Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Fluke Or Are We Really Seeing Results Already?


girlfromclare

Recommended Posts

girlfromclare Apprentice

Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

You're definitely seeing results! Congrats! I also had positive results within a few days. I had a few setbacks and it was probably 6-9 months before I was 100% again, but the immediate results made it so much easier to continue with the diet. From your positive dietary response, I'd say your son definitely has celiac disease.

FeedIndy Contributor

I noticed a difference in DD's disposition and energy levels within 2 days! I thought I was just seeing things until we weighed her at day 5 and found she had already gained 5 ounces after losing 2 ounces the month before. She's a completely different and very happy baby now! When I get sad about what she may be missing out on as she's older (like pizza night the other day!) I just remember when she was teeny and lethargic, look at her now and know we are doing the right thing!

celiacgirls Apprentice

I saw results in myself and my daughter in a few days. We didn't have any stomach issues to begin with but our moods and her behaviour improved dramatically. Our house is a different place now than it was 6 months ago as far as our family life. Some days I feel sorry for my kids but mostly I am just glad we know what was causing their problems. After more than 6 months, it still seems hard to believe that the answer was so "simple". Like you, I am glad to spend time cooking and baking to keep it up.

vampella Contributor

I also saw these changes with in a few day's with my DD and about a week, we had NORMAl bowel movements and still are 1 1/2 months into. My dd also had a neg blood test, 2 actually but her doctor know's she's a celiac kid!!

Congrats, I am glad you are seeing improvment!!!

Guest nini

yep we saw results in my daughter that fast and she was having behavioral issues prior to going gluten-free... I'm telling ya, the tantrums were uncontrollable and frightening and would come on about an hour after eating and would last about an hour with her kicking, screaming, biting, thrashing around on the floor, not wanting to be held at all and on and on... it would pass just as quickly as it would come on and she would lay in a heap on the floor sweaty and sobbing and saying "sorry mommy, I couldn't help it"... I'm SO GLAD we found out that gluten was the problem. One of the first indications to me that she's been accidentally glutened is when her attitude takes a major downturn and then the tummy starts hurting and she begs for some pepto bismol...

Lymetoo Contributor

I felt better in one week!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I noticed amazing changes within a day! It is definitely not a fluke, that is fantastic, you must be so happy!

Nic Collaborator

My father saw results that quickly too. Within the first week his D had stopped. My son's symptom was constipation so I took longer to see any change. I think that is a harder problem to turn around. We still have issues but my father swears he felt much better within that first week.

Nicole

taweavmo3 Enthusiast

Yep, we saw results that fast too......it is truly one of the best feelings in the world, to see your child become happy again. You don't realize how much you lost until they start to become the children they should have been all along. I will never forget how thrilled we were those first few weeks!

Congratulations to you....and I hope things just continue to improve!

girlfromclare Apprentice

Thank you everyone. Wow... i definitely feel we are on the right track... I am so glad that you all so improvements so quickly too... so I know this isnt a fluke. Nini, our experience with the tantrums is exactly the same... exactly!!! And then afterwards the pain in the tummy... oh boy we've had it for so long now that they were a daily occurence for the past four years and that alone would drain every ounce of energy from you... I can truly empathise... and now they have stopped we are so relieved and happy. My husband is quite genuinely surprised to see the results.. i dont think he expected any... and we are both thrilled to have finally discovered the problem that has been holding our little boy back for so long. thanks everyone... i really mean it... you guys are all so wonderful

a million hugs x x liz

wolfie Enthusiast

We also saw results quickly....within the first week or 2, for both me & my son. DS had behavioral issues and he is just genuinely a nicer person all around off of gluten. His grades have improved, too!

Keep up the good work!!!! :)

Confused in Iowa Rookie
Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

I agree with you - i saw differences in my son as quickly as you did. Not only with his personality, but his school work...last year struggled with a D average and this year in 6th grade he made the honor roll! I was so proud. So I'm like you. As much of a pain it is to figure this diet out, I'm with you that it is so worth it to have a happy son.......i always just blamed his personality on him getting it from his father, but it's so nice now to have him be so angry all the time.

My son never has had any stomach troubles, so when he was diagnosed, I was sooo in the denial thing, and thought the Dr. was just crazy and this was the health fad of the now type thing...but seeing the results that we've gotten so far, it is just amazing.

Now if they'd just find some miracle cure for it, this would be a beautiful thing!

Juliet Newbie

My son (who was two years old and awake for only 3 hours total every day before going gluten free and looked like one of the starving kids with the distended bellies) got his energy back in 9 days - and we were making mistakes that whole time (Rice Krispies, O's cereal made from oat flour, other things w/ malt). He didn't nap at all (he still normally takes naps now, but he was so happy to have energy), and he was practically stumbling at the end of the day trying to still move, but his muscles were so atrophied he could barely do it! The next day he was sore from the exercise but still had energy! It's tough sometimes dealing with it, but to see your extremely sick child turn into a normal, happy kid makes it all worthwhile!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,883
    • Most Online (within 30 mins)
      7,748

    ammocat
    Newest Member
    ammocat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.