Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foot Numbness

kimberleyshort

By kimberleyshort
in Coping with Celiac Disease

Recommended Posts

kimberleyshort Newbie
kimberleyshort
Posted

I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Generic Apprentice
Generic
Posted

All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.

Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie

kimberleyshort Newbie
kimberleyshort
Posted
  • Author
All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.

Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie

thanks! It does help to know that others have the same symptoms.

Lisa Mentor
Lisa
Posted

There is a condition associated with autoimmune diseases call Raynaud's Syndrome. (not sure of the correct spelling) and it the numbing of feet, toes and finger tips. They get numb and cold and when the circulation begins again there is a burning feeling.

Many people here on the forum suffer from this. I am sure that they will contribute soon.

darlindeb25 Collaborator
darlindeb25
Posted

Raynauds is different, I have both. Raynauds generally deals with the cold, your fingers or toes get very cold, then change colors, mine get white on the tips, then they start to burn--you must be careful to keep your feet warm enough and gloves n your hands when in the cold.....Now numbness in your feet and/or tingling, burning--that may be neuropathy. Many celiacs get this after years of being ill--generally a B12 deficiency caused by our malabsorption problems. In the beginning, mine started out in my hands and wrist--the doctor diagnosed carpal tunnel, then my toes started going numb and he told me the toes and the fingers have the same nerve running through the body. Now my feet buzz or just ache. My shoulders and neck get this pinched nerve feeling quite often. The last few days I have had this cold spot in my left knee. Just all of a sudden, I feel like there is a draft on my knee, yet the only place I feel the draft is that one spot on one knee. Checkout this: Open Original Shared Link and read about neuropathy, many new people will post their feelings and maybe you will read how you feel too. Hope this helps! Feel free to email me with more questions.

Lisa Mentor
Lisa
Posted

Deb, thanks for posting....I knew a little, but not much. :)

Leann Newbie
Leann
Posted

Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heathen Apprentice
heathen
Posted

i had one finger that would go numb for no apparent reason, but it hasn't happened since i have been gluten free. don't know that i can attribute it to full blown neuropathy, but it might be the beginning stages.

LYNN21 Newbie
LYNN21
Posted

Hello Leann

Just found out 3 weeks ago that my 10 year old daughter has celiac disease. She often complained of tingling in her legs before she found out she had celiac disease now she is on a gluten free diet and have not herd her complain. Hang in there and good luck.

Lynn21

Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.

Pegleg Newbie
Pegleg
Posted

I notice that the more wheat products I eat in one meal, the more my limbs tingle.

Sinenox Apprentice
Sinenox
Posted

Hey! I'm not sure if it's related but I got a "no way" moment out of this thread. I'm getting used to that feeling around here, though.

When my intolerance got so bad that my body wasn't fighting off infections and I was hospitalized after I had surgery to remove an abscess my body had walled off I got the strangest sensation. My right foot felt kind of numb and when I would get upset or surprised, even mentally, even at the smallest level, it would feel hot. It persisted like this for a few weeks after I was released and then slowly faded away. At the time I assumed the surgeon had hit a nerve and it was being repaired. But the phrase "Stop it, you're making my foot hot!" has persisted in my group of friends as an inside joke. Very, very occasionally I get a milder, similar sensation again. I haven't had it for months and I assume it's gone. But that's interesting. I wonder if it's related?

debmidge Rising Star
debmidge
Posted

Husband got this several months after going gluten-free and still has it. It encompasses the leg too and neurologist can't find cause (diabetes ruled out).....apparently he just has to live with it.

CatandCanary Rookie
CatandCanary
Posted
I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.

Thanks!

It’s strange this should come up, although it might not be related to Celiac, I have had a problem with my feet.

I get a burning pain in my feet when I am not feeling well or if under stress, it was also a joke with my family and friends, because my kids would tell me when ever I spend over $5.00 for something my feet hurt. And that’s when I realized that it did happen when I was under some sort of stress. I went to the doctor and they did tests and called it unexplained pain. I don’t notice it as much being Gluten free, also if I am constipated it starts to be more noticeable.

jerseyangel Proficient
jerseyangel
Posted

I had a lot of these things prior to diagnosis. I had an altered feeling in my left arm--somewhere between numb and asleep. Also, numbness in my face and tingling pins and needles feelings in my lower legs. I would get a burning sensation on the bottoms of my feet and in my mouth. Sometimes, my whole face would get hot, and my skin would be beet red.

A lot of this improved post gluten-free. Some of it, like the facial numbness, and occasional foot dragging I'm afraid is permanent. :(

Electra Enthusiast
Electra
Posted

Oh yah I have not been officially diagnosed yet, but I guarantee I have this disease. I have had B12 deficiancy FOREVER and have even had monthy shots that did nothing to help it. I also have had all the tests and MRI's and they all come back normal. The numbness, coldness and tingling in my lower foot and leg have gotten so bad lately that I threatened to have my leg amputated because a prosthesis would be so much easier to live with!! I know that sounds harsh but if you've ever had a full blown attack of this you would know that ANYTHING is better then that cold, numb, constant ache and pain!! I just can NOT believe I stumbled onto this disease while I was looking up my other "misdiagnosed" intestinal disease and realized that my daughter also has it!! When I stop eating for a few days (which I have done for years because I just feel better when I don't eat) then all of my symptoms disappear!! I have also been on the low carb diet before (but I always chose completely NO CARB) and I feel better on that diet then any other diet I've ever been on. Now that I know I have this disease I know exactly why I feel so good on the low carb diet!! I hear they have meds to help with the cold, numb pain in your legs and arms that comes with Celiac Disease, so I'm definitely going to be looking that up if the gluten free diet doesn't completely cure it!! Good Luck!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.