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I Found A Great Doctor!


kbtoyssni

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kbtoyssni Contributor

I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!


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linds Apprentice

you are lucky to have found one. I live in northern minnesota and have been to many doctors that will just dismiss any digestive issues as IBS. if it only had to be one apt. it would almost be worth the 3 hour drive south to see someone.

  • 2 months later...
geminigal Rookie

I would love to know where you are going and who you were seeing. I just recently had a visit with a Dr. at MN-gastro in Maplewood, but would like to have other options if I am not happy with him.

happygirl Collaborator

that is great to know! it gives us hope when we here of doctors who 'get it', even if we don't have doctors like that ;). I'm happy to hear you have found someone you can trust!

sparkles Contributor

I live in Bloomington and would like to know the name of the doc that you saw. My primary doc really frustrates me. I am overweight and she says if you ate less you would lose weight. I think that part of my difficulty in losing weight is being a celiac. I know for those of you whose symptoms included weight loss, this is hard to understand but I think that overweight celiacs have bodies that just suck in the fat. I have been overweight all of my life so this is not a new thing. I have even looked into the weight reduction surgeries. Anyway this is off the subject... is your doc a gastro doc or internal med or what????

  • 3 weeks later...
Pinto Newbie

I am looking for a GI Doctor near in the Burnsville area that in knowledgable about Celiac. I was very disappointed when the Dr. who did my biopsy, simply told me to call his receptionist in a week for the results. The receptionist confirmed I had Celiac and simply gave me a number to a dietician who told me very little. Almost everything I've learned about Celiac has been from reading books & the web.

lavelli27 Newbie

Yes, I would love to know the name of the Dr. at MN Gastro, Maplewood. I also just moved here and was diagnosed w/ Celiac in May.


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  • 1 month later...
mmaguire Newbie

Oh Please may I have the name of your doctor! I live in Saint Paul and have just started shopping around for a medical professional to help guide me through my celiac journey. I was diagnosed as an infant but told I outgrew it. I went gluten free 6 years ago as a test and sure enough it stopped my many odd symptoms and I am a different and healthier person as a result. But I feel a need for medical guidance to stay as healthy as I can.

Looking forward to the name of your doc! and Thanks

  • 2 months later...
Helicopter Newbie
I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!

I have a 24 year daughter that is in need of a Doctor for her Celiacs

kbtoyssni Contributor

So good for me not checking this thread for months after saying I found a good doctor - sorry everyone. I see Dr Ronda Stellar at the Shoreview Medical Clinic (corner of Lexington and 96). She's a regular general doctor but I love having someone who's aware of celiac and not going to be skeptical every time I mention it.

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  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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