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Good Ol' Ct?


Mal

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Mal Explorer

anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?


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darlindeb25 Collaborator

Do some research for support groups--here's one for you:

Group: Nutmeg

City: Danbury/Waterbury

Contacts:

Edith Meffley

32 Lewis Dr.

Ridgefield, CT 06877

203-438-6108

Eileen Gallo

17 Pole Bridge Road

Sandy Hook, CT 06482

Internet:

Syd Aronowitz, itsme@erols.com

Updated: 10 Mar 2001

There is a huge support group in Westchester County, NY. Anytime you need some info, feel free to email me at darlindeb25@aol.com I am always available for questions. There is a huge number of celiacs in Nassau County and Suffolk County here on Long Island.

I am also sure there are people in the forum near you--they will let you know.

Deb

jkmunchkin Rising Star

I'm in Westchester (NY). I grew up right on the border of CT, and go to our Wilton office for work once a week.

I just recently found an incredible health food store right in town in New Cannan. They have tons of gluten-free products that a lot of the other stores don't have. It's called Healthfare. There is a store with the same name in Trumbull. I went there once, but I don't think they are connected because the one in Trumbull kinda stunk, whereas this one is incredible.

You should definately check it out.

Katie618 Apprentice

.

bigapplekathleen Contributor

Hey Mallory,

I live right near you! I see that you're newly diagnosed. If you need any assistance in any way, feel free to contact me!

Kathleen

gluten intolerant (diagnosed via blood tests in 2003) but NOT celiac (don't carry the gene)

other food allergies

  • 5 months later...
Vince Newbie

I go to school at Quinnipiac in Hamden. There are no bardstales in all of ct, and it does seem like nobody here acknowledges it. Feel free to talk to me!

JoeB Apprentice

Katie -

I'm in Trumbull, too. That makes at least two of us in town with celiac disease!


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  • 1 month later...
LJW Newbie
anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?

I don't know if you are still out there. I am from Stratford, CT. I went to school in Danbury. I am looking for someone local to share and swap stories!!!!!!!!!!

  • 2 months later...
saaa-wheat<3 Apprentice

I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

JNBunnie1 Community Regular
I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

JoeB Apprentice

We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my diet to the waitress, she said she knew about it because one of the other servers had Celiac disease.

Have a good time!

Nutmegger Rookie

My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

JNBunnie1 Community Regular
My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

YEAH, since you have to pay dues everywhere else! We should just all make friends and cook for each other once in a while! (As long as there's no creepy stalkers on this forum, LOL)

  • 3 weeks later...
kifert Newbie

Hi--My daughter has celiac, and we live in Ridgefield...Piccolo's here in town is offering gluten free pasta, and they swear that they'll use separate water, spoons, etc. Soul Dog in Poughkeepsie is a hike, but my daughter (who is also vegetarian) loved their veggie and gluten free food.

karen

  • 2 months later...
Ingrid in Ct. Newbie
Hey!! i'm in trumbull!! it does seem like no one in ct knows about celiac! i joined the ct chapter of the CSA... if you want the info for it, i'll gladly give it to you, the group is sooooo wonderful and helpful- meetings have such good food!!!

message me here of IM on aim my sn is suga0456... IM me if you ever need to vent about celiac disease or anything else!! it's always nice to meet someone else who has celiac disease, and whatnot

psipsina Rookie
I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

I'm originally from CT and I was living up there when I was diagnosed with gluten and other food intolerances from candida (I've never bothered to get the official celiac dx). Rainforest Cafe was the first restaurant I ate at and they were soooo amazing (I actually wrote a letter to corporate I was so impressed). In addition to gluten-free I was also caesin free and sugar free so I was a pretty difficult customer. The chef came to our table and talked to me and then invented a special sauce that I could have on their fish! They were so awesome and didn't make me feel like I was being a pain in the but or like I had 6 eyes or anything. Totally recommend them. I've always had good experiences at Outback too as far as chains go.

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    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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