Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arg Glutened And Sick!

Adelle

By Adelle
in Coping with Celiac Disease

Recommended Posts

Adelle Enthusiast
Adelle
Posted

My husband and I went to the beach overnight to celebrate our anniversary. We celebrate our wedding anniversary (in aug) w friends n fam and our 1st date anniversary just us.

Anyway, we got a room with a kitchenette, which we wil be returning to btw! Took food with us, but also decided to go to this thai food place. The waiter even brought out cans of sauce and stuff for us to examine cause he didn't know what "gluten" is. How sweet!

This morning I woke up horribly ill. Head cold and gluten symptoms. Hubby doesn't have the cold (his healthy immune system and all), but did feel glutened. We blamed the restraunt until we looked at the sausage WE had brought with us!! It was gluten-free 2 weeks ago!!! Arg! It was one of the only "processed" things we bought.

As soon as we found out, we packed up and headed home (luckily only a 2 hour drive). We made it home about noon. And just in time.

I'm so frustrated! I HATE being glutened! It's only happened once or twice b4 (learning curve I guess). But I HATE it.

On the + side we had fun b4 we got sick!

Ack!

Oh and we babysat a few days ago (probably how I got sick) and my neice (who's nearly 4) went grocery shopping w us. She "helped" us read labels, and said "can u have this? Or this? I am allergic like u!" she's not celiac, but it's still cute!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

So sorry you got glutened on your anniversary. Hope it clears up quickly.

daffadilly Apprentice
daffadilly
Posted

Oh Adelle, I hope you feel better soon, and HAPPY ANNIVERSARY :wub:

Matilda Enthusiast
Matilda
Posted

...

IrishKelly Contributor
IrishKelly
Posted
My husband and I went to the beach overnight to celebrate our anniversary. We celebrate our wedding anniversary (in aug) w friends n fam and our 1st date anniversary just us.

Anyway, we got a room with a kitchenette, which we wil be returning to btw! Took food with us, but also decided to go to this thai food place. The waiter even brought out cans of sauce and stuff for us to examine cause he didn't know what "gluten" is. How sweet!

This morning I woke up horribly ill. Head cold and gluten symptoms. Hubby doesn't have the cold (his healthy immune system and all), but did feel glutened. We blamed the restraunt until we looked at the sausage WE had brought with us!! It was gluten-free 2 weeks ago!!! Arg! It was one of the only "processed" things we bought.

As soon as we found out, we packed up and headed home (luckily only a 2 hour drive). We made it home about noon. And just in time.

I'm so frustrated! I HATE being glutened! It's only happened once or twice b4 (learning curve I guess). But I HATE it.

On the + side we had fun b4 we got sick!

Ack!

Oh and we babysat a few days ago (probably how I got sick) and my neice (who's nearly 4) went grocery shopping w us. She "helped" us read labels, and said "can u have this? Or this? I am allergic like u!" she's not celiac, but it's still cute!

I TOTALLY UNDERSTAND! Thursday at work i ate 1/2 of a twizzler (my first dumb mistake after starting this diet 5 months ago) and saturday (last night) i had a halloween party to attend at my husbands boss's house...i was totally mad because i was in the bathroom like 2-3 times and after only an hour decided i should just go home :( . I guess my reaction time is like 1-2 days after being glutened. Oh well, guess we will all get the total hang of this nightmare soon enough.

brendygirl Community Regular
brendygirl
Posted

I feel ya! I've gotten glutened twice this week from things on gluten free lists: Amy's soup and gummy lifesavers.

Last night I was supposed to go bowling and I was about to leave and I felt that familiar bloating and other feelings. So I called and told my friend I was going to be late, but I still went, because I knew I'd feel bad at home AND I'd feel bad bowling, but D medicine would at least keep me out of the restroom. It's better for me to be distracted. It was fun, but my second game was bad because I was getting drained and fatigued, besides being achy and nauseous.

I get symptoms a few hours after gluten exposure.

I'm glad you got to enjoy your night. Sometimes on special occasions, I try to eat beforehand and just have a drink at a nice establishment.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748
    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.