Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cheated And Nothing Happened!

DingoGirl

By DingoGirl
in Coping with Celiac Disease

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

Don't ask me why I cheated......it's been a terrible couple of months and I just didn't care any more. Also, wanted to see what would happen and was actually hoping to lose some weight.... :ph34r:

So I was awaiting the onslaught, usually 12 hours later, and now it's almost 24 hours later, and NOTHING HAPPENED. Nothing. Not even gas. How is this possible? I get cross-contamination and have violent D for half the day, and I purposefully eat THREE DONUTS and NOTHING HAPPENS?????

Am absolutely flummoxed about this. Any ideas? thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 83
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

Susan,

I'm also confused by your lack of reaction. I've always wondered what would happen if I purposely ate food with gluten, as I am also very sensitive to CC.

Hopefully someone with more insight on this will weigh in--it's very interesting.

Anyway, I hope you continue to feel ok :)

Rusla Enthusiast
Rusla
Posted

You may not get a reaction but it will still do damage to your villi. Perhaps it is waiting till you think it isn't going to react then it will whack you with a whammy.

LKelly8 Rookie
LKelly8
Posted

:( You still may have a reaction a few days from now - depends on when your immune system registers the "threat". Even if you never have symptoms, you have, most likely, damaged your small intestine - which will cause vitamin and mineral deficiencies down the line. Autoimmune disorders are strange beasts and the immune system itself is very mercurial. Reactions are dependent on many factors. You may have lucked out, snuck in a few past the guards, but I doubt it.

I wish you luck! :P

(Kinnikinnick makes a mighty fine donut BTW ;) )

CarlaB Enthusiast
CarlaB
Posted

Susan, when I get cc, I get a severe reaction. When I went on my gluten challenge, I did not have such "violent and immediate" reactions. :blink: I had overall poor health though during the challenge and had more constipation issues than gas and d. I also had brain fog issues after some time.

Remember when Chelsea went on her gluten challenge? She had the same thing, no reaction at all in the first few days, then she was miserable after some time on the challenge.

It's almost like our bodies can handle a little cc and eliminate it and heal as soon as possible. However, when we get a lot of gluten, our body is so overwhelmed it cannot immediately deal with it. I have not read any studies on that, it's just what it seems to me. So, I think the lack of reaction is actually an indication that it was just too much for your body to even recognize at this time. Your body will have to deal with the healing later.

Be very careful using your gluten reactions as a weight loss tool. I know you know that, this is more to point it out to everyone reading this ... it's really no different than taking laxatives or purging.

lonewolf Collaborator
lonewolf
Posted

Wow! You're really brave! But if you're going to cheat, you might as well get some enjoyment out of it, right? It wouldn't be nearly as much fun to cheat with something like Rice Crispies, that just have a little barley malt and aren't a big thrill to eat anyway.

I have no answers for you, but I agree with Carla's logic. I bet if you cheated for a few days you'd have one big reaction and start feeling horrible. Consider yourself lucky and be good!

They weren't Krispy Kremes, were they? :o

prinsessa Contributor
prinsessa
Posted

I went on a gluten binge one weekend about 2 months after going gluten free. I felt fine at first and thought maybe this gluten intolerance was all in my head (like some people told me). On Sunday I had the worse gas pains. I thought something was wrong with me until I realized it was gas. Just because you don't have an immediate reaction doesn't mean you won't have any reaction. It sometimes takes a couple of days for me to have a reaction which makes it hard to figure out the problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Susie, it's possible that the past few months while you've been gluten-free, your intestines have healed just enough to change your reactions. I think most of us have pretty leaky guts because we've been eating stuff we're intolerant to...when we stop, our guts have time to heal a bit...when that happens, I'm assuming (may incorrectly) that it might take longer to have a reaction...or maybe we won't have a reaction on the ocassional glutening... I don't know for sure...just my take on it.

nikki-uk Enthusiast
nikki-uk
Posted
So I was awaiting the onslaught, usually 12 hours later, and now it's almost 24 hours later, and NOTHING HAPPENED. Nothing. Not even gas. How is this possible? I get cross-contamination and have violent D for half the day, and I purposefully eat THREE DONUTS and NOTHING HAPPENS?????

Am absolutely flummoxed about this. Any ideas? thanks!

It is a mystery indeed. :huh:

Hubby fell off the wagon earlier on in his gluten-free diet (toasted cheese sandwich :P ) with no reaction at all.(he was in denial!)

During our trip to Spain this summer he picked off some croutons an ill advised chef served up on his dinner.He woke up with crippling stomach gripes at 4am running to the loo!! :ph34r:

It is odd isn't it? :blink:

Guest nini
Guest nini
Posted

you can't judge anything (where Celiac is concerned) with symptoms or lack of... The point is you are still doing damage. When you were still eating gluten on a regular basis (at least for me) I wasn't sick constantly (at least not in the beginning) I'd have weeks at a time of feeling decent and then something would set me off, it's like your body maybe heals enough to appear to tolerate it or it just gives up and says hey I warned her when she had cc... LOL... so, who knows... the best bet is to simply go back to being as close to 100% gluten-free as you possibly can be. Oh and I also wanna know, were they Krispy Kremes? (so I can live vicariously through you!)

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
They weren't Krispy Kremes, were they? :o

Well they weren't Krispy Kremes! You know, I never liked them that much before - they ARE good, but just so sickeningly sweet that I could only eat one. And I KNEW I wanted a binge....so I ate my favorite regular donuts, plain cake with chocolate icing. they were delicious..... :(

Thanks for your answers. I am just stunned and confused by this. And don't worry, I don't plan on doing it again....but I just thought I"d get horribly sick....

where's GFP? he'd have some good answers, I bet, something scientific!

I actually feel fine today and am heading out to work in the garden (uh-oh, more back pain.... :o )

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
Don't ask me why I cheated......it's been a terrible couple of months and I just didn't care any more. Also, wanted to see what would happen and was actually hoping to lose some weight.... :ph34r:

So I was awaiting the onslaught, usually 12 hours later, and now it's almost 24 hours later, and NOTHING HAPPENED. Nothing. Not even gas. How is this possible? I get cross-contamination and have violent D for half the day, and I purposefully eat THREE DONUTS and NOTHING HAPPENS?????

Am absolutely flummoxed about this. Any ideas? thanks!

Dingo,

I am suprised...why would you want to do this? I thought you were smarter than this...

:(

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
Dingo,

I am suprised...why would you want to do this? I thought you were smarter than this...

:(

I don't know....maybe I'm not as smart as you think??? :huh: I 'd been planning a binge for several weeks :ph34r: and yesterday seemed like a good day for it.....

I'm confused too, that NOTHING HAPPENED.

eleep Enthusiast
eleep
Posted

It took me four days to react to my last glutening -- in the meantime, I was a little stressy, but it wasn't anything I couldn't handle. Then I had two days of really bad stomach stuff and fatigue. Then -- a few days later, really horrific depression which made me all insecure and weepy. The depression wasn't constant -- it's came and went, but it's was still way too much for me to want to handle on a regular basis -- I went through phases of deep pessimism, oversensitivity and total self-doubt -- those are, by far, the worst symptoms for me right now since I've got so much that I need to be doing and dealing with.

I was able to identify this stuff as gluten-related partly because acupuncture seems to have sped up my overall healing process to the extent that the depression was a markedly different experience from the normal, day-to-day me off-gluten.

I also briefly fell off the cigarette-smoking bandwagon -- and that was clearly reaction-related because I had cravings for the first time ever on the day I started having the D. -- which seems to indicate that my brain chemistry wasn't as resilient as I needed it to be. It was hard for me to do all the things I've been doing to keep taking care of myself.

Anyway -- this is partly just about me venting, and partly an example of my delayed reaction. I keep hearing from people that my reactions should diminish in intensity once I've healed enough but I'm not particularly eager to test things out on purpose!

TriticusToxicum Explorer
TriticusToxicum
Posted
I don't know....maybe I'm not as smart as you think??? :huh: I 'd been planning a binge for several weeks :ph34r: and yesterday seemed like a good day for it.....

I'm confused too, that NOTHING HAPPENED.

It could be that the sugary goodness combined with the deep fried doughyness and chocolatey smear on top somehow insulated your intestines from the poison. That, or the deep frying killed the gluten :rolleyes: (TONGUE FIRMLY PLANTED IN CHEEK)

kbtoyssni Contributor
kbtoyssni
Posted

I accidently consumed gluten once and had no reaction. I was sooo thankful that I didn't get sick. Maybe it's because I felt so badly about not reading the label more carefully that my body decided I'd learned my lesson and wouldn't make me sick as well. You probably won't be so lucky the second time you do this :)

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Erica - I hear you - - I've been in such a fierce and constant depression anyway....with moments of reprieve - so if I get depressed from the donut binge, it won't even be that noticeable, most likely. :(

It could be that the sugary goodness combined with the deep fried doughyness and chocolatey smear on top somehow insulated your intestines from the poison. That, or the deep frying killed the gluten :rolleyes: (TONGUE FIRMLY PLANTED IN CHEEK)

I like THIS answer!! yup, definitely must be what happened..... :lol:

TriticusToxicum Explorer
TriticusToxicum
Posted
Erica - I hear you - - I've been in such a fierce and constant depression anyway....with moments of reprieve - so if I get depressed from the donut binge, it won't even be that noticeable, most likely. :(

I like THIS answer!! yup, definitely must be what happened..... :lol:

It could also be a sign from the gluten-eating world - they want you back :(

Maybe this means you should go to a football game and drinks BeerS too? Can pizza and pop tarts be far behind? :rolleyes:

You would have to turn in your keys to Racheville and tear up your parking permit - but beer and pizza and donuts?! :huh:

To the BAT CAVE! THIS will require further investigation! ;)

eleep Enthusiast
eleep
Posted

Oh god -- I'm going to have to go out and get some kinnickkinnick doughnuts _right_ _now_.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh god -- I'm going to have to go out and get some kinnickkinnick doughnuts _right_ _now_.

I have one chocolate glazed left in my freezer...can you say after-work snack?

CarlaB Enthusiast
CarlaB
Posted
I have one chocolate glazed left in my freezer...can you say after-work snack?

:( I'm even restricted right now on gluten-free donuts because of the sugar! :(:(

Queen Serenity Newbie
Queen Serenity
Posted

Please tell me that this is your last hoorah with gluten! Eventhough you had no visible reaction, you have just taken out some of your poor, liitle, defenseless villi. :lol: Seriously though, you shouldn't play roulette with Celiac's. It can result in a lot of damage over time. I know it's tempting, and difficult, but you just have to do it. If I can do it, and believe me, I have an entire clan who can eat gluten, then anyone can. Just put your mind to it. It will get easier over time, trust me.

Vicki :)

gluten-free for 11 years

TriticusToxicum Explorer
TriticusToxicum
Posted
:( I'm even restricted right now on gluten-free donuts because of the sugar! :(:(

What happened to the 1/4 donut on sunday? :huh:

CarlaB Enthusiast
CarlaB
Posted
What happened to the 1/4 donut on sunday? :huh:

I upped it to 1/3. I finished my first donut after three weeks, this Sunday I'll start another. :)

TriticusToxicum Explorer
TriticusToxicum
Posted
I upped it to 1/3. I finished my first donut after three weeks, this Sunday I'll start another. :)

That doesn't sound like restricted to me, it sounds like you've actually increased your donut intact by 32%!

She gone hog wild! :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    5. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.