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Please Consider The Diet!

Terch

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Terch Apprentice
Terch
Posted

Hi,

I just want to say that I have had an endoscopy that came up negative. My GI did not do any blood work for Celiac, and it's too late now for that since I have been gluten free for 9 weeks and I am never going to go back on it. I am still waiting for more medical results and do see my GI in two weeks again. He is testing me for Crohns now. I told him I was on this diet and he said to keep it up! I would recommend to anyone that has any digestive problems to go gluten dairy and soy free just to see if they improve some of their symptoms. I kept thinking the diet wasn't working because after 6 weeks I still didn't notive an improvement but I was told to keep hanging on and I did. Finally 2 weeks ago I noticed a good couple of hours. I said to my husband " I don't have any pain right now!" and I kept on the diet and soon I was having a couple of good days and now I am having a GOOD WEEK! Thanks to all who said to keep this up, I am still going to be tested by enterolab for curiosity sake. And no matter what the diagnosis even if it is Crohns I will know that this diet has helped.

Once again THANK YOU for this site, this advice and my hope is that all those that are suffering will find some resolution.

Thank you.

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jerseyangel Proficient
jerseyangel
Posted

Hi Terch, I'm so glad that you're feeling better! :D

happygirl Collaborator
happygirl
Posted

Terch,

whatever the "reason"---celiac, gluten intolerance, gluten sensitivity etc.---I am so happy to hear that you are feeling better because of diet changes. Good for you----it sure does feel better, doesn't it?

we are happy to have you here and happy that you are doing better. I hope it continues :)

Laura

par18 Apprentice
par18
Posted

Hi,

When I read a post like yours in which you are taking control of your health I am really encouraged about the future. I think it will be the "preventive medicine" approach that will ultimately make the biggest impact to getting more and more people to try the diet first. I applaud you for not being afraid to go forth without getting an "official" diagnosis. The idea of still getting a blood test is good in that it gives you a reference point in which to gauge your progress. Anyone who can improve the quality of their life without having to get really ill is a plus. Congratulations on what you are doing.

Tom

Nantzie Collaborator
Nantzie
Posted

I also had completely negative test results. If it wasn't for me finding this forum and doing the diet no matter the test results, I would have still been trapped in my house because of "bathroom problems". I also would have had a handicapped placard for my car and probably a Lark scooter of some sort by now.

Gluten is a horrible thing for those of us who react to it. It just overwhelms me how many people out there must be suffering and have no idea that the "cure" is SOOOOO close.

Nancy

daffadilly Apprentice
daffadilly
Posted

Congratulations on your better health and also for going on the diet without the need for "doctors orders". It is so refreshing to hear from people that have learned to think for themselves!!!!

Yes, the blood test might be a good idea, but be prepared for it to be negative. I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

Nantzie Collaborator
Nantzie
Posted
I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

That's true. Even a friend of mine, who moved away three years ago, told me that her sister did a stool test for celiac at her M.D.'s office and that it would be a few weeks before the tests came back. As far as I know, Enterolab is the only lab that even does a stool test. Celiac runs in her family too.

Nancy

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daffadilly Apprentice
daffadilly
Posted

yes, the doctors are now using them also, from what I hear, and some doctors are also reading these boards...

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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