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It's Been A While...

JerryK

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JerryK Community Regular
JerryK
Posted

Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

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Jestgar Rising Star
Jestgar
Posted
Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Be careful what you ask for or someone will bean you with a gluten-free bagel...

Oh heck, I'm gonna bean you with a gluten-free bagel just for reminding me about chinese food when I'm stuck at work and getting hungry. :angry:

LKelly8 Rookie
LKelly8
Posted

Welcome back Jerry :wub: !! The prodigal son returns! Where's a gluten-free fatted calf when you need one?

And I shall bean you with Midel gluten-free faux oreos!

:D (the kind that won't make you sick)

CarlaB Enthusiast
CarlaB
Posted

Jerry, Jerry, Jerry, dietary response IS clinical proof!!!! What are you waiting for? Till you're really sick and can't even work because of it??? That's about where I'm at! You need to get out of your denial and get off the gluten!!!

There's your scolding you came here for!!!! :D

Canadian Karen Community Regular
Canadian Karen
Posted

Well, if you were gonna cheat, at least you made it worth your while by cheating with Chinese food. My ultimate dream meal that I miss ABSOLUTELY THE MOST is my major Chinese Food Szchewan feasts I used to have...... Mmmmmmmm.......... In fact, I am quite jealous!!!!!!!!!!!!!

Glad you learned your lesson though.......

Karen

IrishKelly Contributor
IrishKelly
Posted
Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

I get the same way if i'm glutened, i feel cold achy flu like symptoms, heartburn, burpy, nauseous, etc... and guess what, my dr. said he know that i'm gluten intolerable just from the obvious reaction, so you don't actually need a positive test to tell you that! Oh, bye the way, i'm sooooooooo jealous that you ate chinese...but not enough to do it myself :P

Ursa Major Collaborator
Ursa Major
Posted

Well, Jerry, you really have your diagnosis already. Food that contains gluten makes you sick. Period. It's perfectly obvious. How much proof do you need?

So, quit being dumb, and go gluten-free for heaven's sake! :rolleyes:

Seriously, we don't want you to get really sick with cancer, or adrenal fatigue (which is where Carla and I are at) or a host of other potentially serious problems.

So, take your head out of the sand, face the facts, and get well. You are worth it!

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Matilda Enthusiast
Matilda
Posted

...

Mellie Newbie
Mellie
Posted

oh my goodness...you guys are making me so hungry!!! :(

the chinese stuff- I haven't had that in forever anyway cause as I tell my husband...I like it okay but it doesn't like me....so that's something I've avoided anyway and won't miss. But twinkies and bread.....!!!! :(

It's so hard....I'm new here btw- hi! :) I'm not diagnosed yet but my mom has all kinds of stuff (they think it's crohn's disease too and she has gallbladder disease...or did when she had a gallbladder- not that you're ever the same anyway) and I'm trying to go gluten-free to see if that's what's wrong with me per the recomendation of my Dcotors and I've been experiencing all kinds of stuff like the fatigue (they also think I have adrenal fatigue!) and depression and all (oh yeah I have sleep apnea too but not sure if that's connected or not?)....so I keep trying to tell myself gluten might be very BAD for me.

I see where you're coming from though cause this is really hard to wrap one's head around. I mean I used to be able to eat whatever....but as time goes on it gets worse and worse. And then I keep thinking...it's not like a traditional diet (that doesn't work anyway cause it's just that- a diet - and not a life change like it should be) where a little every once in awhile is okay....it isn't. :( That's the thing that's hardest for me at this point.

Good luck to you!! :)

JerryK Community Regular
JerryK
Posted
  • Author

Thanks for your responses everyone. I never did go to get tested after our Alaska cruise, life just sort of gets in the way of stuff, if you know what I mean.

It's sort of like---you know--going to the dentist. Lots of people don't even think much about their teeth, until they look in the mirror and see a big hole.

It's not like the symptoms bother me constantly. I can eat a slice of bread with little reaction. However if I eat two or three, I'd likely pay the price. It is the ratio of gluten to other foods that seems to make the most difference. If I eat a big dinner and eat a slice of bread..no problem...or not much anyway. But when I chow down for multiple days with reckless abandon, I pay the price...THEN I start thinking about it again.

jerry

happygirl Collaborator
happygirl
Posted

tsk tsk tsk :P

just because you aren't having an overt reaction doesn't mean that you aren't setting off an autoimmune response, with gluten attacking your intestines....

jerseyangel Proficient
jerseyangel
Posted

Jerry, Welcome back!

Laura is right, though. If you do have it, you are damaging your intestine every time you "get away with" something containing gluten.

I'd hate to see you ending up with other food intolerances due to a leaky, damaged gut. It's not a lot of fun! :)

elye Community Regular
elye
Posted

Hey, Jerry!

Yet another reason to just get off gluten and to heck with the blood panel (or even the biopsy):

THERE CAN BE FALSE NEGATIVES. So, the tests can mean nothing. Getting sick from gluten means everything! ;)

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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