Nicolas hasn't grown or gained any weight, but he's much happier most of the time. He even made his first friend at school. I'm so proud of him (and the other boys).

The doctor was so impressed with their postitve results that he is going to write a letter to the judge stating that their father is endangering their well being by feeding the gluten during his visitations (although their dad hasn't been taking them for visitations lately because he says he's too busy to see them).

We go to court next week, so hopefully everything will go well.

Even more great news is that the boy's mom will be coming home from Iraq on October 7, which is 1 month sooner than expected. :D:D

We are celebrating everything by having gluten-free/df cake tonight for dessert! :P:P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

Congratulations!! What wonderful wonderful news!!!!!!

Ursa Major Collaborator

Wow, what great news! That certainly is reason for celebration.

Luvs to Scrap Apprentice

What wonderful news! I am so glad the boys are responding to the diet and that their mom is coming home next month. Keep up the great work! :D Kendra

Becky6 Enthusiast

That is great!!!

  • 2 weeks later...
schuyler Apprentice

Court went great!

My parents were given custody (which is what we wanted, since I'm really busy). Since I still live at home, I see them all the time and the boys don't know that anything is different.

Their dad was ordered to fully reimburse me for all of the kids expenses, so I should get the $ soon.

The best part is that his visitations were reduced to supervised vitits one day a week for 3 hours. The 4 year old is so happy that he doesn't have to see his dad all the time. I wonder why ;)

The boys have not gained any weight recently, but some of their other symptoms have disappeared. No more bed wetting and night terrors!

My mom may be popping on here at times to ask questions. She's familliar with celiac, but she's having a hard time finding kid friendly gluten-free recipes.

On a sad note, the boys mom was injured in Iraq and has been sent to a hospital in Germany (I believe). She's unstable right now, so they will be keeping her there for at least a few weeks, after that she'll go to a hospital in the US until she's completely better. If all goes well, hopefully she'll be home in a few months.

Guest nini

sorry to hear about their mom, I hope she's ok soon and get's to come home soon.

good news about court...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Danielle,

That's great news about the boys growth, your parents getting custody, reduced visits from their father.

I'm sorry about their mother getting hurt. Please keep us posted, I'm sure she'll be glad to be back stateside in a couple weeks/months.

jerseyangel Proficient

Danielle,

Thamks for the update! I'm so happy that the boys will remain with you and your parents :)

Sorry about their mom--she's your cousin, right? Hope her injuries aren't very serious, and that she'll be able to come home. Keep us posted!

schuyler Apprentice

Their mom (my cousin) is doing well. Her injuries are not nearly as severe as the doctors first thought (she just has a punctured lung, broken leg bones, and minor internal bleeding which stopped right away). They are weaning her off of the vent, and she is awake and responsive. Her parents are with her now, and they said it does not appear like she has any brain damage. They are hoping to move her stateside sometime next week :D .

Sean (2 years old) has had a HUGE breakthough recently. He started talking! Prior to going gluten-free, he had not spoken or attempted to speak at all (he just grunted or used simple signs before). Well, last week he walked into my room, pointed the light, said "light" and then smiled and ran away. He now points out every light he sees :D . He has also started to babble and yesterday he said "Hi Dani" as clear as day when I picked him up from pre-school. I am so proud of him! B)

Ursa Major Collaborator

That's excellent news about the boy's mother. I am so glad she is going to be alright. And you must be thrilled with the little guy starting to talk, that's great progress!

lonewolf Collaborator

It's great that the boys are doing well. I will say a little prayer for your cousin, that she can come home to them soon.

You are an amazing young woman to take care of these kids, even with your parents' help, and to be so attentive to their needs. You deserve a medal!

jerseyangel Proficient

Thanks for letting us know about the boys' mom! Hope she continues to improve :)

Great news about Sean :D Pretty soon, he'll be talking up a storm!

AndreaB Contributor

Great news Danielle, on all counts!

TCA Contributor

I'm praising God right now for ALL the good news. Please keep us posted. Is there anything we can do to help? The burden is heavy for all of you right now!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,080
    • Most Online (within 30 mins)
      7,748

    SheenaG1
    Newest Member
    SheenaG1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.