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Sue F

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Sue F Rookie

I'm learning so much from this website, but as soon as I learn something I think of more questions. I was wondering can we have coke, canned kidney beans, oatmeal? What make up and toothpaste is gluten free?


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heathen Apprentice

coke is ok. (and i believe pepsico says all of their carbonated drinks are gluten-free.) oatmeal is all right as long as it's made from gluten free oats (so quaker doesn't count). and canned kidney beans that don't have any extra little goodies (like natural flavors) should be ok. hope that helps.

Guhlia Rising Star

Some Celiacs react to gluten free oats, others don't. Most oats in the US are contaminated and gluten free oats are hard to find and expensive. I steer clear, but that's my own personal preference. To me, the risk isn't worth damaging my body.

Coke is definitely gluten free. Crest toothpaste is gluten free. Kidney beans should be fine, just make sure the only ingredients are kidney beans, water, and possibly salt.

Welcome to the board!

Lisa Mentor

Sue:

I know that it very difficult in the begining.

As said, Pepsi and Coke are gluten free.

I would suggest that you check "Nini", a forum member who has compiled a wonderful list for, as we call "newbies". You can down load the files that she has so graciously combined to help new celiac.

You can find her name under "members" on the top of the page. And to reach her list, click underneath her name to bring up her "Newbie Survival List". It is a wonderful gift from her and it will be invaluable to you, to start with. (Or any other post that you see her name, just click on her name)

But, as history tells, she will be here soon to help out.

It does get easier, trust me. :)

Lisa

Guest nini

and here I am...

yep, just click on the link in my signature below for my webpage then scroll to the bottom, there you will find the link for the Newbie survival kit... enjoy! And feel free to ask any questions. There are NO STUPID QUESTIONS!

welcome aboard!

oh and I use Colgate toothpaste. It's gluten-free too.

happygirl Collaborator

Welcome to the board! We are happy you have found us!

All the advice given is correct...so what next? What can we do to help? Please let us know.

Good luck and we look forward to getting to know you!

Laura

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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