Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know How Evie Is?


Judyin Philly

Recommended Posts

Judyin Philly Enthusiast

Hi All

Alot of us knew she had a dr apt on Nov 6th and don't think she's posted since then.

Does anyone know how she is or have contact info on her?

judy in philly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Judy,

Have you heard anything?? There was an Evie "sighting" a short time ago...but no posts. Maybe she is back at home??

AndreaB Contributor

I hope she's home.

lindalee Enthusiast
I hope she's home.

me to.

Judyin Philly Enthusiast

I just heard from Evie's daughter Shirley,

I haven't writen her back yet as wanted to post this ASAP.

I'm hoping she won't mind me posting her email to me.

I'm going to write her and ask her if she has time to print out the messages we write to Evie on this thread and take them to her in the hospital. I think they will cheer her up. Jim did that for me when I want in the hospital and it sure was wonderful.

Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy

Green12 Enthusiast
Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy

Judy, thanks so much for sharing this with us. We have all been so worried and concerned about Evie. If you do e-mail her daughter back let her know that her mom is in our thoughts.

AndreaB Contributor

Thank you so much for the update Judy.

We will continue to keep Evie in our prayers.

Evie we miss you and love you. We'll be here when you get home. :)

:wub::wub::wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Evie, sending :wub:, with prayers that you will be well soon.

DingoGirl Enthusiast

Dearest Evie......prayers for strength to kick that C. Diff in the you-know-what, and prayers for your strengthening and rejuvenation. I had C. diff once......I know how painful it is. We miss you!

God bless - - :)

lindalee Enthusiast

Evie.

So sorry about this happening to you. Prayers that you will get through this soon and be well. :wub:

Judyin Philly Enthusiast

Evie

We're so greatful to Shirley for letting us know your in the hospital.

We are all praying for you here.

We miss your smiling 'avatar' at the computer.

I'm glad your daughter can be with you now.

We'll be so looking forward to the time your well and posting with us again soon.

Love Hugs and Prayers coming your way.

judy in philly

Rachel--24 Collaborator

Evie,

I'm so glad that your sister has sent an email and that we were able to find out how you're doing. We all miss you and were very worried. Lots of hugs and prayers for you everyday. :wub: I know you are strong and will beat this so you can come home. We cant wait to see you back on the thread....we'll all be here when you get home. Hope those doctors are taking good care of you. :)

((((((hugs))))))))

:wub: -Rachel

jerseyangel Proficient

Judy--Thanks for letting us know!

Evie,

Please feel better real soon! We miss you and are thinking about you and praying for a speedy recovery. :)

nikki-uk Enthusiast

Evie -Glad Judy tracked you down - I've been thinking of you.

Hope you feel better soon and wishing you a speedy recovery!! :):)

dlp252 Apprentice

We really miss you Evie! I am praying that you get well very soon!

mouse Enthusiast

Miss you Evie and am sending get well quick wishes and prayers to you.

Mtndog Collaborator

Praying for your speedy recovery and health. i had C diff this summer anad it was horrid. Sorry you're dealing with this and I hope they are taking very good care of you. Hugs, Beverly

Judyin Philly Enthusiast

Hi Friends.

This is the correspondence that Shirely and I had tonight.

I'm going to send the 'print topic' in a email for her to take to her mom as it wasn't on the main view topics tonight..

I'll try to keep an eye on it tomorrow and try to 'bump' it up for people to see who may not have been on line over the weekend.

love judy

**********************

Dear Shirley,

Thank you so very very much for posting when I know your so tired.

It means alot to all of us who care so much about your Mom.

She is a very strong lady but this is alot to try and fight off. I pray she can get home on Tuesday. She'll heal faster there and of course eat safely there. It's such a shame that the hospitals just don't 'get it' in helping hospitalized patients eat gluten-free food with no cross contamination. Have you been taking some food to her?

I just wish we knew this earlier, we could have sent some 'gluten-free' care baskets to her.

Home made soup from your Mom's freezer (if she has some made up) in a thermos would be good and mabe some hard boiled eggs. Shoot, just wish we closer to help you out. Well, Let's pray that she'll be out on Tuesday so she can eat safely.

Maybe others will have some ideas.

Tell you what, I'll do a post of the thread and send it in a email on the forum so it will be easy for you to just print and take to her. This way it will be so easy for you.

I'll go and post this now as there have been alot of well wishes posted.

Will you be staying on when your Mom gets out of the hospital?

Not sure where you live.

Take care and thanks for the post.

prayers coming for you and Evie.

judy

****************************8

Hi Judy-

This is Shirley-Visited Mom today and she has elevated blood pressure and is taking another Rx for that. She is swimming in pills! She appreciated your inquiry and is anxious to get home, maybe by Tuesday we hope. She is still very weak and not getting much she can eat at the hospital. Her cold seemed better and she is on oxygen but don't know if she will have that at home or not. Since her breathing is labored, maybe she will. Doc says she will be wearing the catheter home-Joy! Got to beat this bladder infection plus the nasty C-diff. Doc mentioned a pacemaker, but if the new heart Rx works, no pacemaker. Lots of health issues for her, but she is trying to be strong. Your thoughts and prayers help her and I will tell her you sent another reply. Go ahead and post and let others know how she is doing. She appreciates this forum a lot.

Judyin Philly Enthusiast

bump- :)

AndreaB Contributor

Thanks so much for another update Judy and Shirley.

Evie,

We love you and look forward to you coming home. Our prayers and thoughts are with you. :wub:

Judyin Philly Enthusiast
bump- :)

BUMP :rolleyes:

nikki-uk Enthusiast

Evie, still thinking of you and rooting for you to get better ASAP!! :)

Hope you get to come home soon!! :):):)

lindalee Enthusiast

Evie - you're in my thoughts and prayers. :wub:

dlp252 Apprentice

Thanks for the update Judy!!! Still praying for her!

jerseyangel Proficient

Thanks so much for this Judy :)

Evie--We're all here thinking about you and sending positive get-well energy :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748

    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.