Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My 1st Follow Up Endoscopy

jkmunchkin

By jkmunchkin
in Coping with Celiac Disease

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I had my 1st follow up endoscopy yesterday since being dx'd almost a year and a half ago. My doctor wanted to do a colonoscopy at the same time, since I've never had one.

The colonoscopy showed a slight hemroid, no suprise and no big deal. Although the prep was super fun!! I had to go to my primary doctor today for another appointmet (thyroid), and he was making fun of me (in a nice way), that I was so lucky to have a colonoscopy at my age. LOL!

The endoscopy showed definite signs of celiac, but my villi are growing back. The doctor said there were some that were laying down flat, but she expects them to come back aswell. I had total flattening of the villi (doctor said I was one of the more severe cases they've seen when diagnosed), so I have / had a lot of healing to do.

Overall the results where good. She seemed happy with my progress, and almost as importantly I feel great.

I kinda wish I'd been more healed, but I have to remember how bad my damage was to begin with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I am very glad you're healing, even if it takes quite a while. And you're right, a hemorrhoid is no big deal, knowing that you could have things a lot worse. I hope you keep healing as steadily as you have, and will have complete healing soon!

jerseyangel Proficient
jerseyangel
Posted

That is really such good news, Jillian! You are well on your way to being completely healed :) I'm glad that you're feeling well--you obviously are doing a great job with the diet.

My colo also showed internal hemorrhoids--I would have never known they were there! :D They are common, and nothing to worry about.

dlp252 Apprentice
dlp252
Posted

Wonderful news!!! :)

Mtndog Collaborator
Mtndog
Posted

That's awesome!!!!! Grow villi, grow! :rolleyes:

happygirl Collaborator
happygirl
Posted

Yes, like Bev said, grow villi!

Jillian, happy to hear the good news that you are healing. That is really encouraging!!!!!!!!!! Thanks for posting and letting us know. We all need to hear great news of recovery! :) :)

My colonoscopy showed internal h. as well. We must be special or something!

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author
That's awesome!!!!! Grow villi, grow! :rolleyes:

LOL!! That was to funny! Thanks for the laugh.

My colonoscopy showed internal h. as well. We must be special or something!

Wait, you mean every 29 year old doesn't have an internal h. and takes a higher dose of calcium daily than a senior citizen!!! Hehe!! (No but seriously, the recommended dose on the bottle says 2 pills a day and my doctor wants me to take 3). What can you do but laugh, I mean none of it is life threatening. There are certainly worse things. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Great news!

Mtndog Collaborator
Mtndog
Posted
LOL!! That was to funny! Thanks for the laugh.

Wait, you mean every 29 year old doesn't have an internal h. and takes a higher dose of calcium daily than a senior citizen!!! Hehe!! (No but seriously, the recommended dose on the bottle says 2 pills a day and my doctor wants me to take 3). What can you do but laugh, I mean none of it is life threatening. There are certainly worse things. :)

I have those lovely h-things too. Yes, Preparation H...isn't not just for under-eye bags and reducing zits. :P

Jillian- You must teach your villi the ways of the Jedi. They must use the force to grow!

nikki-uk Enthusiast
nikki-uk
Posted
Yes, Preparation H...isn't not just for under-eye bags and reducing zits. :P

:lol: SSshhh!! We don't want the menfolk to know our secret to everlasting youthfullness!! :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac...
    2. Churro
      - Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      4

      Celiac support is hard to find

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    4. Scott Adams
      0

      Gluten-Free Stir-Fried Chinese Eggplant With Garlic Sauce

    5. pweidema
      - pweidema commented on Scott Adams's article in Latest Research
      1

      How the Gut Microbiome Shapes Celiac Disease Risk (+Video)

      Very interesting! Thank you Scott!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,051
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.