Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Been A While...

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Be careful what you ask for or someone will bean you with a gluten-free bagel...

Oh heck, I'm gonna bean you with a gluten-free bagel just for reminding me about chinese food when I'm stuck at work and getting hungry. :angry:

LKelly8 Rookie
LKelly8
Posted

Welcome back Jerry :wub: !! The prodigal son returns! Where's a gluten-free fatted calf when you need one?

And I shall bean you with Midel gluten-free faux oreos!

:D (the kind that won't make you sick)

CarlaB Enthusiast
CarlaB
Posted

Jerry, Jerry, Jerry, dietary response IS clinical proof!!!! What are you waiting for? Till you're really sick and can't even work because of it??? That's about where I'm at! You need to get out of your denial and get off the gluten!!!

There's your scolding you came here for!!!! :D

Canadian Karen Community Regular
Canadian Karen
Posted

Well, if you were gonna cheat, at least you made it worth your while by cheating with Chinese food. My ultimate dream meal that I miss ABSOLUTELY THE MOST is my major Chinese Food Szchewan feasts I used to have...... Mmmmmmmm.......... In fact, I am quite jealous!!!!!!!!!!!!!

Glad you learned your lesson though.......

Karen

IrishKelly Contributor
IrishKelly
Posted
Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

I get the same way if i'm glutened, i feel cold achy flu like symptoms, heartburn, burpy, nauseous, etc... and guess what, my dr. said he know that i'm gluten intolerable just from the obvious reaction, so you don't actually need a positive test to tell you that! Oh, bye the way, i'm sooooooooo jealous that you ate chinese...but not enough to do it myself :P

Ursa Major Collaborator
Ursa Major
Posted

Well, Jerry, you really have your diagnosis already. Food that contains gluten makes you sick. Period. It's perfectly obvious. How much proof do you need?

So, quit being dumb, and go gluten-free for heaven's sake! :rolleyes:

Seriously, we don't want you to get really sick with cancer, or adrenal fatigue (which is where Carla and I are at) or a host of other potentially serious problems.

So, take your head out of the sand, face the facts, and get well. You are worth it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

...

Mellie Newbie
Mellie
Posted

oh my goodness...you guys are making me so hungry!!! :(

the chinese stuff- I haven't had that in forever anyway cause as I tell my husband...I like it okay but it doesn't like me....so that's something I've avoided anyway and won't miss. But twinkies and bread.....!!!! :(

It's so hard....I'm new here btw- hi! :) I'm not diagnosed yet but my mom has all kinds of stuff (they think it's crohn's disease too and she has gallbladder disease...or did when she had a gallbladder- not that you're ever the same anyway) and I'm trying to go gluten-free to see if that's what's wrong with me per the recomendation of my Dcotors and I've been experiencing all kinds of stuff like the fatigue (they also think I have adrenal fatigue!) and depression and all (oh yeah I have sleep apnea too but not sure if that's connected or not?)....so I keep trying to tell myself gluten might be very BAD for me.

I see where you're coming from though cause this is really hard to wrap one's head around. I mean I used to be able to eat whatever....but as time goes on it gets worse and worse. And then I keep thinking...it's not like a traditional diet (that doesn't work anyway cause it's just that- a diet - and not a life change like it should be) where a little every once in awhile is okay....it isn't. :( That's the thing that's hardest for me at this point.

Good luck to you!! :)

JerryK Community Regular
JerryK
Posted
  • Author

Thanks for your responses everyone. I never did go to get tested after our Alaska cruise, life just sort of gets in the way of stuff, if you know what I mean.

It's sort of like---you know--going to the dentist. Lots of people don't even think much about their teeth, until they look in the mirror and see a big hole.

It's not like the symptoms bother me constantly. I can eat a slice of bread with little reaction. However if I eat two or three, I'd likely pay the price. It is the ratio of gluten to other foods that seems to make the most difference. If I eat a big dinner and eat a slice of bread..no problem...or not much anyway. But when I chow down for multiple days with reckless abandon, I pay the price...THEN I start thinking about it again.

jerry

happygirl Collaborator
happygirl
Posted

tsk tsk tsk :P

just because you aren't having an overt reaction doesn't mean that you aren't setting off an autoimmune response, with gluten attacking your intestines....

jerseyangel Proficient
jerseyangel
Posted

Jerry, Welcome back!

Laura is right, though. If you do have it, you are damaging your intestine every time you "get away with" something containing gluten.

I'd hate to see you ending up with other food intolerances due to a leaky, damaged gut. It's not a lot of fun! :)

elye Community Regular
elye
Posted

Hey, Jerry!

Yet another reason to just get off gluten and to heck with the blood panel (or even the biopsy):

THERE CAN BE FALSE NEGATIVES. So, the tests can mean nothing. Getting sick from gluten means everything! ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.