Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dizziness


allison

Recommended Posts

hathor Contributor

Something to try --

Some years ago I got off the ship following a short cruise and found that I felt like I was still onboard. It didn't go away; my doctor prescribed something which didn't work.

So I did a lot of research on the internet and discovered what I had (MDD). It is something for which there is no test and so there were plenty of doctor horror stories in the support board I found. There is no official cure. I'm not saying any of you have this, just that there can be disorders that don't have any tests!

I tried chiropractic adjustments, exercises the chiropractor recommended, and some other balance exercises I found. Didn't work.

Then I read on one medical school's site that they suggest ginkgo for people with balance or dizziness problems. I took it for a couple days and my symptoms went away (I had had this for a couple months). I had to take it for some time. How did I know when to stop? I would stop and see if my symptoms returned ... I did have to take the strongest dosage I could find; a weaker one didn't work.

Now when I travel I always have ginkgo pills with me, since a couple times these symptoms have come back.

I believe it works because it improves blood flow.

Don't take this if you have a bleeding disorder or are taking any blood thinners, etc.

I thought it would be worth mentioning. Let me know if any of you try it and it works!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast
Something to try --

Some years ago I got off the ship following a short cruise and found that I felt like I was still onboard. It didn't go away; my doctor prescribed something which didn't work.

So I did a lot of research on the internet and discovered what I had (MDD). It is something for which there is no test and so there were plenty of doctor horror stories in the support board I found. There is no official cure. I'm not saying any of you have this, just that there can be disorders that don't have any tests!

I tried chiropractic adjustments, exercises the chiropractor recommended, and some other balance exercises I found. Didn't work.

Then I read on one medical school's site that they suggest ginkgo for people with balance or dizziness problems. I took it for a couple days and my symptoms went away (I had had this for a couple months). I had to take it for some time. How did I know when to stop? I would stop and see if my symptoms returned ... I did have to take the strongest dosage I could find; a weaker one didn't work.

Now when I travel I always have ginkgo pills with me, since a couple times these symptoms have come back.

I believe it works because it improves blood flow.

Don't take this if you have a bleeding disorder or are taking any blood thinners, etc.

I thought it would be worth mentioning. Let me know if any of you try it and it works!

thanks for the info. i was thinking of seeing a naturopath if this does not clear up soon since traditional medicine does not seem to be workign for me. my dr is goign to try me on some migraine meds if my other tests are normal. i geuss if those work, it will prove it was migraine related.....

tarnalberry Community Regular

My migraines involve a type of dizziness. It's not a 'stand up and spin around a bunch then stop and now you feel dizzy' type, it's more of a disorientation and lack of ability to think clearly. Similar to the glutened brain-fog, but less foggy-thinking than foggy spatial perception. It's hard to describe, and it's not so severe that I can't walk in a straight line, but I have to work at it. It's not at all like a lack of balance for being drunk either. It's like you can sense the motion of the world around you, and you want it to stop *right now*. :P

num1habsfan Rising Star

i always have the dizziness. and like some of yyou guys have said in here, i never had it until going gluten-free. i have an example even today: I leaned over to get something off a chair, and just about tipped over sideways and tripped over other things :ph34r:. it usually some pretty nasty dizziness, sometimes i can barely stand.

~ lisa ~

jesscarmel Enthusiast
i always have the dizziness. and like some of yyou guys have said in here, i never had it until going gluten-free. i have an example even today: I leaned over to get something off a chair, and just about tipped over sideways and tripped over other things :ph34r:. it usually some pretty nasty dizziness, sometimes i can barely stand.

~ lisa ~

i just think its so weird that we only got it AFTER going gluten free. it makes no sense to me. for me its only gotten worse too. for me the room shifts rather than spin. have you seen anyone for it. my neuro doesnt think its related to going gluten free. im really annoyed already with this dizziness ....at least im not the only one

num1habsfan Rising Star
i just think its so weird that we only got it AFTER going gluten free. it makes no sense to me. for me its only gotten worse too. for me the room shifts rather than spin. have you seen anyone for it. my neuro doesnt think its related to going gluten free. im really annoyed already with this dizziness ....at least im not the only one

i saw all my family docs about it and honestly theyve never been able to explain any of the symptoms, they just all say its from celiac

~ lisa ~

tarnalberry Community Regular

I'd be curious if you find out whether or not it's migraine related. My migraines have fairly significantly shifted in their pattern (and I don't think that it's gluten related, but occured around our move), and this can happen over time. A bit disturbing, but apparently not all that atypical.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast

well i guess the dr is right. i was at whole foods today and i felt the floor was pushing me up- really weird vertigo feeling. 20 minutes later i got a horrendous headache that i geuss was a migraine??!! the weird feeling kept coming for an hour and the headache is still going :(

i geuss i will end up taking the migrained medication he said he would give me.

  • 2 weeks later...
icmarmots Newbie

I'm being worked up for Adrenal problems partially because of the dizzy spells. I'm an RN and work nights. One evening I passed out at work***left the pt room because I felt dizzy and collapsed in the hallway*** This last Friday I went to workout right after I work up and had to stop halfway through because of the dizziness.

I'm really tired of it. Have any of you been worked up for Addison's (no Adrenal function).

darlindeb25 Collaborator

i just think its so weird that we only got it AFTER going gluten free.

When I talked to my doctor about my dizzy spells, he told me he feels it is part of my neuropathy, has something to do with the nerves in my neck, which does make perfect sense to me.

I do have optical migraines or ocular migraines, yet I never get dizzy with those, yet optical migraines are different from regular migraines too.

  • 5 months later...
kristend Rookie
The migraine part I have never heard of, although, I do have migraines.

As for the dizziness, I do have it. I didn't have it before going gluten-free and it's only been bad for the last several months. It started slowly. I would be hugging Kev and look up, he learned to keep his arm tight around me because when I look up, I tip backwards. As of late, any movement around me makes me dizzy, someone tittering their legs, talking with their hands, cars moving very slowly next to me, any movement slowly in my periphreal vision--sometimes it just hits me. I do have neuropathy and the doctor does feel it may be a part of the neuropathy. Weird!

Hello. I found your post and I too have really bad dizziness after going gluten free. I have been gluten-free for a little over a year now and it is the worst it has ever been. I'm being worked up right now for seizures but I really attribute it to eating. I notice it is the worst the day after I eat out or I drink alcohol does this happen to anyone? Could it be that I am so senstive to gluten now? All of my blood work since going gluten-free has been normal so my dr. doesnt think it is gluten related. any ideas?? It is really disrupting my life

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,836
    • Most Online (within 30 mins)
      7,748

    maegan.s
    Newest Member
    maegan.s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.