Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Personal Feminine Issue


KrisT

Recommended Posts

KrisT Explorer

I have a lot of issues... but one issue that is really bothering me I am wondering about in terms of celiac. Sexual intercourse is incredibly painful for me, not always, but most of the time. It has gotten worse since my c-section 5+ years ago. We found out 9 months after the c-section that I had an infected uterus! Anyway it seems to be much worse if I am having bowel issues from my diet. I have often wondered if it is actually my intestines that are painful and not my feminine parts. Does anyone else have a similar issue? If you have the intestinal damage is it ever painful to the point of tears? Sometimes I end up curling up in a ball and needing a heating pad after... and my husband is not in any way forceful, he will stop immediately when it is hurting me. I just need to know if I should be more concered gynologically or intestinally at this point. Either way, I know something is very wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I have a condition that makes sex painful, but it is most definitely gynecological, not intestinal.

*fair warning - I'm gonna talk about girly parts - stop reading if you're unhappy about the prospect of reading about female anatomy and it's relation to sex*

One of the things to see if you can separate out is the location and type of pain. There's a muscle that starts at the front of the pubis, surrounds the opening of the vagina, and then extends around the anus as well, to connect back at the coccyx. If the muscle there is having issues (be it chronically spasming and hence shortened, torn, etc.), it can cause pain. That will cause pain at the entrance to the vagina.

In the same location, vulvodynia (which I have a subset of - vulvar vestibulitis) causes pain (usually burning/itching), at the opening of the vagina. It can be just during sex, or at other times, and it's not really known what causes the problem.

Another option, which can be mistaken more easily for intestinal pain, is if your husband is hitting your cervix. That is *not* comfortable! Ugh! Kinda like a kick in the gut, but very generalized. Changes to position can help prevent that from occuring.

It's *ABSOLUTELY* worth checking with your doctor, but be prepared that many gynecologists do not know a whole lot about female sexual pain conditions, and you may need to do plenty of followup on your own. This is starting to change, but with even less publicity than celiac (who wants to talk about vagina's in public?), it's going to be a long road. You might check out "The V Book", a nice little book that is kinda an owner's guide to the female reproductive system.

Lisa Mentor

KrisT:

My issues are age related. I think that way Tiffany said about it being a GYN issue, and a professional opinion would be good.

I did read here a few days ago that 90% of the fluids that we take in is through our small intestines. Perhaps, additional fluids may help a little.

I do think that you need a professional to deal with this, and I hope you find some answers.

KrisT Explorer

Thank you for responding. The pain is like someone has hit me in the gut with a baseball bat. It is not vaginal in any way. I also don't believe it is the cervix unless something in my body has changed because I have not always felt like this with my husband. I used to suffer from polycystic ovaries and had severe pain with that, however that pain was more localized and I could tell which ovary the cyst was on by where the pain was. Lately the pain seems to be all over the lower abdomin. (think period cramps)

We don't have insurance, and I am having a severe problem with my teeth right now (thank you celiac!) so my first priority is the dentist bill. But as soon as I can save up a little I will get to an OB. I just wanted to see if any other celiacs that don't have GYN issues have experienced pain.

Lisa Mentor

I get soreness after I have been glutened, after the diarrhea has passed. But it is nothing like you have described. Perhaps someone will post in the morning. You know the board is always slow on the weekend. I hope you can find a answer. :)

tarnalberry Community Regular

* sex talk warning - keep scrolling if it bothers you... *

The cervix can shift position, so - since you can't get to a doctor right now - you might try keeping track of whether or not different positions (different levels of penetration) make any difference. I hope you can get in soon - that really doesn't sound good, and like something that should be looked at soon.

KrisT Explorer

Thanks again. I will get to a doc as soon as I can. Until then... well, its just no fun! : (


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zansu Rookie

But it's supposed to be fun ;) ....

I had pain from intercourse for the 6 years I was trying to get diagnosed. Of course, I pretty much just ached from the bottom of the rib-cage to the pelvis for the entire six years so it's no wonder. The pain with intercourse went away after my intestines healed from the gluten-free diet, but it takes a while. Still, rule out other problems....

KrisT Explorer

I know, and I so miss the fun part!!

I've been gluten-free for almost 6 months now. I've glutened myself at least twice a month since going gluten-free though, so I know I have a lot more recovering to do. Its wonderful (and I am so sorry to say that) to hear that you had pain from the ribs down. I can truly relate to that. I have felt a great deal better since the change in diet, but not everything has gone away yet. I'm just hoping that I can continue to feel better and not take 3 steps forward and 2 back.

Heather22 Rookie

Hi KrisT

From a girl with no gyn. problems, I have experienced pain from sex in the past. For a good year after I was diagnosed, I felt pain and discomfort. I had always related it to my intestine and bowels. I figured that having an inflammed small intestine and having D all the time, my lower abdomen must be very sensitive.

After being gluten-free for the past few years (and going off the birth control pill), I've found that I am pain-free.

In the meantime, I would focus on staying gluten-free and letting your body heal. Hope you get well soon.

Lots of luck!

H : )

jerseyangel Proficient

Hi KrisT,

I'm sorry that you're having so much pain. As everyone has already stated, there could be many reasons for this.

Endometriosis can cause the type of pain you describe--especially the pain during sex. Also, fibroid tumors and ovarian cysts can also cause pain (I have both of these, and last month, literally almost passed out from the pain)

I understand that right now, money is tight. When you can do it, I would suggest getting a checkup from a gynecologist and a pelvic ultrasound.

Budew Rookie

This is about your teeth. I spent a lot going to the dentist. My dental problems have improved since I stopped using toothpaste. I use baking soda. For years I have had dental pain. When ever I had a real problem it was related to infection. When I lowered my salicylates the sinuses cleared and when I stopped using toothpaste my dental concerns evaporated. No dental pain for the first time in 30 years.

KrisT Explorer

I was misdiagnosed with endo when I was very young and every ultrasound and many surgeries since have shown that I do not actually have it. I am all too familiar with the cyst pain and I know exactly how that feels. Lately it has been different, not so localized, more general. My last check up was over 2 years ago so it is definitely a priority to get in , I know. It will be interesting to see if my cervix has changed, or if it is something else I am not thinking of.

Very interesting about your teeth! I have been having severe problems on one side of my mouth for a couple of years now. I've had 3 root canals and then lost 2 of those teeth because the shattered. Now the final tooth is infected along with the one behind it. I am afraid I will loose them all!! I'm too young to have lost so many teeth! My entire jaw line has shifted and my bite is only connecting one tooth, the infected one, and I have TMJ. So with all the pressure being put on one set of teeth its no wonder I'm infected! I wear a homemade mouth gaurd at night to keep the teeth apart, but now it is so bad that I have to get in. I have an appointment today. I only use Tom's toothpaste, almost never with flouride! And I use mouthwash BEFORE I brush. The key is to use it before you brush so that you rinse away the harmful alcohol after it has had a chance to kill some of the bacteria. I always get complimented byt he dentist at how well I take care of my teeth, but now I am just loosing tham all.

Thank you all for sharing on this very personal issue. Heck we can all discuss the color and length of our poo so I thought it wouldn't be too bad to ask on here about this! LOL

Jestgar Rising Star

Hi Kris,

check out Planned Parenthood. They usually have a full women's clinic and charge on a sliding fee scale.

chrissy Collaborator

adhesions from your c-section could be another possibility.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.