Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So It's Serious...


Stef-Ani

Recommended Posts

Stef-Ani Rookie

okay.. i was just diagnosed with celiac a few days ago and everything makes sense now. I went through some pretty bad years of feelin sick and also had some bouts of depression. My dad gets the same stomach pains as I did so we think that he has celiac too but he hasnt been tested yet. He said he will get tested.. but he doesnt really think its that serious. I've explained everything I have learned about the disease to him too. He just kind of shrugs it off and makes excuses to still eat gluten. I just don't understand why anyone would want to keep damaging themselves if they know they can feel better... I'm excited about this new diet and seeing how much better I can feel! Does anyone have any ideas as to how I can make my dad realize that this really is serious and that he should get it fixed now? The longer you leave it the more you damage yourself right? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Yep. It's serious.

I saw your post buried down here on the third page. :D We've honestly been getting so many new people here lately that it's hard for us "Oldies" to keep up. Hope you're hanging in there okay and reading the archives. That's what I did when I first found out about my gluten intolerance. There's nothing that we haven't discussed here, so there's tons you can learn just doing that.

As far as your dad, unfortunately, there's not much you can do. I look at it like an addiction (gluten has opiate properties, btw) . You can't make someone give up gluten because it's harming them any more than you can make someone give up drugs or alcohol because it's harming them.

You could always just ask him to go to the doctor to make sure it's not anything more scary than celiac (or even something completely different like ulcers). My dad had stomach problems for decades. Took drugstore over the counter stuff. He died of stomach cancer in Dec 2004 (diagnosed in June 2004). I heard about celiac and gluten for the first time in September 2005.

I wish I would have known about celiac before because even if they didn't find celiac, maybe they would have found the cancer. An upper GI for ANY reason a couple years before his diagnosis would have made a big difference.

They haven't found a direct link between stomach cancer and celiac, so I don't want to scare you about that, but there is a definite link to intestinal lymphoma and many other diseases.

I would push your dad to just get a referral to a GI doctor to make sure there isn't anything else going on. Even if they end up finding celiac, and he gets an full official diagnosis with doctor's orders to go gluten-free, you STILL can't make him eat properly.

A lot of people I think avoid the idea that they might have a gluten issue because they don't think they could handle going without so many things. I have a lot of people in my husband's family who are like that. But I always make a point of bringing gluten-free goodies to parties. Now, they're cool about it. I've even had a few family members ask me more about it. So they're getting there. In fact, as I was writing this, my MIL called to ask me to make the pumpkin pie for Thanksgiving. Which is the best compliment! (Gluten-Free Pantry Pie Crust)

The best (slightly sneaky B) ) tactic is to work on finding good gluten-free versions of his favorite things. That's how I dealt with my own gluten-free transition too. You just work on replacing one thing at a time, and before you know it (less than a year later for me...) you're pretty much eating how you used to. It just happens to be gluten-free.

Welcome to the boards!

Nancy

kbtoyssni Contributor

You could also ask him to read some books on celiac (and tell him it's so he'll understand your disease and be able to help you through this). Maybe he'll see himself in some of the literature. Try Dangerous Grains. That book is my favorite and talks a lot about the non-GI complications that can be cause by celiac. You can try getting it from the library if it's hard to get to a bookstore (I know when I was a teenager my parents never would have bought me a book unless there was good reason).

schuyler Apprentice

I wish I knew how to help with your dad. My dad's the same way. He has the same symptoms as I do, and he knows that since I have 2 copies of the celiac gene that one must have come from him (my mom was recently tested, and was negative). I think he knows deep down that he has it, but he doesn't want to admit it to himself. He is addicted to gluten. I have been doing more gluten free baking (since his favorite foods are things like cookies), and he's loved some of the things that I made recently. I'm hoping that once he sees that gluten free foods can be good, that he will go on a gluten-free diet. Hopefully...

Danielle

Stef-Ani Rookie
I wish I knew how to help with your dad. My dad's the same way. He has the same symptoms as I do, and he knows that since I have 2 copies of the celiac gene that one must have come from him (my mom was recently tested, and was negative). I think he knows deep down that he has it, but he doesn't want to admit it to himself. He is addicted to gluten. I have been doing more gluten free baking (since his favorite foods are things like cookies), and he's loved some of the things that I made recently. I'm hoping that once he sees that gluten free foods can be good, that he will go on a gluten-free diet. Hopefully...

Danielle

My dad is trying it! I found some really good gluten free cookies that i'm gonna give to him when I see him this weekend too... hopefully i will get him to like them and keep trying the diet... they are called kinnikinnick double chocolate almond cookies and they actually taste like real cookies..lol didn't know that was possible untlil now! good luck with your dad!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.