Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amino Acid Testing-vitamin Deficiencies-celiac


Isabella

Recommended Posts

Isabella Rookie

Oh, THIS was a good day with the medical field...( sorry had to vent a little) ,

In testing for celiac, I also asked to be tested for amino acids and vitamins.

Well, as I thought I was deficient in magnesium, vitamin D, and B12 ( by European standards). With that I was deficient in the amino acids , phosphoserine and threonine.

After visiting the gastroenterologist last week, he states " you're FINE!" yOU DO NOT HAVE CELIAC, THE TESTS WERE NORMAL. ( I remark that I had started back on gluten and I am having once again great pain inmy abdominal area.) Oh, NO... you are constipated. ( How can I be constipated if all that comes out is bright yellow liquid?) You need to take tablespoons of wheat bran each day"( I look at him in amazement, and say, I am ALREADY feeling quite sick with just a little gluten!??) No, no, take the wheat bran ...we won't even go into what happened to me the following week- I did nOT take the bran, only added some wheat to my diet , and HORROR!

I demanded tests...when they saw the results, here's the advise given:

My internist told me that "I had more time than he, and that I should look into it; AND by the way, I honestly do not know about amino acids and I know of no doctors who do"...on to the neurologist...

...her nurse told me that the doctor believes that whenever you test as many things as those, you are bound to have a few highs and lows and it's nothing. These two low acid values have NOTHING to do with my immense collection of neurological symptoms ( have they read any medical books on these two acids?)....to the rheumatologist,

"oh, you look GREAT! Just the D is a little low 25 ( 32+ is normal) ...nothing to worry about.

And the magnesium, you may want to take SOME."..

SOME?

I REALLY need to find out how to get in touch with a doctor very well versed in enzymes and amino acids!

has anyone else here has amino acid problems? How did you figure out the underlying cause and how much to take? Thanks again,

Isabella


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mellie Newbie

I have NOOOOOO idea of course....but just wanted to chime in and say it definately sounds like it's time to make a switch of Drs. I've learned in dealing with our infertility even that you so often have to be your own advocate. And I refuse...REFUSE to go to a Dr. that treats me like that and would even think to say things like 'you have more time YOU research it'!!!! I'm just amazed at how rude and insensitive people can be!!!! Hoping you find the right Dr. soon!!!!!! :(

Lymetoo Contributor

I see a dr in Missouri who does testing for both.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.