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JASON

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JASON Rookie
JASON
Posted

I DON'T UNDERSTAND THE BLOOD TESTS BUT AFTER TWO BODERLINE TEST RESULTS AND WITH A SISTER WITH CELIAC MY DOCTOR BUT ME ON A GLUTEN-FREE DIET. THERE ARE TIMES WHEN I DO FEEL REALLY BAD BUT NOT ALWAYS. I AM WORRIED ABOUT MY DOCTORS EXPERIENCE WITH CELIAC EVEN THOUGH I WENT TO HIM WITH MY PROBLEMS. I WILL GIVE THIS A TRY EVEN THOUGH THE INFORMATION I RECIEVED FROM MY DIEITITIAN IS ALREADY WRONG. SHE GAVE ME A SAFE FOOD LIST ON IT THAT SAID ALL DORIOTOS ARE SAFE EXCEPT TACO AND MY FIRST CHOICE WAS NACHO AFTER EATING I LOOKED AT THE INGREDIENTS AND SAW THAT IT CONTAINED WHEAT. NICE START. WOULD YOU AGREE WITH MY DOCTOR OR SHOULD I GET ANOTHER OPINION

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daffadilly Apprentice
daffadilly
Posted

If you have a sister with Celiac your chances are greatly increased that you could have celiac. Do you have symptoms? You can get a gene test thru Enterolab & they also test for gluten sensitivity & dairy & I think a couple of other things. I highly recommend them if you want any additional proof for yourself. each person has to make that decision as to how much proof they want. For some, improvement on the diet is all the proof that they need...

LKelly8 Rookie
LKelly8
Posted

Hi Jason! :)

{AOL voice}Welcome, you have celiac disease! :P

There's no such thing as "borderline" celiac, you have it or you don't. From your blood results, your family history (family members of a celiac have a 1 in 10 chance, as opposed to the 1 in 100 of most people) and your doctor's reaction, I'd say you have celiac disease. Sometimes celiac doesn't cause stomach symptoms, sometimes it doesn't cause any symptoms at all - until it's too late and you have cancer or another autoimmune disorder or a whole bunch of other unpleasant stuff.

Honestly, I wish I had had your doctor! He sounds proactive and informed. If your still concerned about being an "almost celiac", talk to your doctor. Ask him what he meant by "borderline" and how he decided on celiac as a diagnosis.

Dieticians are notorious for being out of date on the gluten-free diet. Thank goodness for sites like this and for local celiac support groups. How long has your sister been gluten-free? Is there a support group in your area?

Rusla Enthusiast
Rusla
Posted

Being Celiac is like being pregnant, you are or you aren't pregnant or celiac. There is not borderline pregnancies nor is there borderline Celiac disease. So as you have already been told, welcome to the world of Celiac.

AndreaB Contributor
AndreaB
Posted

Welcome,

If you want further proof I would recommend Enterolab. Click Open Original Shared Link for their site.

Your doctor sounds like a good one.

Not everyone has symtpoms. My family tested through enterolab and due to our numbers being lower I assume we would have tested negative by blood work. We didn't have any symptoms untile after we went gluten free. If we had something with cross contamination and/or mistakes by my mother, we would react. You'll find the longer you are gluten free the more sensitive you will become.

mouse Enthusiast
mouse
Posted

You have it. I wish I had had your doctor many years ago. You cannot have a false positive no matter how low the number is. It just means that the damage has probably not gotten so extensive. How lucky you are. Embrace the diet and that means being careful of cross contamination. You might see some changes in your health that you did not realize were from gluten. There are members on here that had no intestinal issues, but found after going on the diet, that other health things cleared up or got better after going gluten-free.

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