Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Been A While...

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

Be careful what you ask for or someone will bean you with a gluten-free bagel...

Oh heck, I'm gonna bean you with a gluten-free bagel just for reminding me about chinese food when I'm stuck at work and getting hungry. :angry:

LKelly8 Rookie
LKelly8
Posted

Welcome back Jerry :wub: !! The prodigal son returns! Where's a gluten-free fatted calf when you need one?

And I shall bean you with Midel gluten-free faux oreos!

:D (the kind that won't make you sick)

CarlaB Enthusiast
CarlaB
Posted

Jerry, Jerry, Jerry, dietary response IS clinical proof!!!! What are you waiting for? Till you're really sick and can't even work because of it??? That's about where I'm at! You need to get out of your denial and get off the gluten!!!

There's your scolding you came here for!!!! :D

Canadian Karen Community Regular
Canadian Karen
Posted

Well, if you were gonna cheat, at least you made it worth your while by cheating with Chinese food. My ultimate dream meal that I miss ABSOLUTELY THE MOST is my major Chinese Food Szchewan feasts I used to have...... Mmmmmmmm.......... In fact, I am quite jealous!!!!!!!!!!!!!

Glad you learned your lesson though.......

Karen

IrishKelly Contributor
IrishKelly
Posted
Hi everyone,

It's been a while since I signed on. I stop thinking about the whole celiac thing, until I have a bout of

symptoms. Usually things aren't too bad, and I've subconsciously adjusted my diet and tend to shy away

of things that I know contain Gluten. This last weekend however, I was bad. I ate a ton of Chinese food

on Friday night. Had toast and an English Muffin at my mom’s house on Saturday. I ate with reckless

abandon. Monday thru Wednesday, I was sick as a dog. I had diarrhea, I hurt all over like I had the flu and

had terrible heartburn. The symptoms themselves are enough to make me be good. I know I need to go

to the doctor and follow up on this, but I just keep putting it off.

Interestingly my mom mentioned something interesting the other day. She said when you were a baby, Oreo’s made you sick. Hmmm, what do you think of that? Sort of ties everything together for me. Anyway, go ahead and bash me for not going and getting a diagnoses, I deserve it. jerry

I get the same way if i'm glutened, i feel cold achy flu like symptoms, heartburn, burpy, nauseous, etc... and guess what, my dr. said he know that i'm gluten intolerable just from the obvious reaction, so you don't actually need a positive test to tell you that! Oh, bye the way, i'm sooooooooo jealous that you ate chinese...but not enough to do it myself :P

Ursa Major Collaborator
Ursa Major
Posted

Well, Jerry, you really have your diagnosis already. Food that contains gluten makes you sick. Period. It's perfectly obvious. How much proof do you need?

So, quit being dumb, and go gluten-free for heaven's sake! :rolleyes:

Seriously, we don't want you to get really sick with cancer, or adrenal fatigue (which is where Carla and I are at) or a host of other potentially serious problems.

So, take your head out of the sand, face the facts, and get well. You are worth it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

...

Mellie Newbie
Mellie
Posted

oh my goodness...you guys are making me so hungry!!! :(

the chinese stuff- I haven't had that in forever anyway cause as I tell my husband...I like it okay but it doesn't like me....so that's something I've avoided anyway and won't miss. But twinkies and bread.....!!!! :(

It's so hard....I'm new here btw- hi! :) I'm not diagnosed yet but my mom has all kinds of stuff (they think it's crohn's disease too and she has gallbladder disease...or did when she had a gallbladder- not that you're ever the same anyway) and I'm trying to go gluten-free to see if that's what's wrong with me per the recomendation of my Dcotors and I've been experiencing all kinds of stuff like the fatigue (they also think I have adrenal fatigue!) and depression and all (oh yeah I have sleep apnea too but not sure if that's connected or not?)....so I keep trying to tell myself gluten might be very BAD for me.

I see where you're coming from though cause this is really hard to wrap one's head around. I mean I used to be able to eat whatever....but as time goes on it gets worse and worse. And then I keep thinking...it's not like a traditional diet (that doesn't work anyway cause it's just that- a diet - and not a life change like it should be) where a little every once in awhile is okay....it isn't. :( That's the thing that's hardest for me at this point.

Good luck to you!! :)

JerryK Community Regular
JerryK
Posted
  • Author

Thanks for your responses everyone. I never did go to get tested after our Alaska cruise, life just sort of gets in the way of stuff, if you know what I mean.

It's sort of like---you know--going to the dentist. Lots of people don't even think much about their teeth, until they look in the mirror and see a big hole.

It's not like the symptoms bother me constantly. I can eat a slice of bread with little reaction. However if I eat two or three, I'd likely pay the price. It is the ratio of gluten to other foods that seems to make the most difference. If I eat a big dinner and eat a slice of bread..no problem...or not much anyway. But when I chow down for multiple days with reckless abandon, I pay the price...THEN I start thinking about it again.

jerry

happygirl Collaborator
happygirl
Posted

tsk tsk tsk :P

just because you aren't having an overt reaction doesn't mean that you aren't setting off an autoimmune response, with gluten attacking your intestines....

jerseyangel Proficient
jerseyangel
Posted

Jerry, Welcome back!

Laura is right, though. If you do have it, you are damaging your intestine every time you "get away with" something containing gluten.

I'd hate to see you ending up with other food intolerances due to a leaky, damaged gut. It's not a lot of fun! :)

elye Community Regular
elye
Posted

Hey, Jerry!

Yet another reason to just get off gluten and to heck with the blood panel (or even the biopsy):

THERE CAN BE FALSE NEGATIVES. So, the tests can mean nothing. Getting sick from gluten means everything! ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.