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Endo,fibroids And Cysts


Firegirl43

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Firegirl43 Contributor

Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?


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jerseyangel Proficient

I honestly don't know if there's a link. I have cysts, fibroids and also uterine polyps (found and removed when doing another procedure).

georgie Enthusiast

I have this too. My Dr tested me and found I was oestrogen dominent and I now use a bio identical Progesterone Cream each day to get my hormones balanced. It was dx by a saliva test. Do a Google search for oestrogen dominence and endo, fibroids, cysts. Don't know about Celiac causing them.

Audiori J Newbie

Strange, I also had a cyst. But mine was in my sinuses.

Deej Newbie

I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

georgie Enthusiast

I have just had my 6 month post op checkup and scan today and NO CYST has regrown ! I don't know if its the Armour Thyroid meds, the Iodine, the bio identical Progesterone Cream to normalise my oestrogen dominence or the Celiac diet - but am sticking to all 4 !! :lol:

whitball Explorer

I had several surgeries in my life time. Three c-sections, two laparoscopies to take out ovarian cysts and a hysterectomy. Now I have intersistial cystitis and chronic pelvic pain. I wonder if they were related too.


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  • 1 year later...
ncyim Newbie
I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

Hi Deej - I'm writing a paper for school about women's experiences with hysterectomy and would love to interview you! Please let me know if you are interested - ncyim - hotmale ;-)

BTW - I've been reading a lot about gluten-free helping with gyn pain and bleeding issues. Is anyone studying this relationship?

Nyxie63 Apprentice

I've got cysts in my thyroid, breasts, ovaries and cervix. Oddly enough, they're all on the left side. Go figure. :huh: Been dx'd with PCOS, but no sign of endometriosis or fibroids on the pelvic or trans-vag u/s. The Holistic MD told me to cut out all processed foods, as it was a contributing factor to cyst growth. He didn't go into any further detail on this.

Georgie,

Glad to hear of your success! :) I'm also on iodine supplementation. Take 8 drops of Lugol's daily. The dr recently rx'd 1/2 grain of Nature-Thyroid, but I haven't taken it yet. Still waiting on my ferritin results before starting on that again. I'm hoping the combination of iodine and thyroid med will get rid of all of the cysts, given time.

SpikeMoore Apprentice

I have looked into the relationship and one of the things that they suggest you avoid eating with endo is wheat. (I think it should be gluten). They are now looking at endo as an autoimmune condition and once you have one...

Here's my theory at this point. If you have "mediators of inflammation" in your abdomen from celiac (=chemicals relased in inflammatory processes such as gluten ingestion) it is only going to make other inflammatory conditions, such as endo, worse.

Looking back, the two started about the same time, around 15 years old or me. Who knows.

HAK1031 Enthusiast

I was just about to post this topic! I was dx'ed with endo about 3 months before my celiac symptoms started...since going gluten-free I've been somewhat better. interesting...

JodiC Apprentice

Hi,

I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would have had "normal" pregnancies and less cysts. After my hysterectomy I wasn't able to take HRT due to flare ups but now am able to. Incidently, I had the operation before the diagnosis of Celiac. I wish I had known about the Celiac as I probably would have been able to save some of my parts :) Live, Learn and Educate.

  • 10 months later...
JenCO Newbie

I was diagnosed with a very large fibroid (size of 5 month pregnancy) in 2003. It was growing rapidly, and my doctor said I had candida, so I went on a yeast-free diet. Co-incidentally, I also pretty much gave up wheat because I noticed it was making me feel very tired after eating it. My fibroid stopped growing. In fact, I found that it grew only when I went on holiday, and these were the times that I found it difficult to stick to being yeast & wheat free. This happened 4 times.

Fibroids are usually associated with high estrogen levels, however my estrogen is extemely high, but it's not growing at the moment.

I already knew I was lactose intolerant (pasteurised makes me feel nauseous, and unpasteurised gives me eczema), so in March 2008 I decided to have a food intolerances test done. They measured IgG antibodies. I'm intolerant of 14 foods, including gluten (gliadin), wheat, yeast, dairy, eggs, sesame, oats, tomato, peppers.

I suspect I have celiac disease because I have daily diarrhea and a strange itchy rash if I accidentally eat wheat.

I also have hypoglycemia (not diabetes), and my gallbladder area feels uncomfortable, so I'll soon find out if I have a problem there too.

So I've given up gluten, wheat, dairy & yeast completely, and mainly given up the rest.

You'd think with all that going on, I'd be pretty downbeat, but I'm not.

Instead, I'm now wondering when things are going to start turning around.

debmidge Rising Star
Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

These were my health problems too (over the reproductive years) and probably since I was

a teenager and I do not have celiac....

Nancym Enthusiast

I learned recently that people with hypothyroid have more fibroids and/or endometriosis. So you might want to have your thyroid checked. I suspect I have endo, I know I have fibroids. My thyroid condition has been undertreated for probably 20 years. :(

Yenni Enthusiast

I have endo and fibroids. I had a lap last February and will maybe have another this year. Some say endo is an autoimmune disease...so who knows.. I had a cyst last Christmas, but don't seem to have them regularly..

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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