Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calgarians

2Boys4Me

By 2Boys4Me
in Publications & Publicity

Recommended Posts

2Boys4Me Enthusiast
2Boys4Me
Posted

I emailed the assignment editor at work (CTV) some suggestions for Celiac Awareness month, and to my surprise he said he loved it and is assigning a reporter to do a story (or more, I hope). Last year, he deleted the suggestion. <_<

Anyway, in my pitch to do the story, I suggested that they speak to the Calgary Association and Dr. Butzner or Dr. Scott at Children's. I mentioned a profile of the owners of Splitt, the lactose/gluten free restaurant in south Calgary, Terracotto in Nanton, Earth's Oven in Calgary, and to get an Edmonton reporter to profile Kinnikinnick. I also said they should find out why the Food Allergy and Anaphylactic Network suggested that rye and barley NOT be considered a top allergen for ingredient labelling purposes. I can't find the info on that right now. I also mentioned following a newbie around the grocery reading labels and calling companies.

I've pm'd Sandy (2kids4me) to see if she might be interested in a interview. Ty has such boring symptoms (anemia only), I think the story would work better if we get people who can speak knowledgeably about cross contamination, etc. There are all these resources in Calgary, bakeries etc. that I know of but have never tried because I don't want to spend a fortune on stuff that Ty might not like, so I'm not confident speaking about them. I can talk about inconvenience and packing a pizza and cupcake to birthday parties.

So...if anyone is brave enough to do an on camera interview please let me know ASAP so I can forward your contact info to the reporter. She's off on Monday because of the stat, and I'm not sure when she'll be doing the story.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Have you e-mailed Rusla? She's in Calgary, isn't she?

Good Luck!

Karen

2Boys4Me Enthusiast
2Boys4Me
Posted
  • Author

Good thinking! I haven't seen her on the board for so long, she slipped my mind. And Lori (SkokiMom) is asymptomatic so that would be a boring interview (no offense, Lori!). I should email Carriefaith, too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.