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Recommend A Doctor In You State

Guest celiacbuzzroom

By Guest celiacbuzzroom
in Doctors

Recommended Posts

Salax Contributor
Salax
Posted

Looking for a doc in Las Vegas, NV... ;)

Anyone?

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  • Replies 113
  • Created
  • Last Reply
Traveller Rookie
Traveller
Posted

For Northern Virginia, I recommend:

Dr. Kevin McCarthy (Internal Medicine), Piedmont Internal Medicine, Warrenton, VA

and

Dr. John Hart (Functional Medicine), Ashburn, VA

  • 3 months later...
BEADEL Newbie
BEADEL
Posted
Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

BEADEL Newbie
BEADEL
Posted

Looking for a doctor for my niece in the Toledo - Columbus OH area. It sounds to me like she may have this disease. She is scheduled to have her gallbladder removed because she apparently has gallstones. Don't believe anyone has tested - or talked to her about this disease.

ThatlldoGyp Rookie
ThatlldoGyp
Posted
Dr. Michele (pronounced "Michael") Monaco, pediatric cardiologist, Danville, PA and State College, PA

Dr. James Rodrigues, pediatrician with Bellevue Peds, Pittsburgh PA

Add to that as a primary care peds: Dr. David Coggins, Pediatrician, State College PA. His wife and her siblings are all Celiacs.

Jeanniebug Apprentice
Jeanniebug
Posted

Nashville, TN area:

Dr. Wilmot Burch (Gastro) at:

740 Cool Springs Blvd

Franklin, TN 37067-6448

(615) 771-8786

He's one of the nicest doctors I've ever met. Actually sits down and has real conversations with me and listens to my concerns. Their offices are very clean and beautiful, and the staff is soooo sweet and helpful. I feel very fortunate to have found him. :)

  • 3 weeks later...
bahrbdoll Rookie
bahrbdoll
Posted
Dr. Kristie Gering

Chippewa Falls, WI

She's fantastic.

I am from eau claire wi

could you please send me her info

who she's w/ and what she does

I feel like I'm crazy and nedd someone to help me asap!

thanks, bahrbdoll

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  • 2 weeks later...
T.H. Community Regular
T.H.
Posted

Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology.

He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.'

Dr. Tamura, on the other hand, started immediately talking about the fact that people with celiac disease can have food intolerances, vitamin deficiences, allergies, and other issues, so we should be checking me out for these right away to get me as healthy as possible.

Considering that I - who have never had a known allergic reaction to food before - had an anaphylactic reaction to 'something' the same day I went in for blood tests for allergies, I'm very glad I'm with Dr. Tamura now and not my first doctor!

T.H.

  • 2 weeks later...
nu-to-no-glu Apprentice
nu-to-no-glu
Posted

Dr. Jeremy Baptist in Kansas (City) is amazing. He will sit with you for an hour and go over every symptom. He was recommended to me by a random celiac stranger and I can't say enough about him. Very informed and up to date.

TEaglefeather Rookie
TEaglefeather
Posted

Trying to find a doctor in Kentucky

  • 1 month later...
Robinette Newbie
Robinette
Posted

Wendy Ellis

Tahoma Clinic

Renton, WA

Ordered Gluten Sensitivity tests on me after my first interview with her. No other Dr had ever even thought of it. She is very knowledgable and thorough. Has Celiac herself.

mbrookes Community Regular
mbrookes
Posted

Dr. Shirley Donelson

Jackson, MS

She saved my life. I was at the end... severe malnutrition, renal failure, dehydration, BP 60/40 when I wound up in the emergency room. Thank Goodness she was on call. She had me tested for Celiac as soon as I was stable.

Now. a year sand a half later, my quality of life has improved immeasurably. Gluten free is not so hard when you consider the alternative!

For a little country town that got fat (That's Jackson) we have a startling number of excellent physicians. Of course, having the medical school here with a teaching hospital doesn't hurt.

Tigercat17 Enthusiast
Tigercat17
Posted

Hi all!

Great post! I'm looking for a good Celiac doctor in Pittsburgh, PA. Anyone know of one? I do have one already, but I'm not sure if I'm crazy about him. He did find the celiac disease, but told me I might be able to "cheat" in a couple of years once I'm healed. I don't think he's that knowledgeable about celiac disease.

Thanks!

elle's mom Contributor
elle's mom
Posted
Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

I secong this one! She also now practices in Marlette, Michigan a day a week, not sure which day.

HarleyKat Newbie
HarleyKat
Posted

Brand spankin' new to these forums! :) Non-diagnosed, but seeking an empathetic specialist in the St. Louis Missouri area, who has a "team approach" with his/her patients.

Had an upper Endo, but unsure if that automatically rules me OUT...as Celiac's was not a suspicion at time? Currently dealing with a bevy of symptoms, including the brand new Dermatitis Herpetiformis which has been one of my more annoying and terrifying symptoms. (can you tell I am vain?! LOL) Always assumed acid reflux, gastro probs were weight related, but never really understood how I was even GAINING weight. Have that bloating and "Budhha Belly"...figured it was part of aging?! Now I understand that weight LOSS AND GAIN are symptoms, though GAIN is rarely accepted or recognized?

See, it's 4 a.m. and I was woken with worry and symptoms...need to get to bottom of such.

soulcurrent Explorer
soulcurrent
Posted

My doctor and his PA are fantastic.

Glenn Robinson

Austin, Tx

512-244-2273

  • 1 month later...
pshepherd Newbie
pshepherd
Posted

Dr. Michelle Hor (GI) in Colorado Springs, CO is AMAZING!!!

I have never really had many symptoms of celiac disease, but I was admitted to the hospital for a possible burst appendix, that was not it, my surgeon had her come in, do the biopsy and the next day I was diagnosed. She is so wonderful.

Sadly, we are moving to Texas (north of Dallas area) and I will be leaving Dr. Hor and need to find another GI.

Any recommendations for GI's in the Dallas/Ft Worth (or surronding areas)?

Thanks in advance!

Sleeping Celiac Newbie
Sleeping Celiac
Posted

Dr. Jack Wise NMD

Tulsa, OK

918-492-2400

He is wonderful!!

I was an undiagnosed celiac with GI issues and moderate to severe arthritis. After his solution I can eat anything I wish with no trouble at all as well as improvements with joint pain and GI issues! I also dated a woman during this same time that was a severe celiac who can now eat anthing she pleases....

Thank you,

Jason

  • 2 weeks later...
Darissa Contributor
Darissa
Posted

Phoenix, AZ Pediatric GI Dr. Mark McOmber is a wonderful doctor. He is with Phoenix Childrens Hospital and he is very open minded and knows so much about Celiac Disease. He spends a lot of time with his patients. I would highly recommend him. He was determined to find out what was wrong my daughter (he was the one who Dx her with celiac disease). He has a great nutritionist on board also in his office that has helped us very much when we were new at figuring out this gluten free diet.

  • 3 weeks later...
tmbarke Apprentice
tmbarke
Posted

Dr. Peter Ritsema, MD

Advantage Health

Jenison, Mi

I went in for a physical - told him about symptoms I was having....and he put me on a Gluten Free diet immediately.

I went back to see him because of bronchitis 2 months later..........told him I didn't know whether to Hate him or Thank him for putting me on the gluten-free lifestyle........His jaw dropped! He said to me..."You actually took my advise!?" I told him I struggled learning everything I could about the gluten intolerance, joined this forum, found out my symptoms were more like the Hashimotos, told him about the withdrawls and the things I've learned about everything including the safe foods and how to contact companies about their products and started telling him how I learned thru this forum about coffees milled in the same facility as wheat and other products I was being careful about, then handed him a gluten free antibiotic list that I found on this forum and his jaw was still hanging!

He said......"TENA! You are the patient of the year!" I was stunned. He asked for all the information I knew and told me that there is a BIG opportunity for this knowledge and a market to be had due to the lack of acknowledgement of this disease!

I was so thrilled that I gave him my lists in my folder and told him to pass this info along to his other patients so that they don't have to struggle as much as I did.

We chose an antibiotic from my list for my bronchitis and he gave me a hug! We even discussed our faith and his bible studies and I walked out of that office feeling like I had a best friend!

He is a wonderful caring doctor that listens! I didn't even need the testing to know that I was on the verge of doomdom with gluten.

I told hm about all the improvements and he told me it was GREAT to see me smile again!

I highly recommend this doctor! Near Grand Rapids and worth the drive!

  • 1 month later...
srsssss Newbie
srsssss
Posted

Maryland

Out of frusteration I went to a dermatologist for my persistant "acne" and he immediately recognized it as DH!!! I had all of the celiac symptoms too. Diagnosed with DH in Sept '09. After going to Dr after Dr for 5 years trying to figure it out it was a welcome diagnosis since it runs on both sides of my family.

Derm:

Matthew Bruntel, DO

Frederick Skin Care

604 Solarex Court Ste 205

Frederick, Maryland 21702

I get to see Dr. Fasano at U of MD in a couple of weeks.

Still looking for a dentist that understands celiac! suprising few do!

codetalker Contributor
codetalker
Posted

Any GP recommendations for Wilmington, Delaware?

Sunshinegirlinla Newbie
Sunshinegirlinla
Posted

Does anyone have a good dr. in the Burbank or Los Angeles area?

Sunshinegirlinla Newbie
Sunshinegirlinla
Posted

Does anyone know of a GOOD doctor in Glendale, CA?? I have been to more quacks than ever imagined, from HMOs to out-of-pocket docs...I finally ordered all lab tests on my own and am waiting for package to come in the mail. I have cut out the middle-man (doctor) in that regard, but would still like a GOOD one to help me on my lone journey....I am doctor, patient, nutritionist and insurance company (payer) and this disease is in the ring with me, how the heck am I gonna get through this? My dad had ALL the symptoms I have and he was never diagnosed and died in his 70's from colon cancer...poor man, so much suffering.

thank you for listening, really gotta get this out somehow, because don't have a friend in sight that is going thru any of this strife.

:P

Your message sounds so much like what I'm going through right now. I went to see Dr. Ionia Bina in Glendale last month and she seemed okay at first, but now I feel like I have to beg her to treat me. I called 2 weeks ago, they said she was on vacation and would be back next week, when I called the following week, they told me she was on vacation again!!

I feel like I have to figure this out on my own.

I will keep you posted if I find a good dr. in our area :)

  • 3 weeks later...
gryck Newbie
gryck
Posted

My children and I have all been diagnosed with celiacs and some with gluten intolerances within the past 3 years. I am looking for a good doctor in the South Jersey area or Philadelphia who understand the disease and can help us.

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    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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