Saying Hi As A New Member.

[mari-lyn]

...or did it come from my computer. Anyone else have this happen?

How inappropriate, especially on a weight management message board.

Hi, I am new to this board but not to the celiac site. Until this week I visited because of my profession as a dietitian at a Critical Access Hospital (we have 25 beds in a rural area) and my interest because of family members. However, yesterday I had blood taken for a screening - suspicious skin rash.

There is a strong family history with my mother's twin sister dx. 50 years ago at Mayo. Mom probably had it but was asymptomatic (she died at 58), her sister died at 80 of pnemonia, not celiac disease related (as far as we know). Have a niece, probably 2, with celiac disease. Good chance that my oldest sister had it, but she died at 42 - she was always very thin and a very picky eater - I think it made her feel bad (only a theory). Probably because of my family and also because of a couple people at church I started a support group for people with celiac disease and we keep growing. Having a doctor in this town of 5,000 with celiac disease helps awareness. People are just more aware - however, we never will get over the issue of asymptomatic celiacs...everyone expects the GI stuff.

Having 30 pounds to lose myself I thought this might be a good place to check in. I completed the coursework and exam for a Certificate in Adult Weight Management. Have lots of resources available. We are getting a recipe section together. Online support can be very helpful. Could we start our own daily cheering section?

Marilyn

[Nantzie]

Cheesecake??? Nope. Actually I've never seen a popup on here. But we've got a pop-up blocker that might have gotten it.

There is a bakery in Philadelphia that will ship gluten-free cheesecake though... Mr. Ritts. www.mrritts.com

There's actually not much that doesn't either have a good substitute on the market, or a good recipe to be had.

Welcome to the board.

Nancy

[mari-lyn]

  Nantzie said:

Cheesecake??? Nope. Actually I've never seen a popup on here. But we've got a pop-up blocker that might have gotten it.

There is a bakery in Philadelphia that will ship gluten-free cheesecake though... Mr. Ritts. www.mrritts.com

There's actually not much that doesn't either have a good substitute on the market, or a good recipe to be had.

Welcome to the board.

Nancy

Thanks, even though there are lots of people out there, sometimes you feel pretty lonely.

Marilyn

[Nantzie]

Tell me about it... When I first found this board I felt like I'd come across the rest of the landing party from my home planet...

From the weight management perspective, I was moderately overweight when I was diagnosed. I've lost 25-30 pounds since January with no effort on my part. I was eating whatever sounded good that was gluten-free. Lots of healthier food than I was eating before because I couldn't go through drive-throughs anymore, but also a LOT of Cool Ranch Doritos, Easy Cheese and candy. So it wasn't like I was trying to diet or anything. It just happened that way.

I had a lot of odd weight issues along the way. Losing 25 pounds out of nowhere when I wasn't paying attention to it. Also gaining 25 pounds in less than a month at one point. I also had a time where I was walking 5-6 miles 3-4 times a week and not losing weight or inches. I tried a few weeks of a 1200 calorie diet just to see if I could jump-start something and it didn't do a thing. Did a metabolism test thing at a PT clinic at that point where you blow into a device (can't remember what it was called). My resting metabolic rate was 1150 calories a day. I scrapped the 1200 calorie diet because I don't think it's healthy to do that for very long. I figured that I was just weird. I decided not to worry so much about my weight and just keep walking. I had the endorphin thing going and was really enjoying it. I figured I was at some type of plateau and weight loss or inch loss would kick in eventually if I kept it up.

Not long after that I got pregnant with my son. It was only a couple months into the pregnancy that I got to the point where I couldn't even walk half a mile because it hurt so bad. I figured it was just being pregnant and having a toddler at the same time. I remember going to the mall to try and find some shorts for my husband and I couldn't even walk past the halfway point in the relatively short mall. My mobility issues got progressively worse over the next year or so until I was using the cart in the grocery store as a walker. I was sure at that point I'd end up in a wheelchair within five years, tops. I came really close to asking my doctor for a disabled placard for my car because just getting from the parking lot into the store practically had me in tears. It was about a year later that I found out about celiac.

Now, since January, I've gone from not even being able to bend over to pick up a cotton ball to moving furniture around and carrying heavy boxes up into the attic. I play in the back yard with my active kids and have no mobility issues whatsoever. (I'm very, VERY lucky. )

Gluten is a scary thing.

I've always thought, ever since I realized I was "weird" with that type of thing, that maybe someday we'll be able to do a DNA test to tell us what nutrition is best for our individual bodies.

So your local group is collecting recipes. Anything that's eluding you? I've run into a roadblock with cheese crackers such as goldfish or cheese-its. (I've got preschoolers. Cheese crackers are a food group at this age...) I've realized that there's not much that can't be done gluten-free.

Nancy

[mari-lyn]

  Nantzie said:

Tell me about it... When I first found this board I felt like I'd come across the rest of the landing party from my home planet...

From the weight management perspective, I was moderately overweight when I was diagnosed. I've lost 25-30 pounds since January with no effort on my part. I was eating whatever sounded good that was gluten-free. Lots of healthier food than I was eating before because I couldn't go through drive-throughs anymore, but also a LOT of Cool Ranch Doritos, Easy Cheese and candy. So it wasn't like I was trying to diet or anything. It just happened that way.

I had a lot of odd weight issues along the way. Losing 25 pounds out of nowhere when I wasn't paying attention to it. Also gaining 25 pounds in less than a month at one point. I also had a time where I was walking 5-6 miles 3-4 times a week and not losing weight or inches. I tried a few weeks of a 1200 calorie diet just to see if I could jump-start something and it didn't do a thing. Did a metabolism test thing at a PT clinic at that point where you blow into a device (can't remember what it was called). My resting metabolic rate was 1150 calories a day. I scrapped the 1200 calorie diet because I don't think it's healthy to do that for very long. I figured that I was just weird. I decided not to worry so much about my weight and just keep walking. I had the endorphin thing going and was really enjoying it. I figured I was at some type of plateau and weight loss or inch loss would kick in eventually if I kept it up.

Not long after that I got pregnant with my son. It was only a couple months into the pregnancy that I got to the point where I couldn't even walk half a mile because it hurt so bad. I figured it was just being pregnant and having a toddler at the same time. I remember going to the mall to try and find some shorts for my husband and I couldn't even walk past the halfway point in the relatively short mall. My mobility issues got progressively worse over the next year or so until I was using the cart in the grocery store as a walker. I was sure at that point I'd end up in a wheelchair within five years, tops. I came really close to asking my doctor for a disabled placard for my car because just getting from the parking lot into the store practically had me in tears. It was about a year later that I found out about celiac.

Now, since January, I've gone from not even being able to bend over to pick up a cotton ball to moving furniture around and carrying heavy boxes up into the attic. I play in the back yard with my active kids and have no mobility issues whatsoever. (I'm very, VERY lucky. )

Gluten is a scary thing.

I've always thought, ever since I realized I was "weird" with that type of thing, that maybe someday we'll be able to do a DNA test to tell us what nutrition is best for our individual bodies.

So your local group is collecting recipes. Anything that's eluding you? I've run into a roadblock with cheese crackers such as goldfish or cheese-its. (I've got preschoolers. Cheese crackers are a food group at this age...) I've realized that there's not much that can't be done gluten-free.

Nancy

Will search recipes but my weight mgt group came up with a "goldfish cracker" using just processed chesse. Put them on an oiled sheet and they puff and crisp. I made some of the pieces to look like animals...teddy bears mostly. This was to have the protein without the carbs...works for me.

[Nantzie]

You know, I've made parmesan crisps like that. Never thought to use processed cheese for the same effect.

Are we talking Velveeta or Kraft-American-type individually wrapped cheese slices?

Nancy

[CarlaB]

  mari-lyn said:

...or did it come from my computer. Anyone else have this happen?

How inappropriate, especially on a weight management message board.

I've never had any pop-ups, just the ads on the right side of the page.

The cheesecake actually would not have been inappropriate unless it had gluten. Many of us here need to gain weight!

[mari-lyn]

  Nantzie said:

You know, I've made parmesan crisps like that. Never thought to use processed cheese for the same effect.

Are we talking Velveeta or Kraft-American-type individually wrapped cheese slices?

Nancy

Kraft - American. I haven't looked to see what is in them yet. We stake a few and then either cut or tear. You can sprinkle them with garlic or onion powder.