Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Advice


AmyandSabastian

Recommended Posts

AmyandSabastian Explorer

I am so needy lol. But I trust all of you so much. I am not sure if I need to be posting this on my website or here. I have no idea if it celiac disease related or not. Here I go:

When Sabastian went gluten-free in May we saw night and day differences. And right away within the first 4 days. All was well up until 2 weeks ago. I dont know if its a phase or growth spurt or just teething (which I dont see any). He is started to get cranky and super clingy again. His stools are a little softer than normal. His belly is getting hard with each meal (not sure if he is over eating or not) he is eating more than normal again. He is waking crying again!!! Its really starting to look like old times. I swear he isnt eating gluten gosh I hope not I am checking so well. I am just at my wits end with a cranky baby. He is 8 1/2 months old and is trying to walk so bad, which could be it too. He gets so tired when he is learning. But the last 2 days he has skipped nap 2 and 3 which has made him just impossible. I might be over reacting but with no doctor in the state that knows anything about celiac disease I have no where to turn other than you. Any advice would be so helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Is it possible there could have been cross contamination somehow? Is your household completely gluten-free? If not.. if there happens to be crumbs on the floor, and he crawls through them.. could get some on his hands, and as soon as he puts a hand in his mouth, then there goes gluten in him.

Oh maybe a new product he started up on, has some gluten hiding in it? Keeping a food journal, and making notes of how he is doing could help track things too.

Or maybe it could be the trying to walk, he caught a cold.. or something.

Hope this helped somehow, and good luck! =)

AmyandSabastian Explorer

I forgot to mention one thing, and this may sound stupid. I have noticed that his little nose is rosey. Just the tip but it has been red. Isnt that weird?

Alexolua Explorer

Maybe? I'm not much of an expert at this, sorry.

Oh, and one thing I forgot to mention.. you said he was teething? Maybe something you've been giving him to chew on has gluten on it somehow?

Well trying. =)

AmyandSabastian Explorer

No he MIGHT be teething, but no redness or swelling so I havent even thought he was. But because of his age everyone says "Oh he must be teething"

TaylorsMom Rookie

I am far from an expert but I thought I'd give a suggestion anyway. Is he lactose intolerant as well? Is it possible, since at 8 1/2 months I'm sure he's trying new foods, that he has recently had a new dairy product and he's not handling it well? I'm not sure of your story before going gluten-free, so I may be way off. If so sorry in advance. You are right to be concerned though, especially with the looser stools and the hard abdomen. Those two things, in my opinion, signal that it's not a phase or teething but rather something that's being ingested.

Megan

woots Newbie

again, i am far from an expert but have learnt alot in the last 3 months. my daughter seems to have gone through a similar set of circumstances as you have already mentioned. she was diagnosed some 3 months ago with celiac disease and in the last three weeks we have spent another week in hospital. the reason all stems around her being milk intolerant also so she is on a milk free and gluten free diet. The doctor over here has also placed her on a soya free diet for good measure in order to give her a few months of a balance diet where her immune system and intestines can grow again.

So in a nut shell, she is on a gluten, milk and soya free diet. the soya will be for about 3 -5 months but the milk for a few years yet.

she has really picked up and the change has been incredible, she is running around and putting weight on which is a wonderful sight to see.

dont know if that would have been of any help, but i am learning myself at present.

mark wootton

Nottinghamshire

England


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



reidei Newbie

From another non-expert....I have been told that redness on extremeties is a sign of allergies....my nephew gets bright red ears (for example) when he's

exposed to something he's allergic to. The allergist told his mother to look for

this shortly after eating certain foods as a sign of allergies.....I would consider this as a possibly reason for a red nose...

For what it's worth - hope it helps....

AmyandSabastian Explorer

Well man I have some updates for you. In this one Sabastian got his first 2 front bottom teeth this week!!! He is doing great and has become a wonderful biter!! All symptoms are gone. YAY.

celiac3270 Collaborator

Congratulations!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.