Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tampa, Orlando, Disney, Universal...etc...etc...

jnifred

By jnifred
in Traveling with Celiac Disease

Recommended Posts

jnifred Explorer
jnifred
Posted

So we are taking the boys to Florida to visit grandparents and enjoy 8 days of sunshine. We have a condo in Orlando so I will be able to do some cooking and etc. Don't want to do much though, and knowing my family as I do, the boys will NOT want to eat in often. Breakfast is the one thing I will be able to count on.

SO....

I need to know where I can find gluten-free products, so I don't have to pack a bunch in our suitcases. I am also making Thanksgiving dinner at the in-laws, so need some gluten-free bread and etc, that I would rather not pack in my suitcase either. They are actually in Zephyr Hills. I'd like to get a lot of the stuff when we are there on Fri/Sat and leave it for T-Day.

SO .......ANYONE?????? I'd love to have a couple Chebe mixes to make crackers, a loaf of bread to toast for stuffing, and the rest I can make do with regula grocery stuff.

THanks for any help you have to offer.....

OH, and does anyone know how good Disney, MGM and Universal are with gluten-free foods??? AM I going to starve when we are out and about???? Do i need to pack my own feed bag????? :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jnifred Explorer
jnifred
Posted
  • Author

Actaully the condo is in Kissimmee.....Thanks again

Guest cassidy
Guest cassidy
Posted

I can help you with the Zephyrhills part. There is a health food store on the main road, Gall Blvd near the post office. I can't remember the name of it right now. It is very small and doesn't have an impressive selection.

You will be better off going to the Dade City health food store. It is in the downtown area in the same building as the Kiefer Jewelry store. I'm sure your in-laws will know where that is. They have a good selection of bread mixes, crackers and Tinkyada pasta. It is a small store but should have what you need.

Disney is great for celiacs. They are very accommodating and I'm sure someone who has been there recently can give you some specifics.

Have a good trip.

chgomom Enthusiast
chgomom
Posted

I just took my son and many of the Disney Restaurants have things like fresh fruit, veggies and cold chiken plates with veggies.

There are also some smoothie stands which are gluten free.

Also....I highly recommend Denny's on the strip leading up to Disney.

They were very accomadating in cooking and have alot of experience with it.

I mean I take that with a grain of salt, but they will cook it on a clean grill, and make sure the food is free of anything you ask...I personally had good luck with their chicken, rice and veggies plain.

jnifred Explorer
jnifred
Posted
  • Author

THANKS.....I will be talking to the inlaws tonight hopefully and see if they know where the Jewelry store is.

And RE: Disney.....I think I should call and see if they have a list of the gluten-free foods. I ahvent foun one online yet, but of course I have gotten distracted this morning when I started packing, I ended up deciding to clean out my closet and soooooo........I am going to be completely absorbed in getting everything put back together before kids get home, so I can get theirclothespacked!!!

Thanks again....

jmengert Enthusiast
jmengert
Posted

Jnifred--I am going to Walt Disney World in January, and I just got a bunch of things emailed to me from Disney personally about gluten-free, soy free, and dairy free foods. If you would like me to send them to you (there are about 6 documents), PM me with your email address and I can send them to you.

jnifred Explorer
jnifred
Posted
  • Author
Jnifred--I am going to Walt Disney World in January, and I just got a bunch of things emailed to me from Disney personally about gluten-free, soy free, and dairy free foods. If you would like me to send them to you (there are about 6 documents), PM me with your email address and I can send them to you.

THANK YOU !!!!! I should have started looking into all this earlier, jsut too much going on chasing kids and carpooling and etc......alwasy down to the wire with me.

ANyway, i have hopefully pm'd you......thanks again!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted

I just sent you all the info, so just let me know if you don't get it! Disney sure does seem great for us with celiac and other intolerances!

StrongerToday Enthusiast
StrongerToday
Posted

We went to Sea World (which was a great day!) and they totally bent over backwards to accomdate me - the manager even offered to cook my food on a sperate grill!

jnifred Explorer
jnifred
Posted
  • Author

Ohhhh!!! That is great to know about about SeaWorld, inlaws want to go there with us.......and they like to eat out......

jmengert....i got the email. THANKS!!!!

pinktulip Apprentice
pinktulip
Posted

I used to work at Disney World and can attest the fact that they are accomodating. I work in a candy shop and while sadly most of our candy was not Celiac friendly, I do know the resturants are extremely accomodating. Tony's at Magic Kingdom actully told a family with a child recently diagnosed about all types of bread the child could have. Just tell you waitress or waiter and they will pass it on to the chef, and most times from what families have told me is that the chef will personally come and talk to the family. I hope this helps. Oh also most buffets have fresh vegetables and grilled meats as well as salads and other foods.

StrongerToday Enthusiast
StrongerToday
Posted
Ohhhh!!! That is great to know about about SeaWorld, inlaws want to go there with us.......and they like to eat out......

jmengert....i got the email. THANKS!!!!

Sea World was fantastic, I really enoyed it - esp. since I knew I had a great, safe meal!! I will warn you though, if you sit in the Shamu Spalsh Zone do NOT wear a white t-shirt :rolleyes:

morningstargirl Rookie
morningstargirl
Posted
I just sent you all the info, so just let me know if you don't get it! Disney sure does seem great for us with celiac and other intolerances!

Hello jmengert, I am new to this website (just joined yesterday) and Celiac's Disease. Next month, I'm taking my daughter to Disneyworld and saw your post about the info you received. I was wondering if there is anyway you would be willing to share that info again. I hope its not out of line or anything to ask. Thanks. Connie

loraleena Contributor
loraleena
Posted

If you type in gluten free dining in Disney world you will get some good info. I am researching myself right now. Also there is a Whole food one exit up from Orlando in winter Park. There is also an Outback, PF changs, and Carabbas.

NiqueP Rookie
NiqueP
Posted

Julie,

Could you please send me the disney info. Thanks A1piet@aol.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    3. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    4. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    5. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,365
    • Most Online (within 30 mins)
      7,748
    candiceelse08
    Newest Member
    candiceelse08
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.