Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Lynne - Tiredofdoctors

mouse

By mouse
in Introduce Yourself / Share Stuff

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I thank all of you. Armetta for getting the ball rolling even when she felt yucky, Lisa and Laura- for compilig everything. If they get this I am so flying down to Lou-ville for thaat week. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 112
  • Created
  • Last Reply
Rusla Enthusiast
Rusla
Posted

Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Lisa Mentor
Lisa
Posted

Armetta, I thank you for your gift of compassion, generosity and the knowledge of "it's just the right thing to do". Good things happen, to good people making it happen.

Thoughts to you, Lisa

Lisa Mentor
Lisa
Posted
Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Just to clarify........Armetta is in command, Laura and I are the ground crew. Metta., has the yucks, so we are the stand ins. :blink:

Thanks and yes she does.

Turtle Enthusiast
Turtle
Posted

I think it's really great how everyone came together and made every effort to help out on this project!

Thanks to Metta and her ground crew for all their hard work and organization!!

Keep us posted!!!!

num1habsfan Rising Star
num1habsfan
Posted

Hmm does that mean I missed the cut-off? :blink:

~ lisa ~

  • 4 weeks later...
angel-jd1 Community Regular
angel-jd1
Posted

Just curious if They made the cut??

-Jessica :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I should have posted this earlier:

All the little pieces are coming together and they should be ready to submit VERY soon. It is a technical process and full of lots of detail. Hopefully, within a week or so, the whole package will be sent off and submitted.

All of those who care or have written a letter, it is a gift that you bring. Thank you :)

Armetta, is force behind this project. Hopes and prayers could make it happen. But, lets get there first.

Lisa

I will post with any news or updates.

Mtndog Collaborator
Mtndog
Posted

No one deserves it more than our Lynne! :rolleyes: :rolleyes:

debmidge Rising Star
debmidge
Posted

is there still time for more? I got bombarded at work and didn't get to my letter...

happygirl Collaborator
happygirl
Posted

Deb, if you want to get it to me soon, I can include it! I'll PM you my email.

xoxo

  • 3 weeks later...
angel-jd1 Community Regular
angel-jd1
Posted

Any updates? Did they make the cut. They should be hearing back by now I would think. This was all done forever ago :)

-Jessica :rolleyes:

Lisa Mentor
Lisa
Posted

Lynne and Dave have been sick with the flu and Lynne had a bad case of pneunonia and is recovering and feeling better. They are looking for a good sunny day to arrange the video.

Lynne, you can chime in here......... :D

Laura has done a great deal of work getting the letters in perfect submission. Thanks you so much Laura for you hard work and a lot of you private time.

Armetta has the package ready to go when the video is complete.

We are wishful, for Lynne. It would be soooo cool.

Armetta or I will let you know when the package has been submitted and you guy will be the first (well, second) to know!

Lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...